CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2838-C18903	C18903	Vasomotor response (VMR) vessel anatomic other text	The free-text field related to 'Vasomotor response (VMR) vessel anatomic site' specifying other text. Indicates vasomotor response (VMR) vessel type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13957	C13957	High intensity transient signal hits intensity value	Indicates high intensity transient signal hits intensity value (dB)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1181-C14274	C14274	Smoking cessation treatment indicator	For patients who have smoked at least one cigarette within the past year (Joint Commission definition) or who vape, indicates whether the patient received counseling to stop smoking/vaping or smoking cessation advice during the hospitalization as documented in progress notes or physician orders at discharge or admissions	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1173-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13793	C13793	Modified Scheltens scale frontal score	Indicates Modified Scheltens scale - Frontal score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14410	C14410	Intra-sinus intervention initiated date and time	Date (and time, if applicable and known) intra-sinus (IS) intervention (i.e., for cerebral venous thrombosis) was initiated at this hospital or ED	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13900	C13900	Imaging probe frequency	Indicates imaging probe frequency (Hz)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14207	C14207	Pre-hospital stroke identification screen indicator	Whether a pre-hospital identification stroke screen was documented by EMS personnel. Pre-hospital stroke identification screens are defined as published validated screening algorithms or those required by state EMS agencies (e.g., LAPSS, CPSS, MASS, etc.)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14006	C14006	Imaging stenosis percentage value	Indicates stenosis percentage value	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13801	C13801	Age-related white matter changes (ARWMC) scale - frontal score	The frontal score related to age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13908	C13908	Imaging echo pattern result	Indicates echo pattern	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C18907	C18907	Emergency Medical Services (EMS) dispatch type other text	The free-text field related to 'Emergency Medical Services (EMS) dispatch type code' specifying other text. For EMS systems where there is use of a designated stroke dispatch code, this item would capture what code was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14014	C14014	Intracranial stenosis other criteria result	Other criteria for intracranial stenosis	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13884	C13884	Imaging vessel angiography arterial anatomic site	Indicates vessel imaging angiography arterial findings location	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13809	C13809	Van Swieetten scale posterior white matter result	Describes Van Swieetten Scale - Posterior white matter	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13916	C13916	Imaging color flow angle measurement	Indicates color flow angle (degrees)	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1172-C13867	C13867	Imaging magnetic resonance based identification penumbra volume measurement	Indicates MR based identification of penumbra volume for all the methods selected	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13474	C13474	Stroke Adjudication Worksheet - TIA indicator	The indicator whether this event a transient ischemic attack (TIA)	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C18910	C18910	Intraventricular hemorrhage presumed cause other text	The free-text field related to 'Intraventricular hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C18888	C18888	Imaging acquisition reason other text	The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14225	C14225	Trial of ORG 10172 in Acute Stroke Treatment (TOAST) - ischemic stroke sub type	Ischemic Stroke Subtype based on the Trial of ORG 10172 in Acute Stroke Treatment (TOAST) Classification System	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13875	C13875	Imaging perfusion computed tomography based identification perfusion defect value	Value of PCT based identification of perfusion defect abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13482	C13482	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology type	The type of etiology of the hemorrhage	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1182-C14290	C14290	Location post-acute stroke discharge type	Indicates the participant's/subject's location of acute hospital discharge for the index stroke/transient ischemic attack (TIA)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.