CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1173-C13906	C13906	Imaging B-mode artery name	Indicates B-mode artery name	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14623	C14623	Los Angeles Motor Scale (LAMS) - grip abnormal type	Type of abnormal grip observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14012	C14012	Intracranial stenosis peak systolic velocity (PSV) criterion result	Indicates intracranial stenosis peak systolic velocity (PSV) criterion	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13807	C13807	Imaging magnetic resonance imaging leukoariaiosis volumetric measurement	Indicates MRI volumetric measure (cc)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1172-C13865	C13865	Imaging magnetic resonance based identification perfusion defect volume measurement	Indicates MR based identification of perfusion defect volume	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13472	C13472	Stroke Adjudication Worksheet - WHO definition indicator	The indicator of whether the event is a stroke according to the WHO definition. World Health Organization definition = Rapidly developing clinical signs of focal, at times global, disturbance of cerebral function, lasting more than 24 hours or leading to death with no apparent cause other than that of vascular origin	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14626	C14626	Sophia delivery mode type	Mother's mode of delivery of the neonate. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14222	C14222	Clinical stroke tissue-based definition type	Indicates the type of clinical stroke suffered by the adult patient, using tissue status to distinguish between ischemic stroke and TIA	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13873	C13873	Imaging perfusion computed tomography based identification perfusion defect volume type	Indicates CT (PCT) based identification of perfusion defect volume type	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13480	C13480	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation indicator	The indicator of ischemic infarction with hemorrhagic transformation being present	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1182-C14288	C14288	Adjunctive treatment indicator	Indicates if any adjunctive treatments were or are being performed on the participant/subject to preserve or increase independence	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1162-C14233	C14233	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - other grade	The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of other cause (O)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1203-C18884	C18884	Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms other text	The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms type' specifying other text. The type of symptoms/conditions that were present and relevant for cardioembolic source	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14246	C14246	Fisher scale	Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13832	C13832	Graeb intraventricular hemorrhage (IVH) scale - left lateral ventricle score	Indicates Graeb IVH Scale - Left lateral ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2834-C18912	C18912	Comfort care measure other text	The free-text field related to 'Comfort care measure type' specifying other text. Describes the types of comfort care the participant/ subject received	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1162-C14254	C14254	Subarachnoid hemorrhage quadrigeminal cistern score	SAH Volume Scale (Hijdra) - Quadrigeminal cistern score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13840	C13840	Subdural hematoma present indicator	Indicates presence of Subdural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C14634	C14634	Extracranial venous thromboembolism type	Type(s) of extracranial venous thromboembolism (VTE) diagnosed with	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13857	C13857	Imaging magnetic resonance based identification core volume type	Indicates magnetic resonance based identification of core volume type	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1199-C13231	C13231	King's Outcome Scale for Childhood Head Injury (KOSCHI) - prognosis category	The category that best describes the child's prognosis by the King's Outcome Scale for Childhood Head Injury (KOSCHI), which is a specific pediatric adaptation of the original adult Glasgow Outcome Scale (GOS)	Supplemental	King's Outcome Scale for Childhood Head Injury (KOSCHI)	False	Stroke	Stroke
F1162-C14263	C14263	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - primary chronic sub type	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: chronic - patients with an initial vascular diagnosis (at 0-1 month) for "Primary Classification: Acute" are given a follow-up diagnosis based on studies obtained at or after 3-6 months that will capture any progression, stability or regression of the arteriopathy	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13851	C13851	Arteriovenous malformation anatomic site	Specifies Location of arteriovenous malformation	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C13831	C13831	Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score	Indicates Graeb IVH Scale - Right lateral ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13808	C13808	Van Swieetten scale anterior white matter result	Describes Van Swieetten Scale - Anterior white matter	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.