CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 1542
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13813 Intracerebral hemorrhage planimetric volume measurement

Indicates ICH volume (planimetric) (CC)

Supplemental Parenchymal Imaging Stroke Stroke
C13921 Imaging other carotid ultrasound result

Indicates other carotid ultrasound findings

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C13756 Imaging acute infarct present status

The assessment for the presence of acute infarct(s)

Supplemental Parenchymal Imaging Stroke Stroke
C14231 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - small vessel grade

The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of small vessel disease (S)

Supplemental Stroke Types and Subtypes Stroke Stroke
C14279 Comfort care indicator

Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family

Supplemental Palliative/Comfort Care and End of Life Issues Stroke Stroke
C18886 Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic other text

The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site' specifying other text. The anatomic location(s) of the hemorrhagic transformation during ischemic infarction

Supplemental Stroke Adjudication Form Stroke Stroke
C13948 Imaging mean blood velocity measurement

Indicates mean velocity measurement (cm/sec) of blood

Exploratory Vessel Imaging Angiography Stroke Stroke
C14244 Subarachnoid hemorrhage etiology type

Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowed

Supplemental Stroke Types and Subtypes Stroke Stroke
C13830 Microbleed by location count

Indicates count of Microbleeds in each location

Supplemental Parenchymal Imaging Stroke Stroke
C14145 Family history stroke youngest age value

If there is a family history of stroke, specify the youngest age an immediate family member (parent, sibling, child) suffered a stroke

Supplemental Family History Stroke Stroke
C58885 Supportive medical equipment type

If the participant/ subject was provided with any supportive medical equipment, describes the type(s) of equipment received

Exploratory Rehabilitation Therapies Stroke Stroke
C55345 Microdialysis cerebral probe number

The number of probes used for cerebral microdialysis specimens

Exploratory Biospecimen Collection and Processing Stroke Stroke
C14252 Subarachnoid hemorrhage suprasellar cistern score

SAH Volume Scale (Hijdra) - Suprasellar cistern left score

Supplemental Stroke Types and Subtypes Stroke Stroke
C13838 Hijdra scale anatomic site

The site for the Hijdra scale assessment (the Hijdra et al. (1990) described a method to grade the amount of blood in the SA space and ventricles on CT)

Supplemental Parenchymal Imaging Stroke Stroke
C14632 Antiplatelet agent in hospital type

Type(s) of antiplatelet agents received during the acute hospital stay

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C13750 Imaging study ID number

Unique identification number assigned to the study or assessment session

Supplemental-Highly Recommended Perfusion and Penumbral Imaging Stroke Stroke
C13466 Stroke Adjudication Worksheet - type

Whether the participant/subject presented with neurologic symptoms

Supplemental Stroke Adjudication Form Stroke Stroke
C14260 Sebire-International Pediatric Stroke Study (IPSS) - sub type

The subtype as related to the Sebire/International Pediatric Stroke Study (IPSS) classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C13849 Bicaudate index score

Indicates Bicaudate index

Supplemental Parenchymal Imaging Stroke Stroke
C13901 Imaging patient type

Indicates imaging patient type

Supplemental Vessel Imaging Transcranial Stroke Stroke
C18987 Extracranial venous thromboembolism prophylaxis other text

The free-text field related to 'Extracranial venous thromboembolism prophylaxis type', specifying other text

Supplemental Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C13863 Imaging magnetic resonance based identification perfusion defect threshold type

Indicates MR based identification of perfusion defect threshold type used to delineate abnormality

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13474 Stroke Adjudication Worksheet - TIA indicator

The indicator whether this event a transient ischemic attack (TIA)

Supplemental Stroke Adjudication Form Stroke Stroke
C14270 Sophia stroke vessels affected type

Vessel(s) affected by the stroke event. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C14050 Hijdra scale total score

Indicates Hijdra scale - total Score

Supplemental Parenchymal Imaging Stroke Stroke
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.