CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13928 Intima media thickness (IMT) electronic caliper indicator

Indicates intima media thickness (IMT) electronic caliper use

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C14190 Stroke symptoms discover location type

Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered

Supplemental Hospital Arrival/Admission Stroke Stroke
C13769 Imaging planimetric volume value

Indicates acute lesion volume

Supplemental Parenchymal Imaging Stroke Stroke
C13878 Imaging perfusion computed tomography based identification penumbra volume measurement

Indicates PCT based identification of penumbra volume for all the methods selected

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C14053 Stroke Adjudication Worksheet - neuroimaging single CT stroke finding indicator

Whether the single brain CT scan was positive for this stroke event

Supplemental Stroke Adjudication Form Stroke Stroke
C14238 Intraventricular hemorrhage presumed cause type

Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed

Supplemental Stroke Types and Subtypes Stroke Stroke
C13829 Microbleed anatomic site

Describes microbleed location

Supplemental Parenchymal Imaging Stroke Stroke
C14281 Comfort care measure type

Describes the types of comfort care the participant/ subject received

Supplemental Palliative/Comfort Care and End of Life Issues Stroke Stroke
C55344 Microdialysis cerebral probe location anatomic site

Free-text field to describe the location of the probe for cerebral microdialysis specimens

Exploratory Biospecimen Collection and Processing Stroke Stroke
C14251 Subarachnoid hemorrhage basal part score

SAH Volume Scale (Hijdra) - Basal part left score

Supplemental Stroke Types and Subtypes Stroke Stroke
C13837 Modified Fisher scale grade

Indicates modified Fisher Scale grade

Supplemental Parenchymal Imaging Stroke Stroke
C14631 Antiplatelet agent in hospital indicator

Whether the participant/subject received antiplatelet agents during the acute hospital stay

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C13245 National Institutes of Health Stroke Scale (NIHSS) - severity total score

The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C14259 Pediatric Stroke Classification (PSC) - sub type

Pediatric Stroke Classification (PSC) system (Wraige, 2005) subtype

Supplemental Stroke Types and Subtypes Stroke Stroke
C13848 Hydrocephalus present indicator

Indicates if hydrocephalus is present

Supplemental Parenchymal Imaging Stroke Stroke
C18986 Extracranial venous thromboembolism other text

The free-text field related to 'Extracranial venous thromboembolism type', specifying other text

Supplemental Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C13862 Imaging magnetic resonance based identification perfusion defect volume type

Indicates MR based identification of perfusion defect volume type

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13469 Stroke Adjudication Worksheet - neuroimaging indicator

The indicator for whether neuro-imaging done for this stroke event

Supplemental Stroke Adjudication Form Stroke Stroke
C14269 Sophia signs symptoms presentation type

Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C14049 Imaging lesion absolute threshold amount text

Indicates acute lesion threshold absolute amount

Supplemental Parenchymal Imaging Stroke Stroke
C14219 Clinical stroke time-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C13870 Imaging perfusion computed tomography based identification core method type

Indicates perfusion CT (PCT) based identification of core method used for penumbra calculation

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13477 Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms type

The type of symptoms/conditions that were present and relevant for cardioembolic source

Supplemental Stroke Adjudication Form Stroke Stroke
C19077 Sophia imaging stroke composite diagnosis method other text

The free-text field related to 'Imaging stroke composite diagnosis method type' specifying other text. Imaging method at detection. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C14230 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - atherothrombotic grade

The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A)

Supplemental Stroke Types and Subtypes Stroke Stroke
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.