CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C02487	Vascular dissection findings type	Additional associated findings about the vascular dissection	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C02486	Traumatic aneurysm volume measurement	Measured volume of the traumatic aneurysm in mm (calculated from length of involved vessel)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C02485	Traumatic aneurysm anatomic site	Anatomic site of the traumatic aneurysm	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C02474	Subdural hematoma acute volume measurement	Measured volume in cubic centimeters of the acute subdural hematoma (calculated from length, width, maximal thickness)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C02484	Traumatic aneurysm status	Status of false aneurysmal outpouching of an artery due to mechanical disruption of the entire vessel wall with extravasation of blood into a confined soft-tissue space	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Stroke	Stroke
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Imaging Acquisition	False	Stroke	Stroke
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental-Highly Recommended	Perfusion and Penumbral Imaging	False	Stroke	Stroke
C02483	Traumatic aneurysm findings type	Further describes the traumatic aneurysm	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C02493	Venous sinus injury morphology type	Morphology of the venous sinus injury	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C02492	Venous sinus injury anatomic site	Anatomic site of the venous sinus injury	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C02446	Intraventricular hemorrhage status	Indicator of acute-appearing blood within the ventricles	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C02469	Subarachnoid hemorrhage indicator	Indicator of macroscopic blood located between the brain surface and the arachnoid membrane. On CT and MR, the blood in this location will follow the contour of the sulci and cisterns. Acute SAH is hyperdense on CT and hyperintense on FLAIR MR imaging	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C02455	Midline shift supratentorial indicator	Displacement of the supratentorial midline structures, particularly the septum pellucidum, 2 mm or more due to mass effect of a focal traumatic lesion or brain swelling	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C02488	Vascular dissection extent type	Extent of the vascular dissection	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
C54898	Surgery procedure minute duration	Duration in minutes of surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C58427	Biomarker specimen collected aliquot volume value	The volume per aliquot for pecimens collected from the participant/subject for biomarkers	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C55347	Microdialysis cerebral probe membrane length measurement	The field to specify the membrane length for probes used for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C55341	Specimen selective inhibitor used type	The type of selective inhibitors that were used on the sample	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.