CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1179-C14401	C14401	Intra-arterial (IA) procedure initiated indicator	Indicates whether an Intra-arterial (IA) procedure was initiated for participant/ subject at this hospital	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1158-C14202	C14202	Emergency Medical Services (EMS) dispatch priority type	For EMS systems where there is prioritizing of calls, this item would capture what level of prioritization was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14006	C14006	Imaging stenosis percentage value	Indicates stenosis percentage value	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13797	C13797	Modified Scheltens scale occipital caps score	Indicates Modified Scheltens scale - Occipital caps score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14409	C14409	Intra-sinus intervention groin puncture date and time	Date (and time, if applicable and known) of groin puncture on the participant/ subject for intra-sinus intervention	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13904	C13904	Imaging interpretation offsite media type	Indicates imaging offsite media type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14211	C14211	Los Angeles Motor Scale (LAMS) - arm strength result	Assess the arm strength using the Los Angeles Motor Scale (LAMS). Check all that apply	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1155-C14151	C14151	Pregnancy medical terminations count	Number of medical terminations (abortions)	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1162-C14260	C14260	Sebire-International Pediatric Stroke Study (IPSS) - sub type	The subtype as related to the Sebire/International Pediatric Stroke Study (IPSS) classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13849	C13849	Bicaudate index score	Indicates Bicaudate index	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2838-C13900	C13900	Imaging probe frequency	Indicates imaging probe frequency (Hz)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1178-C18987	C18987	Extracranial venous thromboembolism prophylaxis other text	The free-text field related to 'Extracranial venous thromboembolism prophylaxis type', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13863	C13863	Imaging magnetic resonance based identification perfusion defect threshold type	Indicates MR based identification of perfusion defect threshold type used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13474	C13474	Stroke Adjudication Worksheet - TIA indicator	The indicator whether this event a transient ischemic attack (TIA)	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14270	C14270	Sophia stroke vessels affected type	Vessel(s) affected by the stroke event. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C14050	C14050	Hijdra scale total score	Indicates Hijdra scale - total Score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14220	C14220	Clinical stroke tissue-based definition indicator	Indicates whether the patient suffered a clinical stroke according to the following, "tissue-based" definition: Symptomatic stroke is a sudden focal neurological deficit, of any duration, due to focal brain, spinal cord, or retinal infarction or hemorrhage. Infarction or hemorrhage may be demonstrated either 1) directly by imaging/laboratory/pathologic examination in patients with symptom duration less than 24 hours, or 2) inferred by symptoms lasting >= 24 hours (or fatal within 24 hours) that cannot be attributed to another cause	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13871	C13871	Imaging perfusion computed tomography based identification core volume measurement	Indicates perfusion CT (PCT) based identification of core volume for all the methods used	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13482	C13482	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology type	The type of etiology of the hemorrhage	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14231	C14231	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - small vessel grade	The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of small vessel disease (S)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1203-C18886	C18886	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic other text	The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site' specifying other text. The anatomic location(s) of the hemorrhagic transformation during ischemic infarction	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1174-C13948	C13948	Imaging mean blood velocity measurement	Indicates mean velocity measurement (cm/sec) of blood	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14244	C14244	Subarachnoid hemorrhage etiology type	Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13830	C13830	Microbleed by location count	Indicates count of Microbleeds in each location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1153-C14145	C14145	Family history stroke youngest age value	If there is a family history of stroke, specify the youngest age an immediate family member (parent, sibling, child) suffered a stroke	Supplemental	Family History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.