CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1401 - 1425 of 1542
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58913 Perinatal arterial ischemic stroke type

Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C58914 Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy primary diagnosis subtype classification status

The status of arteriopathy primary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system

Supplemental Stroke Types and Subtypes Stroke Stroke
C58915 Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy secondary diagnosis subtype classification status

The status of arteriopathy secondary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system

Supplemental Stroke Types and Subtypes Stroke Stroke
C58916 Vascular effects of Infection in Pediatric Stroke (VIPS) - focal cerebral arteriopathy type

Type of focal cerebral arteriopathy (FCA), as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system

Supplemental Stroke Types and Subtypes Stroke Stroke
C58917 Focal Cerebral Arteriopathy Severity Score (FCASS) - supraclinoid internal carotid artery score scale

The scale which represents the severity of focal cerebral arteriopathy in the supraclinoid internal carotid artery (ICA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58918 Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 1 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58919 Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 1 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the A1 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58920 Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 2 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the M2 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58921 Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 2 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58922 Focal Cerebral Arteriopathy Severity Score (FCASS) - baseline score

Score related to the baseline sum of the five individual arterial segment scores (without weighting), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58923 Focal Cerebral Arteriopathy Severity Score (FCASS) - delta point score code

The score code which represents the change in severity of focal cerebral arteriopathy at the time of follow-up score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58924 Focal Cerebral Arteriopathy Severity Score (FCASS) - follow up sum score

Score related to the follow-up sum of the five individual arterial segment scores (without weighting) and the delta point (if applicable), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58925 Sophia chance findings during routine imaging other text

The free-text field related to 'Sophia signs and symptoms on presentation type' for chance findings during routine imaging specifying other text. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C58927 Medical history hemorrhagic stroke recency rate

The element related to the recency of hemorrhagic strokes the participant/subject has had

Supplemental Medical History Stroke Stroke
C58928 Medical history carotid endarterectomy recent date

Date of most recent carotid endarterectomy performed on the participant/subject

Exploratory Medical History Stroke Stroke
C58929 Medical history carotid artery stenting recent date

Date of most recent carotid artery stenting performed on the participant/subject

Exploratory Medical History Stroke Stroke
C58930 Hypertension treatment type

Type of treatment the participant/subject is receiving or has received for hypertension

Supplemental Medical History Stroke Stroke
C58931 Menopause treatment type

Type of treatment the participant/subject is receiving or has received for menopause

Exploratory Medical History Stroke Stroke
C58932 Menopause treatment type other text

The free-text field related to 'Menopause treatment type', specifying other text

Exploratory Medical History Stroke Stroke
C58933 Acquired heart disease indicator

The indicator related to whether the participant/subject has acquired heart disease

Supplemental Medical History Stroke Stroke
C58934 Chickenpox past twelve month indicator

The indicator related to whether the participant/subject has had chickenpox in the past 12 months

Exploratory Medical History Stroke Stroke
C58935 Facial segmental hemangioma PHACE syndrome indicator

The indicator related to whether the participant/subject has facial segmental hemangioma/PHACE syndrome

Exploratory Medical History Stroke Stroke
C58939 Tobacco cigarette use started age value

Age in years when participant/subject started using cigarettes

Supplemental Behavioral History Stroke Stroke
C58940 Tobacco cigarette use stopped age value

Age in years when participant/subject stopped using cigarettes

Supplemental Behavioral History Stroke Stroke
C58941 Tobacco cigarette use stopped age not applicable status

Status indicating that age stopped cigarette use does not apply to the subject/participant, as they are still using cigarettes

Supplemental Behavioral History Stroke Stroke
Displaying 1401 - 1425 of 1542

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.