CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 151 - 175 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C14210	Los Angeles Motor Scale (LAMS) - grip result	Assess the grip using the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C14629	Anticoagulant agent in hospital indicator	Whether the participant/subject received anticoagulant agents during the acute hospital stay, not including venous prophylaxis dose Unfractionated heparin, LMW heparin, etc	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
C14032	Vasospasm severity grade	Indicates severity of vasospasm	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
C13944	Imaging color flow indicator	Indicates color flow	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C13803	Age-related white matter changes (ARWMC) scale - temporal score	The temporal score for age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13151	Stroke Specific Quality of Life Scale (SS-QOL) - walking mobility scale	The scale for having trouble walking based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C13192	Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke status	Were you ever told by a physician that you had a stroke?	Supplemental	Questionnaire for Verifying Stroke-Free Status (QVSFS)	True	Stroke	Stroke
C14049	Imaging lesion absolute threshold amount text	Indicates acute lesion threshold absolute amount	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13890	Qureshi angiographic occlusions category	The score based on scheme that categorizes patients with ischemic stroke based on findings observed on initial angiography (the Qureshi angiographic occlusions scale score)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C14219	Clinical stroke time-based definition indicator	Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
C13811	Acute hematoma present indicator	Indicates presence of acute hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14281	Comfort care measure type	Describes the types of comfort care the participant/ subject received	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
C13159	Stroke Specific Quality of Life Scale (SS-QOL) - withdrawn mood scale	The scale for felt withdrawn from other people based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C13200	Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke result	Whether patient is stroke free (all QVSFS items negative) or not stroke free (at least 1 QVSFS item positive)	Supplemental	Questionnaire for Verifying Stroke-Free Status (QVSFS)	True	Stroke	Stroke
C14289	Adjunctive treatment type	Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C14230	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - atherothrombotic grade	The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C13821	Spot sign positive indicator	The positive indicator for computed tomogram angiography (CTA) 'spot sign' which describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14537	Central venous pressure (CVP) measurement	A measurement of the pressure of blood in the central venous system, abbreviated as CVP	Supplemental	Vital Signs	False	Stroke	Stroke
C13167	Stroke Specific Quality of Life Scale (SS-QOL) - dressing self care scale	The scale for needing help for getting dressed on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C14238	Intraventricular hemorrhage presumed cause type	Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C13829	Microbleed anatomic site	Describes microbleed location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14198	Hospital presumptive admission diagnosis type	The presumptive diagnosis tries to identify presumptive diagnosis at the time of hospital admission	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
C13175	Stroke Specific Quality of Life Scale (SS-QOL) - concentration thinking question scale	The scale for being hard to concentrate based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke

Displaying 151 - 175 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.