CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1171-C13822	C13822	Spot sign count	The number of "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion. The computed tomogram angiography (CTA) 'spot sign' describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1165-C14538	C14538	Central venous pressure (CVP) unit of measure	Units used to measure the pressure of blood in the central venous system	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13928	C13928	Intima media thickness (IMT) electronic caliper indicator	Indicates intima media thickness (IMT) electronic caliper use	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1159-C14190	C14190	Stroke symptoms discover location type	Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13769	C13769	Imaging planimetric volume value	Indicates acute lesion volume	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C13515	C13515	Orientation findings result	Assess orientation using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F2838-C18901	C18901	Sickle cell disease vessel anatomic other text	The free-text field related to 'Sickle cell disease vessel anatomic site' specifying other text. Indicates sickle cell vessel	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13956	C13956	High intensity transient signal hits duration	Indicates high intensity transient signal hits duration time (msec)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1173-C13936	C13936	Intima media thickness (IMT) artery type	Indicates intima media thickness (IMT) artery for diameter	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1159-C14199	C14199	Stroke complication of medical/ surgical procedure or therapy likelihood type	Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)	Exploratory	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13786	C13786	Imaging chronic infarct present indicator	Indicates presence of chronic infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14400	C14400	IV tPA at another hospital indicator	Indicates whether IV tPA was initiated for the participant/subject at an outside hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1164-C13525	C13525	Carotid bruit type	Type of carotid bruit found during the examination	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1158-C14201	C14201	Emergency Medical Services (EMS) dispatch date and time	This refers to the date when Emergency Medical Services (EMS) transport (either by ground or air) leaves the station to pick up the patient for transport	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14005	C14005	Imaging brain death diagnosis result	Indicates brain death diagnosis result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1178-C14631	C14631	Antiplatelet agent in hospital indicator	Whether the participant/subject received antiplatelet agents during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13465	C13465	Stroke Adjudication Worksheet date	Date of hospital admission or outpatient visit when the stroke event was evaluated	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14259	C14259	Pediatric Stroke Classification (PSC) - sub type	Pediatric Stroke Classification (PSC) system (Wraige, 2005) subtype	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13848	C13848	Hydrocephalus present indicator	Indicates if hydrocephalus is present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2838-C13899	C13899	Imaging probe type text	The text describing the type of imaging probe	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1178-C18986	C18986	Extracranial venous thromboembolism other text	The free-text field related to 'Extracranial venous thromboembolism type', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13862	C13862	Imaging magnetic resonance based identification perfusion defect volume type	Indicates MR based identification of perfusion defect volume type	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13473	C13473	Stroke Adjudication Worksheet - not meet WHO definition indicator	The indicator of whether the event is not a stroke according to the WHO definition	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14269	C14269	Sophia signs symptoms presentation type	Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.