CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1203-C13483	C13483	Stroke Adjudication Worksheet - hospitalized indicator	Is this case a hospitalization for chest pain, heart failure, acute MI or coronary revascularization?	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14232	C14232	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - cardioembolic grade	The grade of cardioembolism, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of cardiac source (C)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2834-C14279	C14279	Comfort care indicator	Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1203-C18887	C18887	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology other text	The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology type' specifying other text. The type of etiology of the hemorrhage	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14245	C14245	Hunt and Hess scale	This is a 5 level scale for classifying the severity of Subarachnoid Hemorrhage (SAH), the higher the score the lower the likelihood of survival	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13831	C13831	Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score	Indicates Graeb IVH Scale - Right lateral ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1153-C14147	C14147	Family history coronary artery disease (CAD) youngest age value	If there is a family history of coronary artery disease (CAD), specify the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack	Supplemental	Family History	False	Stroke	Stroke
F1179-C14403	C14403	Intra-arterial (IA) procedure groin puncture date and time	Date (and time, if applicable and known) of groin puncture on the participant/ subject for the intra-arterial (IA) procedure	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14205	C14205	Emergency Medical Services (EMS) scene arrival date and time	This refers to the date/time when the Emergency Medical Services (EMS) vehicle arrives on the scene to transport the patient to the hospital	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14008	C14008	Imaging window quality category	Indicates window quality category	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13799	C13799	Modified Scheltens scale periventricular bands score	Indicates Modified Scheltens scale - Periventricular bands score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14411	C14411	Investigational or experimental protocol for thrombolysis indicator	Whether medical records suggest some kind of investigational thrombolytic protocol was used during provision of care	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13906	C13906	Imaging B-mode artery name	Indicates B-mode artery name	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14623	C14623	Los Angeles Motor Scale (LAMS) - grip abnormal type	Type of abnormal grip observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14016	C14016	High intensity transient signal hits start time	Indicates high intensity transient signal hits start time	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13807	C13807	Imaging magnetic resonance imaging leukoariaiosis volumetric measurement	Indicates MRI volumetric measure (cc)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13914	C13914	Imaging plaque residual lumen result	Indicates plaque residual lumen	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1163-C14213	C14213	Diagnosis principal discharge code	The principal diagnosis is defined in the Uniform Hospital Discharge Data Set (UHDDS) as "that condition established after study to be chiefly responsible for occasioning the admission of the patient to the hospital for care."	Supplemental-Highly Recommended	Hospital Discharge	False	Stroke	Stroke
F2838-C14029	C14029	Vasospasm posterior ratio result	Indicates vasospasm posterior ratio result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1182-C14284	C14284	Resource Utilization Group Version IV (RUG IV) - alpha-numeric code	Indicates the Resource Utilization Group Version IV (RUG IV). Medicare pays skilled nursing facilities (SNFs) under a Prospective Payment System (PPS). PPS payments are per diem rates based on the patient's condition as determined by classification into a specific Resource Utilization Group (RUG). This classification is done by the use of a clinical assessment tool, the Minimum Data Set (MDS) and is required to be performed periodically according to an established schedule for purposes of Medicare payment. Each MDS represents the patient's clinical status based on an assessment reference date and established look back periods for the covered days associated with that MDS	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F2838-C13943	C13943	Imaging B-mode result	Indicates B mode	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13897	C13897	Imaging vessel angiography collateral status anatomic site	Indicates vessel angiography collateral status location	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13815	C13815	Hematoma lobar region anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in a lobar region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1165-C14449	C14449	Hip circumference unit of measure	Units used to measure the hip circumference	Supplemental	Vital Signs	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.