CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1203-C14054	C14054	Stroke Adjudication Worksheet - neuroimaging multiple CT stroke finding indicator	Whether the multiple brain CTs separated in time was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1174-C13948	C13948	Imaging mean blood velocity measurement	Indicates mean velocity measurement (cm/sec) of blood	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13830	C13830	Microbleed by location count	Indicates count of Microbleeds in each location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14271	C14271	Sophia imaging stroke composite diagnosis method type	Imaging method at detection. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14221	C14221	Clinical stroke time-based definition type	Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TIA	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F2834-C14282	C14282	Do not resuscitate or intubate (DNR or DNI) indicator	Indicates if participant/ subject was made DNR/DNI (Do not resuscitate or Do not intubate) during hospitalization	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1169-C55345	C55345	Microdialysis cerebral probe number	The number of probes used for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1171-C13838	C13838	Hijdra scale anatomic site	The site for the Hijdra scale assessment (the Hijdra et al. (1990) described a method to grade the amount of blood in the SA space and ventricles on CT)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14232	C14232	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - cardioembolic grade	The grade of cardioembolism, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of cardiac source (C)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1178-C14632	C14632	Antiplatelet agent in hospital type	Type(s) of antiplatelet agents received during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental-Highly Recommended	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1197-C13190	C13190	Walking time duration	Time in seconds to complete the central 4 meters of a 6 meter line at a comfortable walking pace	Supplemental-Highly Recommended	Walking Speed	False	Stroke	Stroke
F1171-C13849	C13849	Bicaudate index score	Indicates Bicaudate index	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14245	C14245	Hunt and Hess scale	This is a 5 level scale for classifying the severity of Subarachnoid Hemorrhage (SAH), the higher the score the lower the likelihood of survival	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1153-C14147	C14147	Family history coronary artery disease (CAD) youngest age value	If there is a family history of coronary artery disease (CAD), specify the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack	Supplemental	Family History	False	Stroke	Stroke
F1178-C18987	C18987	Extracranial venous thromboembolism prophylaxis other text	The free-text field related to 'Extracranial venous thromboembolism prophylaxis type', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13863	C13863	Imaging magnetic resonance based identification perfusion defect threshold type	Indicates MR based identification of perfusion defect threshold type used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13470	C13470	Stroke Adjudication Worksheet - neuroimaging type	Type of neuro-imaging done for the stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1171-C14050	C14050	Hijdra scale total score	Indicates Hijdra scale - total Score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2838-C13903	C13903	Imaging interpretation site location	Indicates imaging interpretation site	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13894	C13894	Imaging vessel angiography overall assessment type	Indicates vessel angiography overall assessment	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13814	C13814	Intraparenchymal hematoma MRI sequence type	Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13922	C13922	Imaging common carotid artery (CCA) externalization indicator	Indicates common carotid artery (CCA) externalization	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13762	C13762	Imaging infarcts one vascular territory indicator	Indicates acute infarct(s) are all in one vascular territory	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1158-C14623	C14623	Los Angeles Motor Scale (LAMS) - grip abnormal type	Type of abnormal grip observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.