CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1178-C18984	C18984	Anticoagulant agent in hospital other text	The free-text field related to 'Anticoagulant agent in hospital type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13860	C13860	Imaging magnetic resonance based identification core defect volume measurement	Indicates MR based identification of core defect volume measurement	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13471	C13471	Stroke Adjudication Worksheet - neuroimaging DWI stroke finding indicator	Whether the DWI was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14267	C14267	Sophia timing sub type	Sophia classification of stroke subtype by timing of stroke	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13854	C13854	Abscess present indicator	The indicator for presence of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C13834	C13834	Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score	Indicates Graeb IVH Scale - Fourth ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13868	C13868	Imaging perfusion computed tomography based identification core threshold type	Indicates perfusion CT (PCT) based identification of core threshold used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13479	C13479	Stroke Adjudication Worksheet - ischemic stroke type	The type of ischemic stroke subtype most likely to have contributed to this stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C18911	C18911	Subarachnoid hemorrhage etiology other text	The free-text field related to 'Subarachnoid hemorrhage etiology type' specifying other text. Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C18889	C18889	Intraparenchymal hematoma MRI sequence other text	The free-text field related to 'Intraparenchymal hematoma MRI sequence type' specifying other text. Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14226	C14226	Stroke causative classification standard sub type	Ischemic Stroke Subtype based on The Causative Classification System's - standard causative subtypes	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1173-C13927	C13927	Intima media thickness (IMT) B Mode guided M mode indicator	Indicates intima media thickness (IMT) B mode guided M mode	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13768	C13768	Imaging additional vascular result	Indicates additional vascular imaging findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C13514	C13514	Consciousness findings result	Assess consciousness using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F2838-C18900	C18900	Intracranial stenosis collateral vessel anatomic other text	The free-text field related to 'Intracranial stenosis collateral vessel anatomic site' specifying other text. Indicates intracranial stenosis collateral vessel(s)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13955	C13955	Imaging transcranial color-coded sonography symptomatic indicator	Indicates symptomatic presentation by Transcranial Color-Coded Sonography (TCCS)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1173-C13935	C13935	Intima media thickness (IMT) max far-wall measurement	Indicates max intima media thickness (IMT) far-wall measurement (mm)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1159-C14198	C14198	Hospital presumptive admission diagnosis type	The presumptive diagnosis tries to identify presumptive diagnosis at the time of hospital admission	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13785	C13785	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) total score	The total score for the Alberta Stroke Program Early CT score (ASPECTS) middle cerebral artery (MCA)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14399	C14399	IV tPA not started reason	If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1164-C13524	C13524	Carotid bruit indicator	Indicator of whether the participant/subject has a carotid bruit upon examination	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1158-C14200	C14200	Emergency Medical Services (EMS) call received date and time	Date and time first call was received by the Emergency Medical Services (EMS) dispatcher OR date and time of EMS vehicle dispatch as recorded on the EMS trip sheet or other similar documentation	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14003	C14003	Imaging brain death present indicator	Indicates presence of brain death	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13795	C13795	Modified Scheltens scale occipital score	Indicates modified Scheltens scale - occipital score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14407	C14407	Intra-sinus intervention indicator	Indicates whether the participant/subject received any intra-sinus (i.e., for cerebral venous thrombosis) intervention	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.