CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Sub Domain Name

CRF Name

Displaying 26 - 50 of 1886

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C14182	Stroke symptom duration range	The range of approximate stroke symptom duration. This is especially important if the diagnosis is Transient Ischemic Attack (TIA)	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C14183	Stroke symptom timing in relation to stroke onset category	This element captures the time course of a symptom associated with the index stroke. The element is intended to be recorded for each symptom separately	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C14187	Stroke symptom pediatric-specific type	The pediatric-specific symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C14188	Neonatal level of consciousness type	Type of abnormal level of consciousness of the neonate	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C14189	Neonatal encephalopathy level type	Level of neonatal encephalopathy according to the Sarnat Staging	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C14178	Stroke symptom type	The symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C18905	Stroke symptom other text	The free-text field related to 'Stroke symptom type' specifying other text. The symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C14179	Stroke symptom experienced indicator	Indicates whether or not the symptom was experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C18906	Stroke symptom pediatric-specific other text	The free-text field related to 'Stroke symptom pediatric-specific type' specifying other text	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C59006	Date time unknown status	Status indicating that the date/time of an event is unknown	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C59000	Medication L-asparaginase current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken L-asparaginase	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C58999	Medication cold preparation current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken cold preparations/ medications	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C58998	Medication ADHD ADD current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken Attention Deficit Hyperactivity Disorder (ADHD) or Attention Deficit Disorder (ADD) medications	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C58997	Medication other past week other text	The free-text field related to 'Medication other past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58996	Medication other past week type	Type of other medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58995	Medication other current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken other medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58994	Medication implant estrogen contraceptive current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken implanted, estrogen-containing contraceptives	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58993	Medication oral contraceptive current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken oral contraceptives	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58992	Medication hormone replacement therapy route other text	The free-text field related to 'Medication hormone replacement therapy route type', specifying text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58991	Medication hormone replacement therapy route type	Type of administration route for the hormone replacement therapy medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58990	Medication hormone replacement past week other text	The free-text field related to 'Medication hormone replacement past week type', specifying text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58989	Medication hormone replacement past week type	Type of hormone replacement medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58988	Medication hormone replacement current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken hormonal replacement medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58987	Medication other antihypertensive past week text	The free-text field related to 'Medication other antihypertensive past week type', specifying text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58986	Medication other antihypertensive past week type	Type of other antihypertensive medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke

Displaying 26 - 50 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.