CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2838-C14025	C14025	Vasospasm Lindegaard ratio value	Indicates vasospasm lindegaard ratio result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13905	C13905	Imaging contrast agent method type	Indicates imaging contrast agent method of administration	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13892	C13892	Arterial occlusion lesion (AOL) recanalization score	The score as related to recanalization of the primary arterial occlusive lesion (AOL) for DSA. The score as related to recanalization of the modified arterial occlusive lesion (mAOL) for CTA and MRA	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13812	C13812	Intracerebral hemorrhage volume measurement	Indicates intracerebral hemorrhage (ICH) volume (ABC/2)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13920	C13920	Imaging volume flow rate measurement	Indicates volume flow rate	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1172-C13870	C13870	Imaging perfusion computed tomography based identification core method type	Indicates perfusion CT (PCT) based identification of core method used for penumbra calculation	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13481	C13481	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site	The anatomic location(s) of the hemorrhagic transformation during ischemic infarction	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C19077	C19077	Sophia imaging stroke composite diagnosis method other text	The free-text field related to 'Imaging stroke composite diagnosis method type' specifying other text. Imaging method at detection. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14230	C14230	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - atherothrombotic grade	The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13878	C13878	Imaging perfusion computed tomography based identification penumbra volume measurement	Indicates PCT based identification of penumbra volume for all the methods selected	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C18885	C18885	Stroke Adjudication Worksheet - stroke TIA other symptoms other text	The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA other symptoms type' specifying other text. The type of other identified cause(s) of ischemic stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14238	C14238	Intraventricular hemorrhage presumed cause type	Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13829	C13829	Microbleed anatomic site	Describes microbleed location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1169-C55344	C55344	Microdialysis cerebral probe location anatomic site	Free-text field to describe the location of the probe for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C14251	C14251	Subarachnoid hemorrhage basal part score	SAH Volume Scale (Hijdra) - Basal part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13837	C13837	Modified Fisher scale grade	Indicates modified Fisher Scale grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C14631	C14631	Antiplatelet agent in hospital indicator	Whether the participant/subject received antiplatelet agents during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13465	C13465	Stroke Adjudication Worksheet date	Date of hospital admission or outpatient visit when the stroke event was evaluated	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14259	C14259	Pediatric Stroke Classification (PSC) - sub type	Pediatric Stroke Classification (PSC) system (Wraige, 2005) subtype	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13848	C13848	Hydrocephalus present indicator	Indicates if hydrocephalus is present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2838-C13899	C13899	Imaging probe type text	The text describing the type of imaging probe	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1178-C18986	C18986	Extracranial venous thromboembolism other text	The free-text field related to 'Extracranial venous thromboembolism type', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13862	C13862	Imaging magnetic resonance based identification perfusion defect volume type	Indicates MR based identification of perfusion defect volume type	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13473	C13473	Stroke Adjudication Worksheet - not meet WHO definition indicator	The indicator of whether the event is not a stroke according to the WHO definition	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.