CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13516 Hand strength findings result

Assess hand strength/ motor power on the affected side using the Scandinavian Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C14056 Imaging depth measurement

The depth measurement (mm) of imaging

Supplemental Vessel Imaging Transcranial Stroke Stroke
C14011 Intracranial stenosis present indicator

Indicates presence of intracranial stenosis

Exploratory Aneurysm Location and Dimensions Stroke Stroke
C13953 Consensus on Grading Intracranial Flow Obstruction (COGIF) - follow-up indicator

Indicates the consensus on grading intracranial flow obstruction (COGIF) follow-up

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13947 Imaging peak velocity measurement

Indicates peak velocity measurement (cm/sec)

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C14625 Hospital arrival date and time

Date (and time, if applicable and known) the participant/subject arrived at the hospital

Supplemental-Highly Recommended Hospital Arrival/Admission Stroke Stroke
C14406 Intra-arterial (IA) catheter-based reperfusion other hospital indicator

Indicates whether intra-arterial (IA) catheter-based reperfusion was initiated for the participant/subject at an outside hospital

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C14202 Emergency Medical Services (EMS) dispatch priority type

For EMS systems where there is prioritizing of calls, this item would capture what level of prioritization was assigned to the transport at dispatch

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C14001 Extracranial stenosis type

Indicates extracranial stenosis type

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Supplemental-Highly Recommended Modified Rankin Scale (mRS) Stroke Stroke
C13797 Modified Scheltens scale occipital caps score

Indicates Modified Scheltens scale - Occipital caps score

Supplemental Parenchymal Imaging Stroke Stroke
C14399 IV tPA not started reason

If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C14632 Antiplatelet agent in hospital type

Type(s) of antiplatelet agents received during the acute hospital stay

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C13750 Imaging study ID number

Unique identification number assigned to the study or assessment session

Supplemental-Highly Recommended Perfusion and Penumbral Imaging Stroke Stroke
C13190 Walking time duration

Time in seconds to complete the central 4 meters of a 6 meter line at a comfortable walking pace

Supplemental-Highly Recommended Walking Speed Stroke Stroke
C14260 Sebire-International Pediatric Stroke Study (IPSS) - sub type

The subtype as related to the Sebire/International Pediatric Stroke Study (IPSS) classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C13849 Bicaudate index score

Indicates Bicaudate index

Supplemental Parenchymal Imaging Stroke Stroke
C18987 Extracranial venous thromboembolism prophylaxis other text

The free-text field related to 'Extracranial venous thromboembolism prophylaxis type', specifying other text

Supplemental Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C13863 Imaging magnetic resonance based identification perfusion defect threshold type

Indicates MR based identification of perfusion defect threshold type used to delineate abnormality

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13470 Stroke Adjudication Worksheet - neuroimaging type

Type of neuro-imaging done for the stroke event

Supplemental Stroke Adjudication Form Stroke Stroke
C14270 Sophia stroke vessels affected type

Vessel(s) affected by the stroke event. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C14050 Hijdra scale total score

Indicates Hijdra scale - total Score

Supplemental Parenchymal Imaging Stroke Stroke
C14220 Clinical stroke tissue-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "tissue-based" definition: Symptomatic stroke is a sudden focal neurological deficit, of any duration, due to focal brain, spinal cord, or retinal infarction or hemorrhage. Infarction or hemorrhage may be demonstrated either 1) directly by imaging/laboratory/pathologic examination in patients with symptom duration less than 24 hours, or 2) inferred by symptoms lasting >= 24 hours (or fatal within 24 hours) that cannot be attributed to another cause

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C13871 Imaging perfusion computed tomography based identification core volume measurement

Indicates perfusion CT (PCT) based identification of core volume for all the methods used

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13478 Stroke Adjudication Worksheet - stroke TIA other symptoms type

The type of other identified cause(s) of ischemic stroke

Supplemental Stroke Adjudication Form Stroke Stroke
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.