CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2838-C13904	C13904	Imaging interpretation offsite media type	Indicates imaging offsite media type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13897	C13897	Imaging vessel angiography collateral status anatomic site	Indicates vessel angiography collateral status location	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13815	C13815	Hematoma lobar region anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in a lobar region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1165-C14449	C14449	Hip circumference unit of measure	Units used to measure the hip circumference	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13923	C13923	Imaging power doppler result	Indicates power doppler result	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13763	C13763	Imaging circulations involved anatomic site	Indicates circulations involved	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2838-C14035	C14035	VMR response result	Indicates vasomotor response (VMR) response result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C13879	C13879	Imaging modality vessel imaging angiography type	Indicates imaging modality for vessel imaging angiography	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2838-C13947	C13947	Imaging peak velocity measurement	Indicates peak velocity measurement (cm/sec)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13825	C13825	Spot sign total score	The total score for computed tomogram angiography (CTA) 'spot sign' which describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13931	C13931	Intima media thickness (IMT) findings artery type	Indicates intima media thickness (IMT) artery used for mean and max measurements	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1159-C14194	C14194	Hospital not admitted but transferred to another acute care hospital indicator	Whether a patient presented to the Emergency Department of the study hospital and was transferred to an outside hospital. Was patient evaluated in the ED for acute Stroke or TIA and subsequently transferred to another acute care hospital rather than being admitted to your hospital?	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13773	C13773	Imaging lesion relative threshold amount text	Indicates acute lesion threshold relative amount	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C13518	C13518	Upper limb tone findings result	Assess tone of upper limbs on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1172-C14018	C14018	Imaging perfusion computed tomography based identification core defect volume measurement	Indicates perfusion CT (PCT) based identification of core defect volume	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C18884	C18884	Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms other text	The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms type' specifying other text. The type of symptoms/conditions that were present and relevant for cardioembolic source	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14246	C14246	Fisher scale	Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13832	C13832	Graeb intraventricular hemorrhage (IVH) scale - left lateral ventricle score	Indicates Graeb IVH Scale - Left lateral ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1153-C14145	C14145	Family history stroke youngest age value	If there is a family history of stroke, specify the youngest age an immediate family member (parent, sibling, child) suffered a stroke	Supplemental	Family History	False	Stroke	Stroke
F2834-C18912	C18912	Comfort care measure other text	The free-text field related to 'Comfort care measure type' specifying other text. Describes the types of comfort care the participant/ subject received	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1162-C14254	C14254	Subarachnoid hemorrhage quadrigeminal cistern score	SAH Volume Scale (Hijdra) - Quadrigeminal cistern score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13840	C13840	Subdural hematoma present indicator	Indicates presence of Subdural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C14634	C14634	Extracranial venous thromboembolism type	Type(s) of extracranial venous thromboembolism (VTE) diagnosed with	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13857	C13857	Imaging magnetic resonance based identification core volume type	Indicates magnetic resonance based identification of core volume type	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1199-C13231	C13231	King's Outcome Scale for Childhood Head Injury (KOSCHI) - prognosis category	The category that best describes the child's prognosis by the King's Outcome Scale for Childhood Head Injury (KOSCHI), which is a specific pediatric adaptation of the original adult Glasgow Outcome Scale (GOS)	Supplemental	King's Outcome Scale for Childhood Head Injury (KOSCHI)	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.