CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2834-C14279	C14279	Comfort care indicator	Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1164-C13524	C13524	Carotid bruit indicator	Indicator of whether the participant/subject has a carotid bruit upon examination	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1158-C14200	C14200	Emergency Medical Services (EMS) call received date and time	Date and time first call was received by the Emergency Medical Services (EMS) dispatcher OR date and time of EMS vehicle dispatch as recorded on the EMS trip sheet or other similar documentation	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C13961	C13961	High intensity transient signal hits present indicator	Indicates presence of high intensity transient signals hits	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1181-C14277	C14277	Dietary recommendation indicator	Indicates if dietary recommendations were made at discharge. Examples of possible diets the patient may be put on include the Therapeutic Lifestyle Changes (TLC) Diet (a low saturated fat, low cholesterol diet) and an antihypertensive diet, such as the Dietary Approaches to Stop Hypertension (DASH) diet	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1171-C13795	C13795	Modified Scheltens scale occipital score	Indicates modified Scheltens scale - occipital score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C58579	C58579	Investigational or experimental protocol for thrombolysis text	Free-text field to specify what type of investigational thrombolytic protocol was used during provision of care	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13902	C13902	Imaging acute stroke study type	Indicates imaging acute stroke study type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14209	C14209	Los Angeles Motor Scale (LAMS) - facial smile or grimace result	Assess the facial smile/ grimace using the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14008	C14008	Imaging window quality category	Indicates window quality category	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13803	C13803	Age-related white matter changes (ARWMC) scale - temporal score	The temporal score for age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13910	C13910	Imaging plaque severity grade	Indicates plaque severity grade	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14016	C14016	High intensity transient signal hits start time	Indicates high intensity transient signal hits start time	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13900	C13900	Imaging probe frequency	Indicates imaging probe frequency (Hz)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13890	C13890	Qureshi angiographic occlusions category	The score based on scheme that categorizes patients with ischemic stroke based on findings observed on initial angiography (the Qureshi angiographic occlusions scale score)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13811	C13811	Acute hematoma present indicator	Indicates presence of acute hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13919	C13919	Imaging percent stenosis criterion type	The criteria used to find indicate stenosis	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C14627	C14627	Stroke initial residence or discharge destination type	Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay	Supplemental-Highly Recommended	Hospital Discharge	False	Stroke	Stroke
F2838-C14029	C14029	Vasospasm posterior ratio result	Indicates vasospasm posterior ratio result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1182-C14284	C14284	Resource Utilization Group Version IV (RUG IV) - alpha-numeric code	Indicates the Resource Utilization Group Version IV (RUG IV). Medicare pays skilled nursing facilities (SNFs) under a Prospective Payment System (PPS). PPS payments are per diem rates based on the patient's condition as determined by classification into a specific Resource Utilization Group (RUG). This classification is done by the use of a clinical assessment tool, the Minimum Data Set (MDS) and is required to be performed periodically according to an established schedule for purposes of Medicare payment. Each MDS represents the patient's clinical status based on an assessment reference date and established look back periods for the covered days associated with that MDS	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F2838-C13943	C13943	Imaging B-mode result	Indicates B mode	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13821	C13821	Spot sign positive indicator	The positive indicator for computed tomogram angiography (CTA) 'spot sign' which describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1165-C14537	C14537	Central venous pressure (CVP) measurement	A measurement of the pressure of blood in the central venous system, abbreviated as CVP	Supplemental	Vital Signs	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.