CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1179-C14411	C14411	Investigational or experimental protocol for thrombolysis indicator	Whether medical records suggest some kind of investigational thrombolytic protocol was used during provision of care	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13901	C13901	Imaging patient type	Indicates imaging patient type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14007	C14007	Imaging Transcranial Doppler (TCD) findings result type	Indicates Transcranial Doppler (TCD) findings	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13802	C13802	Age-related white matter changes (ARWMC) scale - parieto-occipital score	The parieto-occipital score age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13909	C13909	Imaging plaque surface type	Indicates plaque surface type	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14015	C14015	High intensity transient signal hits count	Numeric value counting the number of high intensity transient signals hits	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13899	C13899	Imaging probe type text	The text describing the type of imaging probe	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13885	C13885	Imaging vessel angiography arterial result	Indicates vessel imaging angiography arterial findings	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13810	C13810	Imaging computed tomography leukoariaiosis volumetric measurement	Indicates Leukoaraiosis (CT) -Volumetric measure (cc)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1159-C14196	C14196	Hospital location patient first received care type	Area of the hospital the patient first evaluated	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1172-C13868	C13868	Imaging perfusion computed tomography based identification core threshold type	Indicates perfusion CT (PCT) based identification of core threshold used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13475	C13475	Stroke Adjudication Worksheet - stroke TIA sub type	The type of stroke or transient ischemic attack (TIA) subtype	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C18911	C18911	Subarachnoid hemorrhage etiology other text	The free-text field related to 'Subarachnoid hemorrhage etiology type' specifying other text. Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C18889	C18889	Intraparenchymal hematoma MRI sequence other text	The free-text field related to 'Intraparenchymal hematoma MRI sequence type' specifying other text. Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14226	C14226	Stroke causative classification standard sub type	Ischemic Stroke Subtype based on The Causative Classification System's - standard causative subtypes	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1158-C14207	C14207	Pre-hospital stroke identification screen indicator	Whether a pre-hospital identification stroke screen was documented by EMS personnel. Pre-hospital stroke identification screens are defined as published validated screening algorithms or those required by state EMS agencies (e.g., LAPSS, CPSS, MASS, etc.)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1172-C13876	C13876	Imaging perfusion computed tomography based identification perfusion defect volume measurement	Indicates PCT based identification of perfusion defect volume	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13483	C13483	Stroke Adjudication Worksheet - hospitalized indicator	Is this case a hospitalization for chest pain, heart failure, acute MI or coronary revascularization?	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14236	C14236	Oxfordshire Community Stroke Project (OCSP) - subtype category	Oxfordshire Community Stroke Project (OCSP) Subtype Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2834-C14279	C14279	Comfort care indicator	Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1158-C18907	C18907	Emergency Medical Services (EMS) dispatch type other text	The free-text field related to 'Emergency Medical Services (EMS) dispatch type code' specifying other text. For EMS systems where there is use of a designated stroke dispatch code, this item would capture what code was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1203-C18887	C18887	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology other text	The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology type' specifying other text. The type of etiology of the hemorrhage	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14249	C14249	Subarachnoid hemorrhage interhemispheric fissure score	Subarachnoid hemorrhage column scale (Hijdra) for the interhemispheric fissure score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13835	C13835	Graeb intraventricular hemorrhage (IVH) scale - total score	Indicates Graeb IVH Scale - total Score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.