CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C58893	C58893	Clinical stroke time based ischemic stroke laterality type	Indicate the laterality of the ischemic stroke	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1174-C58889	C58889	Imaging vessel angiography Tan collateral score	Indicates vessel angiography Tan collateral score	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1182-C58888	C58888	Follow-up care specialist other text	The free-text field related to 'Follow-up care specialist type' specifying other text. Type of specialist the participant/subject received follow-up care from	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58887	C58887	Follow-up care specialist type	Type of specialist the participant/subject received follow-up care from	Supplemental-Highly Recommended	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58884	C58884	Supportive medical equipment indicator	Indicates if the participant/ subject was provided with any supportive medical equipment	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58883	C58883	Adjunctive treatment drool surgical procedure injection specify text	The free-text field related to 'Adjunctive treatment type' specifying the type of surgical procedure or injections for drooling text. Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58882	C58882	Assistive device other text	The free-text field related to 'Assistive device type' specifying other text. Type for all assistive devices currently used by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C58881	C58881	Expanded Thrombolysis in Cerebral Infarction (eTICI) perfusion scale grade	Indicates Expanded Thrombolysis in Cerebral Infarction (eTICI) perfusion scale grade indicator	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1182-C58880	C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58879	C58879	Assistive device use indicator	Whether the participant/subject uses an assistive device (e.g., wheelchair)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58878	C58878	Therapy or rehabilitation duration	Duration in weeks of therapy or rehabilitation services the participant/subject received	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58877	C58877	Inpatient therapy or rehabilitation location type	Type of inpatient location where the participant subject received therapy or rehabilitation services	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58876	C58876	Therapy or rehabilitation session week frequency	Frequency of therapy or rehabilitation sessions (number of session per week) the participant/subject has been part of	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58875	C58875	Therapy or rehabilitation received status other text	The free-text field related to 'Therapy or rehabilitation received status' specifying other text. Status of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58874	C58874	Location post-acute stroke discharge other text	The free-text field related to 'Location post-acute stroke discharge type' specifying other text. Indicates the participant's/subject's current location after discharge from the acute hospital for the index stroke/transient ischemic attack (TIA)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1169-C58873	C58873	Blood collection method category	Indicate the method of blood collection	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1173-C58872	C58872	Intima media thickness (IMT) edge detection algorithm type	Indicates intima media thickness (IMT) edge detection algorithm type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58871	C58871	Imaging signal indicator	Indicates signal on the carotid ultrasound	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58870	C58870	Imaging plaque thickness unit of measure	The unit of measure for "Imaging plaque thickness measurement"	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58869	C58869	Imaging contrast agent name	The name of the imaging contrast agent used	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58868	C58868	Imaging transient ischemic attack type	Indicates type of transient ischemic attack	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C58868	C58868	Imaging transient ischemic attack type	Indicates type of transient ischemic attack	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1173-C58867	C58867	Imaging chronic stroke type	Indicates chronic stroke type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C58867	C58867	Imaging chronic stroke type	Indicates chronic stroke type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1181-C58866	C58866	Mental resilience stress management tool adopt intervention other text	The free-text field related to 'Mental resilience stress management tool adopt intervention type' specifying other text. If the participant/subject received counseling to adopt tools for mental resilience and stress management, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.