CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1203-C18886	C18886	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic other text	The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site' specifying other text. The anatomic location(s) of the hemorrhagic transformation during ischemic infarction	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1174-C13948	C13948	Imaging mean blood velocity measurement	Indicates mean velocity measurement (cm/sec) of blood	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14244	C14244	Subarachnoid hemorrhage etiology type	Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13830	C13830	Microbleed by location count	Indicates count of Microbleeds in each location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1153-C14145	C14145	Family history stroke youngest age value	If there is a family history of stroke, specify the youngest age an immediate family member (parent, sibling, child) suffered a stroke	Supplemental	Family History	False	Stroke	Stroke
F1158-C14203	C14203	Emergency Medical Services (EMS) dispatch type code	For EMS systems where there is use of a designated stroke dispatch code, this item would capture what code was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14007	C14007	Imaging Transcranial Doppler (TCD) findings result type	Indicates Transcranial Doppler (TCD) findings	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13798	C13798	Modified Scheltens scale frontal caps score	Indicates Modified Scheltens scale - Frontal caps score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14410	C14410	Intra-sinus intervention initiated date and time	Date (and time, if applicable and known) intra-sinus (IS) intervention (i.e., for cerebral venous thrombosis) was initiated at this hospital or ED	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13905	C13905	Imaging contrast agent method type	Indicates imaging contrast agent method of administration	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14622	C14622	Los Angeles Motor Scale (LAMS) - facial smile or grimace abnormal type	Type of abnormal facial smile or grimace observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14015	C14015	High intensity transient signal hits count	Numeric value counting the number of high intensity transient signals hits	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13881	C13881	Digital Subtraction Angiography (DSA) injection site anatomic site	The site of injection for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13806	C13806	Age-related white matter changes (ARWMC) scale - total score	The total score for age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13913	C13913	Imaging plaque motion result	Indicates plaque motion	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14028	C14028	Vasospasm present indicator	Indicates presence of vasospasm	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13942	C13942	Imaging vessel category	Indicates vessel category	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13894	C13894	Imaging vessel angiography overall assessment type	Indicates vessel angiography overall assessment	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13814	C13814	Intraparenchymal hematoma MRI sequence type	Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1165-C14428	C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13922	C13922	Imaging common carotid artery (CCA) externalization indicator	Indicates common carotid artery (CCA) externalization	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13762	C13762	Imaging infarcts one vascular territory indicator	Indicates acute infarct(s) are all in one vascular territory	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2838-C13950	C13950	Imaging spectrum asymmetry index result	Indicates spectrum asymmetry index result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13824	C13824	Spot sign maximum attenuation score	The maximum attenuation score for "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1165-C14540	C14540	Pulmonary artery wedge pressure measurement	Pulmonary artery wedge pressure (PAWP) or pulmonary capillary wedge pressure (PCWP) is the intravascular pressure as measured by a catheter wedged into the distal pulmonary artery. It is used to measure indirectly the mean left atrial pressure	Supplemental	Vital Signs	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.