CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1172-C13878	C13878	Imaging perfusion computed tomography based identification penumbra volume measurement	Indicates PCT based identification of penumbra volume for all the methods selected	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C14053	C14053	Stroke Adjudication Worksheet - neuroimaging single CT stroke finding indicator	Whether the single brain CT scan was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14238	C14238	Intraventricular hemorrhage presumed cause type	Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13829	C13829	Microbleed anatomic site	Describes microbleed location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1159-C14196	C14196	Hospital location patient first received care type	Area of the hospital the patient first evaluated	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F2834-C14281	C14281	Comfort care measure type	Describes the types of comfort care the participant/ subject received	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1169-C55344	C55344	Microdialysis cerebral probe location anatomic site	Free-text field to describe the location of the probe for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C14251	C14251	Subarachnoid hemorrhage basal part score	SAH Volume Scale (Hijdra) - Basal part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13837	C13837	Modified Fisher scale grade	Indicates modified Fisher Scale grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1158-C14207	C14207	Pre-hospital stroke identification screen indicator	Whether a pre-hospital identification stroke screen was documented by EMS personnel. Pre-hospital stroke identification screens are defined as published validated screening algorithms or those required by state EMS agencies (e.g., LAPSS, CPSS, MASS, etc.)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1178-C14631	C14631	Antiplatelet agent in hospital indicator	Whether the participant/subject received antiplatelet agents during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1162-C14259	C14259	Pediatric Stroke Classification (PSC) - sub type	Pediatric Stroke Classification (PSC) system (Wraige, 2005) subtype	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13848	C13848	Hydrocephalus present indicator	Indicates if hydrocephalus is present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1174-C13880	C13880	Digital Subtraction Angiography (DSA) site of access anatomic site	The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13805	C13805	Age-related white matter changes (ARWMC) scale - basal ganglia score	The basal ganglia score related to age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13912	C13912	Imaging plaque composition result	Indicates plaque composition	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14021	C14021	Sickle cell disease blood flow velocity measurement	The velocity measurement blood flow relative to sickle cell disease	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13902	C13902	Imaging acute stroke study type	Indicates imaging acute stroke study type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13893	C13893	Imaging vessel angiography venous findings type	Indicates vessel angiography venous findings type	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13813	C13813	Intracerebral hemorrhage planimetric volume measurement	Indicates ICH volume (planimetric) (CC)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13921	C13921	Imaging other carotid ultrasound result	Indicates other carotid ultrasound findings	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14033	C14033	Vasospasm vessel anatomic site	Indicates vasospasm vessel(s)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2838-C13945	C13945	Imaging spectrum depth measurement	Indicates spectrum depth measurement (mm)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke

Displaying 226 - 250 of 1547

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.