CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C14258	C14258	Perinatal stroke type	Indicates the type of clinical stroke suffered by the neonate	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1158-C14205	C14205	Emergency Medical Services (EMS) scene arrival date and time	This refers to the date/time when the Emergency Medical Services (EMS) vehicle arrives on the scene to transport the patient to the hospital	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C13847	C13847	Imaging shift measurement	Indicates Shift measurement (mm)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C18985	C18985	Antiplatelet agent in hospital other text	The free-text field related to 'Antiplatelet agent in hospital type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13861	C13861	Imaging magnetic resonance based identification perfusion defect method type	Indicates MR based identification of perfusion defect - method used for perfusion processing	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13468	C13468	Stroke Adjudication Worksheet - symptom duration	How long the symptom(s) experienced around the time of the stroke event lasted	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14268	C14268	Sophia time detection type	Time of detection of the stroke event in the participant/subject	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1158-C14623	C14623	Los Angeles Motor Scale (LAMS) - grip abnormal type	Type of abnormal grip observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C13855	C13855	Abscess anatomic site	The free-text field to specify the location of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C13835	C13835	Graeb intraventricular hemorrhage (IVH) scale - total score	Indicates Graeb IVH Scale - total Score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13869	C13869	Imaging perfusion computed tomography based identification core value result	Result of perfusion CT (PCT) based identification of core value of abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13476	C13476	Stroke Adjudication Worksheet - stroke TIA symptoms type	The type of symptoms/conditions that were present and relevant for ischemic stroke subtype	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C19076	C19076	Sophia signs symptoms presentation neurological signs other text	The free-text field related to 'Sophia signs and symptoms on presentation type' specifying other text. Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14228	C14228	Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) - standard sub type	Ischemic Stroke Subtype based on the Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) Classification System	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13877	C13877	Imaging perfusion computed tomography based identification penumbra method type	Indicates PCT based identification of penumbra method used for penumbra calculation	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13484	C13484	Stroke Adjudication Worksheet - death indicator	The indicator if person died during hospitalization after stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1182-C18913	C18913	Adjunctive treatment other text	The free-text field related to 'Adjunctive treatment type' specifying other text. Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1162-C14237	C14237	Intracerebral hemorrhage presumed cause type	Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2834-C14280	C14280	Comfort care earliest documentation timepoint type	Timepoint of the earliest documentation of comfort measures only	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1159-C14194	C14194	Hospital not admitted but transferred to another acute care hospital indicator	Whether a patient presented to the Emergency Department of the study hospital and was transferred to an outside hospital. Was patient evaluated in the ED for acute Stroke or TIA and subsequently transferred to another acute care hospital rather than being admitted to your hospital?	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1162-C14250	C14250	Subarachnoid hemorrhage Sylvian fissure lateral part score	SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13836	C13836	Fisher grade	Indicates Fisher grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13903	C13903	Imaging interpretation site location	Indicates imaging interpretation site	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14009	C14009	Imaging window quality result	Indicates window quality result for all categories	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13879	C13879	Imaging modality vessel imaging angiography type	Indicates imaging modality for vessel imaging angiography	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.