CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2838-C14016	C14016	High intensity transient signal hits start time	Indicates high intensity transient signal hits start time	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1158-C14210	C14210	Los Angeles Motor Scale (LAMS) - grip result	Assess the grip using the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14029	C14029	Vasospasm posterior ratio result	Indicates vasospasm posterior ratio result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13943	C13943	Imaging B-mode result	Indicates B mode	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1169-C55345	C55345	Microdialysis cerebral probe number	The number of probes used for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F2838-C14051	C14051	High intensity transient signal hits end time	Indicates high intensity transient signal hits end time	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13951	C13951	Imaging spectrum end diastolic ratio value	Indicates spectrum end diastolic ratio result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1159-C14190	C14190	Stroke symptoms discover location type	Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F2838-C13961	C13961	High intensity transient signal hits present indicator	Indicates presence of high intensity transient signals hits	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1159-C14199	C14199	Stroke complication of medical/ surgical procedure or therapy likelihood type	Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)	Exploratory	Hospital Arrival/Admission	False	Stroke	Stroke
F2838-C14008	C14008	Imaging window quality category	Indicates window quality category	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1158-C14201	C14201	Emergency Medical Services (EMS) dispatch date and time	This refers to the date when Emergency Medical Services (EMS) transport (either by ground or air) leaves the station to pick up the patient for transport	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1152-C52700	C52700	Hypercoagulable disorder type text	The free-text field related to the type of hypercoagulable disorder	Supplemental	Medical History	False	Stroke	Stroke
F1178-C14631	C14631	Antiplatelet agent in hospital indicator	Whether the participant/subject received antiplatelet agents during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1171-C13801	C13801	Age-related white matter changes (ARWMC) scale - frontal score	The frontal score related to age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14399	C14399	IV tPA not started reason	If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1162-C14238	C14238	Intraventricular hemorrhage presumed cause type	Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13847	C13847	Imaging shift measurement	Indicates Shift measurement (mm)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1174-C13894	C13894	Imaging vessel angiography overall assessment type	Indicates vessel angiography overall assessment	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1203-C13475	C13475	Stroke Adjudication Worksheet - stroke TIA sub type	The type of stroke or transient ischemic attack (TIA) subtype	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1173-C13922	C13922	Imaging common carotid artery (CCA) externalization indicator	Indicates common carotid artery (CCA) externalization	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1164-C13518	C13518	Upper limb tone findings result	Assess tone of upper limbs on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1178-C18986	C18986	Extracranial venous thromboembolism other text	The free-text field related to 'Extracranial venous thromboembolism type', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13861	C13861	Imaging magnetic resonance based identification perfusion defect method type	Indicates MR based identification of perfusion defect - method used for perfusion processing	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1171-C13809	C13809	Van Swieetten scale posterior white matter result	Describes Van Swieetten Scale - Posterior white matter	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.