CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 101 - 125 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C13774	Imaging one third middle cerebral artery territory involved indicator	Indicates if 1/3 middle cerebral artery (MCA) territory is involved	Exploratory	Parenchymal Imaging	False	Stroke	Stroke
C14396	IV tPA initiated status	Indicates whether Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject at your hospital	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
C13519	Lower limb tone findings result	Assess tone of lower limbs on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
C18888	Imaging acquisition reason other text	The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
C14013	Intracranial stenosis mean velocity criterion value	Indicates intracranial stenosis mean velocity criterion	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13473	Stroke Adjudication Worksheet - not meet WHO definition indicator	The indicator of whether the event is not a stroke according to the WHO definition	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
C13228	Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - reasoning scale	Compared with 10 years ago how is this person at using his/her intelligence to understand what's going on and to reason things through	Supplemental	Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE)	True	Stroke	Stroke
C18892	Imaging percent stenosis criterion other text	The free-text field related to 'Imaging percent stenosis criterion type' specifying other text. The criteria used to find indicate stenosis	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
C13792	Fazekas scale total score	Indicates the Fazekas scale total score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14404	Intra-arterial (IA) catheter-based reperfusion initiated date and time	Date (and time, if applicable and known) of last intra-arterial (IA) catheter-based reperfusion initiated for the participant/ subject at this hospital or ED	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
C13899	Imaging probe type text	The text describing the type of imaging probe	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
C13177	Stroke Specific Quality of Life Scale (SS-QOL) - write remembering thinking scale	The scale for writing things down to remember them based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C14206	Emergency Medical Services (EMS) scene departure date and time	Date and time the EMS vehicle departs with the patient from the scene to take the patient to the hospital	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C14025	Vasospasm Lindegaard ratio value	Indicates vasospasm lindegaard ratio result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13905	Imaging contrast agent method type	Indicates imaging contrast agent method of administration	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13236	National Institutes of Health Stroke Scale (NIHSS) - Visual field score	Visual fields assessed using the NIH Stroke Scale (NIHSS)	Supplemental-Highly Recommended	NIH Stroke Scale (NIHSS)	True	Stroke	Stroke
C13800	Modified Scheltens scale total score	Indicates Modified Scheltens scale - Total Score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C18927	IV tPA not started other text	The free-text field related to 'IV tPA not started reason' specifying other text. If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
C13907	Imaging B-mode finding result	Indicates B-mode finding	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
C13185	Stroke Specific Quality of Life Scale (SS-QOL) - trouble finish scale	The scale for trouble seeing things off to one side based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C14624	Los Angeles Motor Scale (LAMS) - arm strength abnormal type	Type of abnormal arm strength observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C14633	Extracranial venous thromboembolism indicator	Whether the participant/ subject was diagnosed with an extracranial venous thromboembolism (VTE)	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
C14036	Breath-holding index result	Indicates Breath-holding index (BHI) result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.