CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 476 - 500 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58722 Specimen collection position type

Indicate the position of the participant/subject during sample collection

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C58721 Lab specimen type other text

The free-text field related to 'Lab specimen type' specifying other text

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C58720 Collection time mortality status indicator

Indicate whether the participant/subject is living or deceased at the time of specimen collection

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58719 Tobacco not applicable last year indicator

Indicates if the participant/subject used no tobacco products within the past year

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C58718 Tobacco last consumed date and time

Date (and time, if applicable and known) the participant/subject last used tobacco

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58717 Alcoholic drink not applicable last year indicator

Indicates if the participant/subject consumed no alcohol within the past year

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C58714 Death WHO definition indicator

The indicator of whether the death is a stroke according to the WHO definition. World Health Organization definition = Rapidly developing clinical signs of focal, at times global, disturbance of cerebral function, lasting more than 24 hours or leading to death with no apparent cause other than that of vascular origin

 Supplemental Death False Stroke Stroke
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health

 Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health True Stroke Stroke
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

 Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health True Stroke Stroke
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core Demographics False Stroke Stroke
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core General Core False Stroke Stroke
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core Stroke Types and Subtypes False Stroke Stroke
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False Stroke Stroke
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core Demographics False Stroke Stroke
C58354 Other cancer type text

Text of type of other cancer(s) that the subject/participant has ever been diagnosed with

 Exploratory Medical History False Stroke Stroke
C58279 Residence current occupy duration text

Text field for indicating the duration for which the subject/participant has occupied his/her current residence

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C57923 Blood collection tube additive type

Type of additives used in blood collection tube

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58407 Blood collection tube volume value

Volume of blood collection tube

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C56123 Specimen centrifugation performed indicator

The indicator relating to whether centrifugation was performed on the specimen

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58426 Biomarker specimen collected aliquot number

The number of aliquots made for specimens collected from the participant/subject for biomarkers

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C55003 Specimen centrifugation revolutions per minute value

The value related to revoluntions per minute in a centrifuge

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C55004 Specimen centrifugation temperature value

The value related to temperature in a centrifuge

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C55005 Specimen centrifugation duration

The duration related to centrifugation

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C54990 Cocaine expose year prior unruptured intracranial aneurysm presentation indicator

Indicator of whether the subject/participant was exposed to cocaine in the year prior to clinical presentation of unruptured intracranial aneurysm (UIA)

 Supplemental Prior and Concomitant Medications False Stroke Stroke
Displaying 476 - 500 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.