CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2838-C13956	C13956	High intensity transient signal hits duration	Indicates high intensity transient signal hits duration time (msec)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1173-C18892	C18892	Imaging percent stenosis criterion other text	The free-text field related to 'Imaging percent stenosis criterion type' specifying other text. The criteria used to find indicate stenosis	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13792	C13792	Fazekas scale total score	Indicates the Fazekas scale total score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14409	C14409	Intra-sinus intervention groin puncture date and time	Date (and time, if applicable and known) of groin puncture on the participant/ subject for intra-sinus intervention	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13899	C13899	Imaging probe type text	The text describing the type of imaging probe	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14206	C14206	Emergency Medical Services (EMS) scene departure date and time	Date and time the EMS vehicle departs with the patient from the scene to take the patient to the hospital	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14005	C14005	Imaging brain death diagnosis result	Indicates brain death diagnosis result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1152-C52700	C52700	Hypercoagulable disorder type text	The free-text field related to the type of hypercoagulable disorder	Supplemental	Medical History	False	Stroke	Stroke
F1171-C13800	C13800	Modified Scheltens scale total score	Indicates Modified Scheltens scale - Total Score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13907	C13907	Imaging B-mode finding result	Indicates B-mode finding	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14624	C14624	Los Angeles Motor Scale (LAMS) - arm strength abnormal type	Type of abnormal arm strength observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14013	C14013	Intracranial stenosis mean velocity criterion value	Indicates intracranial stenosis mean velocity criterion	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13808	C13808	Van Swieetten scale anterior white matter result	Describes Van Swieetten Scale - Anterior white matter	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1172-C13866	C13866	Imaging magnetic resonance based identification penumbra method type	Indicates MR based identification of penumbra method used for penumbra calculation	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13473	C13473	Stroke Adjudication Worksheet - not meet WHO definition indicator	The indicator of whether the event is not a stroke according to the WHO definition	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C18909	C18909	Intracerebral hemorrhage presumed cause other text	The free-text field related to 'Intracerebral hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14224	C14224	Acute ischemic cerebrovascular syndrome (AICS) - stroke sub type	Ischemic stroke subtype based on the acute ischemic cerebrovascular syndrome (AICS) classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13874	C13874	Imaging perfusion computed tomography based identification perfusion defect threshold type	Indicates PCT based identification of perfusion defect threshold type used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13481	C13481	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site	The anatomic location(s) of the hemorrhagic transformation during ischemic infarction	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1171-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C14289	C14289	Adjunctive treatment type	Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1162-C14234	C14234	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - diagnostic evidence level type	Levels of diagnostic evidence for the ASCO Grades	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1203-C18885	C18885	Stroke Adjudication Worksheet - stroke TIA other symptoms other text	The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA other symptoms type' specifying other text. The type of other identified cause(s) of ischemic stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14247	C14247	Modified fisher scale	Modified Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.