CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 76 - 100 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C13909 Imaging plaque surface type

Indicates plaque surface type

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C13187 Stroke Specific Quality of Life Scale (SS-QOL) - finish work or productivity scale

The scale for trouble finishing jobs based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Stroke Stroke
C14635 Extracranial venous thromboembolism prophylaxis type

Type(s) of extracranial venous thromboembolism (VTE) prophylaxis used

Supplemental Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C13858 Imaging magnetic resonance based identification core threshold type

Indicates MR based identification of core threshold used to delineate abnormality

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13149 Stroke Specific Quality of Life Scale (SS-QOL) - trouble words language scale

The scale for trouble finding words to say things based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Stroke Stroke
C18886 Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic other text

The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site' specifying other text. The anatomic location(s) of the hemorrhagic transformation during ischemic infarction

Supplemental Stroke Adjudication Form Stroke Stroke
C13854 Abscess present indicator

The indicator for presence of abscess

Supplemental Parenchymal Imaging Stroke Stroke
C13884 Imaging vessel angiography arterial anatomic site

Indicates vessel imaging angiography arterial findings location

Supplemental Vessel Imaging Angiography Stroke Stroke
C13834 Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score

Indicates Graeb IVH Scale - Fourth ventricle score

Supplemental Stroke Types and Subtypes Stroke Stroke
C13809 Van Swieetten scale posterior white matter result

Describes Van Swieetten Scale - Posterior white matter

Supplemental Parenchymal Imaging Stroke Stroke
C14279 Comfort care indicator

Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family

Supplemental Palliative/Comfort Care and End of Life Issues Stroke Stroke
C13157 Stroke Specific Quality of Life Scale (SS-QOL) - future mood scale

The scale for being discouraged about future based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Stroke Stroke
C13198 Questionnaire for Verifying Stroke Free Status (QVSFS) - understanding status

Have you ever suddenly lost the ability to understand what people were saying?

Supplemental Questionnaire for Verifying Stroke-Free Status (QVSFS) Stroke Stroke
C18889 Intraparenchymal hematoma MRI sequence other text

The free-text field related to 'Intraparenchymal hematoma MRI sequence type' specifying other text. Indicates sequence employed for Intraparenchymal hematoma MRI

Supplemental Parenchymal Imaging Stroke Stroke
C14286 Therapy or rehabilitation received status

If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services

Supplemental Rehabilitation Therapies Stroke Stroke
C18888 Imaging acquisition reason other text

The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed

Supplemental Vessel Imaging Angiography Stroke Stroke
C14226 Stroke causative classification standard sub type

Ischemic Stroke Subtype based on The Causative Classification System's - standard causative subtypes

Supplemental Stroke Types and Subtypes Stroke Stroke
C13817 Hematoma deep region anatomic site

The site of hematoma, a localized collection of blood outside the blood vessels, in a deep region

Supplemental Parenchymal Imaging Stroke Stroke
C14458 Hip circumference measurement

A measurement of the body circumference at the level of the hip. It should be the hip circumference at its widest part of the buttocks or hip

Supplemental Vital Signs Stroke Stroke
C13165 Stroke Specific Quality of Life Scale (SS-QOL) - food self care scale

The scale for needing help to prepare food based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Stroke Stroke
C14236 Oxfordshire Community Stroke Project (OCSP) - subtype category

Oxfordshire Community Stroke Project (OCSP) Subtype Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C13827 Hematoma chronic count

Indicates number of chronic hematomas if present

Supplemental Parenchymal Imaging Stroke Stroke
C14196 Hospital location patient first received care type

Area of the hospital the patient first evaluated

Supplemental Hospital Arrival/Admission Stroke Stroke
C13173 Stroke Specific Quality of Life Scale (SS-QOL) - sex social role scale

The scale for having sex less often based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Stroke Stroke
C13474 Stroke Adjudication Worksheet - TIA indicator

The indicator whether this event a transient ischemic attack (TIA)

Supplemental Stroke Adjudication Form Stroke Stroke
Displaying 76 - 100 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.