CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 76 - 100 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C13909	Imaging plaque surface type	Indicates plaque surface type	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
C13187	Stroke Specific Quality of Life Scale (SS-QOL) - finish work or productivity scale	The scale for trouble finishing jobs based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C14635	Extracranial venous thromboembolism prophylaxis type	Type(s) of extracranial venous thromboembolism (VTE) prophylaxis used	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
C13858	Imaging magnetic resonance based identification core threshold type	Indicates MR based identification of core threshold used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
C13149	Stroke Specific Quality of Life Scale (SS-QOL) - trouble words language scale	The scale for trouble finding words to say things based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C18886	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic other text	The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site' specifying other text. The anatomic location(s) of the hemorrhagic transformation during ischemic infarction	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
C13854	Abscess present indicator	The indicator for presence of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13884	Imaging vessel angiography arterial anatomic site	Indicates vessel imaging angiography arterial findings location	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C13834	Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score	Indicates Graeb IVH Scale - Fourth ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C13809	Van Swieetten scale posterior white matter result	Describes Van Swieetten Scale - Posterior white matter	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14279	Comfort care indicator	Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
C13157	Stroke Specific Quality of Life Scale (SS-QOL) - future mood scale	The scale for being discouraged about future based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C13198	Questionnaire for Verifying Stroke Free Status (QVSFS) - understanding status	Have you ever suddenly lost the ability to understand what people were saying?	Supplemental	Questionnaire for Verifying Stroke-Free Status (QVSFS)	True	Stroke	Stroke
C18889	Intraparenchymal hematoma MRI sequence other text	The free-text field related to 'Intraparenchymal hematoma MRI sequence type' specifying other text. Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14286	Therapy or rehabilitation received status	If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C18888	Imaging acquisition reason other text	The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C14226	Stroke causative classification standard sub type	Ischemic Stroke Subtype based on The Causative Classification System's - standard causative subtypes	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C13817	Hematoma deep region anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in a deep region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14458	Hip circumference measurement	A measurement of the body circumference at the level of the hip. It should be the hip circumference at its widest part of the buttocks or hip	Supplemental	Vital Signs	False	Stroke	Stroke
C13165	Stroke Specific Quality of Life Scale (SS-QOL) - food self care scale	The scale for needing help to prepare food based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C14236	Oxfordshire Community Stroke Project (OCSP) - subtype category	Oxfordshire Community Stroke Project (OCSP) Subtype Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C13827	Hematoma chronic count	Indicates number of chronic hematomas if present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14196	Hospital location patient first received care type	Area of the hospital the patient first evaluated	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
C13173	Stroke Specific Quality of Life Scale (SS-QOL) - sex social role scale	The scale for having sex less often based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C13474	Stroke Adjudication Worksheet - TIA indicator	The indicator whether this event a transient ischemic attack (TIA)	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.