CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1180-C58792	C58792	Carotid revascularization procedure type	Type of carotid revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58791	C58791	Bypass revascularization surgery type	Type of bypass/revascularization surgery received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58790	C58790	Intracranial revascularization procedure other text	The free-text field related to 'Intracranial revascularization procedure type' specifying other text. Type of intracranial revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58789	C58789	Intracranial revascularization procedure type	Type of intracranial revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58788	C58788	Thrombectomy middle cerebral artery segment anatomic site	Anatomic site of the segment(s) of the middle cerebral artery (MCA) where a thrombectomy was received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58787	C58787	Thrombectomy artery anatomic site	Artery anatomic site(s) where a thrombectomy was received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58786	C58786	Stroke surgical therapeutic procedure other text	The free-text field related to 'Stroke surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58785	C58785	Stroke neurosurgical procedure non vascular other text	The free-text field related to 'Stroke surgical or therapeutic procedure type' specifying other non-vascular neurosurgical procedure text. Type of non-vascular neurosurgical procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58784	C58784	Stroke surgical therapeutic procedure type	Type of surgical or therapeutic procedure received by the participant/subject while being treated in the hospital for the index stroke event	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1150-C58783	C58783	Race expanded paternal category	Category of race(s) or region(s) the participant/subject's father most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
F1150-C58782	C58782	Race expanded maternal category	Category of race(s) or region(s) the participant/subject's mother most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
F1150-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	Demographics	False	Stroke	Stroke
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Stroke	Stroke
F1162-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1150-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	Demographics	False	Stroke	Stroke
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Stroke	Stroke
F1167-C58757	C58757	Lab test unit type	Indicator of whether United States Customary Units (Standard) or International Standard of Units (SI) were used in the laboratory test results	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1167-C58755	C58755	Toxicology screen other text	The free-text field related to 'Toxicology Screen' specifying other text	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1169-C58754	C58754	Multiplex platform statistical methodology type	Indicate the statistical methodology used to address multiple hypothesis testing	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58753	C58753	Specimen analysis date and time	Date (and time if applicable and known) when the specimen was analyzed	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58752	C58752	Specimen expiration not applicable indicator	Indicate whether there is no expiration date for the specimen	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58751	C58751	Specimen expiration date	Date when the specimen will expire, if applicable	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58750	C58750	Blood collection tube additive type other text	The free-text field related to other blood collection tube additive type	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58749	C58749	Freezing method type other text	The free-text field related to freezing method type	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58748	C58748	Freezing method type	The method of freezing of the specimen	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.