CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C13223	Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - story scale	Compared with 10 years ago how is this person at following a story in a book or on TV	Supplemental	Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE)	True	Stroke	Stroke
C13935	Intima media thickness (IMT) max far-wall measurement	Indicates max intima media thickness (IMT) far-wall measurement (mm)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
C13785	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) total score	The total score for the Alberta Stroke Program Early CT score (ASPECTS) middle cerebral artery (MCA)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14399	IV tPA not started reason	If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
C13524	Carotid bruit indicator	Indicator of whether the participant/subject has a carotid bruit upon examination	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
C14200	Emergency Medical Services (EMS) call received date and time	Date and time first call was received by the Emergency Medical Services (EMS) dispatcher OR date and time of EMS vehicle dispatch as recorded on the EMS trip sheet or other similar documentation	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C14016	High intensity transient signal hits start time	Indicates high intensity transient signal hits start time	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13900	Imaging probe frequency	Indicates imaging probe frequency (Hz)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13795	Modified Scheltens scale occipital score	Indicates modified Scheltens scale - occipital score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14407	Intra-sinus intervention indicator	Indicates whether the participant/subject received any intra-sinus (i.e., for cerebral venous thrombosis) intervention	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
C13902	Imaging acute stroke study type	Indicates imaging acute stroke study type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
C13180	Stroke Specific Quality of Life Scale (SS-QOL) - buttoning upper extremity scale	The scale for trouble buttoning buttons based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C14209	Los Angeles Motor Scale (LAMS) - facial smile or grimace result	Assess the facial smile/ grimace using the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C14029	Vasospasm posterior ratio result	Indicates vasospasm posterior ratio result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13943	Imaging B-mode result	Indicates B mode	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13231	King's Outcome Scale for Childhood Head Injury (KOSCHI) - prognosis category	The category that best describes the child's prognosis by the King's Outcome Scale for Childhood Head Injury (KOSCHI), which is a specific pediatric adaptation of the original adult Glasgow Outcome Scale (GOS)	Supplemental	King's Outcome Scale for Childhood Head Injury (KOSCHI)	False	Stroke	Stroke
C13239	National Institutes of Health Stroke Scale (NIHSS) - Motor leg score	Motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)	Supplemental-Highly Recommended	NIH Stroke Scale (NIHSS)	True	Stroke	Stroke
C13910	Imaging plaque severity grade	Indicates plaque severity grade	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
C13188	Stroke Specific Quality of Life Scale (SS-QOL) - work or productivity scale	The scale for trouble doing work as usual based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C14638	Antithrombotic therapy not prescribed reason	Reason(s) for not prescribing antithrombotic therapy (i.e., no anticoagulant or antiplatelet agents), documented by a physician, advance practice nurse or physician assistant	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
C13859	Imaging magnetic resonance based identification core value abnormality result	Result of magnetic resonance based identification of core value of abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
C13150	Stroke Specific Quality of Life Scale (SS-QOL) - repeat language scale	The scale for repeating self so others can understand based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C18887	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology other text	The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology type' specifying other text. The type of etiology of the hemorrhage	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
C13855	Abscess anatomic site	The free-text field to specify the location of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13885	Imaging vessel angiography arterial result	Indicates vessel imaging angiography arterial findings	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke

Displaying 126 - 150 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.