CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 151 - 175 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C14210 Los Angeles Motor Scale (LAMS) - grip result

Assess the grip using the Los Angeles Motor Scale (LAMS)

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C14629 Anticoagulant agent in hospital indicator

Whether the participant/subject received anticoagulant agents during the acute hospital stay, not including venous prophylaxis dose Unfractionated heparin, LMW heparin, etc

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C14032 Vasospasm severity grade

Indicates severity of vasospasm

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13245 National Institutes of Health Stroke Scale (NIHSS) - severity total score

The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C13944 Imaging color flow indicator

Indicates color flow

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13751 Imaging acquisition reason

Describes why the imaging study was performed

Supplemental Vessel Imaging Angiography Stroke Stroke
C13803 Age-related white matter changes (ARWMC) scale - temporal score

The temporal score for age-related white matter changes (ARWMC) scale

Supplemental Parenchymal Imaging Stroke Stroke
C13151 Stroke Specific Quality of Life Scale (SS-QOL) - walking mobility scale

The scale for having trouble walking based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Stroke Stroke
C13192 Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke status

Were you ever told by a physician that you had a stroke?

Supplemental Questionnaire for Verifying Stroke-Free Status (QVSFS) Stroke Stroke
C14049 Imaging lesion absolute threshold amount text

Indicates acute lesion threshold absolute amount

Supplemental Parenchymal Imaging Stroke Stroke
C13890 Qureshi angiographic occlusions category

The score based on scheme that categorizes patients with ischemic stroke based on findings observed on initial angiography (the Qureshi angiographic occlusions scale score)

Supplemental Vessel Imaging Angiography Stroke Stroke
C14219 Clinical stroke time-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C13811 Acute hematoma present indicator

Indicates presence of acute hematoma

Supplemental Parenchymal Imaging Stroke Stroke
C14281 Comfort care measure type

Describes the types of comfort care the participant/ subject received

Supplemental Palliative/Comfort Care and End of Life Issues Stroke Stroke
C13159 Stroke Specific Quality of Life Scale (SS-QOL) - withdrawn mood scale

The scale for felt withdrawn from other people based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Stroke Stroke
C13200 Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke result

Whether patient is stroke free (all QVSFS items negative) or not stroke free (at least 1 QVSFS item positive)

Supplemental Questionnaire for Verifying Stroke-Free Status (QVSFS) Stroke Stroke
C14289 Adjunctive treatment type

Describe the type(s) of adjunctive treatments

Supplemental Rehabilitation Therapies Stroke Stroke
C14230 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - atherothrombotic grade

The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A)

Supplemental Stroke Types and Subtypes Stroke Stroke
C13821 Spot sign positive indicator

The positive indicator for computed tomogram angiography (CTA) 'spot sign' which describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients

Supplemental Parenchymal Imaging Stroke Stroke
C14537 Central venous pressure (CVP) measurement

A measurement of the pressure of blood in the central venous system, abbreviated as CVP

Supplemental Vital Signs Stroke Stroke
C13167 Stroke Specific Quality of Life Scale (SS-QOL) - dressing self care scale

The scale for needing help for getting dressed on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Stroke Stroke
C14238 Intraventricular hemorrhage presumed cause type

Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed

Supplemental Stroke Types and Subtypes Stroke Stroke
C13829 Microbleed anatomic site

Describes microbleed location

Supplemental Parenchymal Imaging Stroke Stroke
C14198 Hospital presumptive admission diagnosis type

The presumptive diagnosis tries to identify presumptive diagnosis at the time of hospital admission

Supplemental Hospital Arrival/Admission Stroke Stroke
C13175 Stroke Specific Quality of Life Scale (SS-QOL) - concentration thinking question scale

The scale for being hard to concentrate based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Stroke Stroke
Displaying 151 - 175 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.