CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1173-C18892	C18892	Imaging percent stenosis criterion other text	The free-text field related to 'Imaging percent stenosis criterion type' specifying other text. The criteria used to find indicate stenosis	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1162-C14255	C14255	Subarachnoid hemorrhage volume total measurement	Subarachnoid hemorrhage (SAH) volume scale (Hijdra) - total amount of subarachnoid blood. Sum of the scores of the 10 basal cisterns and fissures	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13841	C13841	Subdural hematoma type	Indicates Subdural hematoma type	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C14635	C14635	Extracranial venous thromboembolism prophylaxis type	Type(s) of extracranial venous thromboembolism (VTE) prophylaxis used	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13858	C13858	Imaging magnetic resonance based identification core threshold type	Indicates MR based identification of core threshold used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13465	C13465	Stroke Adjudication Worksheet date	Date of hospital admission or outpatient visit when the stroke event was evaluated	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14265	C14265	NIH Ischemic Perinatal Stroke (IPS) - sub type	Subtype based on the Ischemic Perinatal Stroke (IPS) Workshop sponsored by NIH in 2007	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13852	C13852	Tumor present indicator	Indicates if tumor present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C13832	C13832	Graeb intraventricular hemorrhage (IVH) scale - left lateral ventricle score	Indicates Graeb IVH Scale - Left lateral ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13866	C13866	Imaging magnetic resonance based identification penumbra method type	Indicates MR based identification of penumbra method used for penumbra calculation	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13473	C13473	Stroke Adjudication Worksheet - not meet WHO definition indicator	The indicator of whether the event is not a stroke according to the WHO definition	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C18909	C18909	Intracerebral hemorrhage presumed cause other text	The free-text field related to 'Intracerebral hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14224	C14224	Acute ischemic cerebrovascular syndrome (AICS) - stroke sub type	Ischemic stroke subtype based on the acute ischemic cerebrovascular syndrome (AICS) classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13874	C13874	Imaging perfusion computed tomography based identification perfusion defect threshold type	Indicates PCT based identification of perfusion defect threshold type used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13481	C13481	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site	The anatomic location(s) of the hemorrhagic transformation during ischemic infarction	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1171-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C14289	C14289	Adjunctive treatment type	Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1162-C14234	C14234	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - diagnostic evidence level type	Levels of diagnostic evidence for the ASCO Grades	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1203-C18885	C18885	Stroke Adjudication Worksheet - stroke TIA other symptoms other text	The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA other symptoms type' specifying other text. The type of other identified cause(s) of ischemic stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14247	C14247	Modified fisher scale	Modified Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13833	C13833	Graeb intraventricular hemorrhage (IVH) scale - third ventricle score	Indicates Graeb IVH Scale - Third ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13793	C13793	Modified Scheltens scale frontal score	Indicates Modified Scheltens scale - Frontal score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14410	C14410	Intra-sinus intervention initiated date and time	Date (and time, if applicable and known) intra-sinus (IS) intervention (i.e., for cerebral venous thrombosis) was initiated at this hospital or ED	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13900	C13900	Imaging probe frequency	Indicates imaging probe frequency (Hz)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.