CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2834-C14282	C14282	Do not resuscitate or intubate (DNR or DNI) indicator	Indicates if participant/ subject was made DNR/DNI (Do not resuscitate or Do not intubate) during hospitalization	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1159-C14190	C14190	Stroke symptoms discover location type	Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13804	C13804	Age-related white matter changes (ARWMC) scale - infratentorial cerebellum score	The infratentorial/cerebellum score from the age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1159-C14199	C14199	Stroke complication of medical/ surgical procedure or therapy likelihood type	Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)	Exploratory	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13812	C13812	Intracerebral hemorrhage volume measurement	Indicates intracerebral hemorrhage (ICH) volume (ABC/2)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1158-C14201	C14201	Emergency Medical Services (EMS) dispatch date and time	This refers to the date when Emergency Medical Services (EMS) transport (either by ground or air) leaves the station to pick up the patient for transport	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C18908	C18908	Diagnosis stroke risk factor new other text	The free-text field related to 'Diagnosis new type' specifying other text. If there were any new diagnoses related to stroke risk factors during hospital stay, describes those risk factors	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1178-C14635	C14635	Extracranial venous thromboembolism prophylaxis type	Type(s) of extracranial venous thromboembolism (VTE) prophylaxis used	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1203-C13469	C13469	Stroke Adjudication Worksheet - neuroimaging indicator	The indicator for whether neuro-imaging done for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1171-C13822	C13822	Spot sign count	The number of "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion. The computed tomogram angiography (CTA) 'spot sign' describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1158-C14210	C14210	Los Angeles Motor Scale (LAMS) - grip result	Assess the grip using the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1165-C14538	C14538	Central venous pressure (CVP) unit of measure	Units used to measure the pressure of blood in the central venous system	Supplemental	Vital Signs	False	Stroke	Stroke
F1171-C13769	C13769	Imaging planimetric volume value	Indicates acute lesion volume	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C13515	C13515	Orientation findings result	Assess orientation using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1203-C13477	C13477	Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms type	The type of symptoms/conditions that were present and relevant for cardioembolic source	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1171-C13786	C13786	Imaging chronic infarct present indicator	Indicates presence of chronic infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C13525	C13525	Carotid bruit type	Type of carotid bruit found during the examination	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1169-C55344	C55344	Microdialysis cerebral probe location anatomic site	Free-text field to describe the location of the probe for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C14251	C14251	Subarachnoid hemorrhage basal part score	SAH Volume Scale (Hijdra) - Basal part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13837	C13837	Modified Fisher scale grade	Indicates modified Fisher Scale grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2827-C18888	C18888	Imaging acquisition reason other text	The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2838-C13954	C13954	Consensus on Grading Intracranial Flow Obstruction (COGIF) - follow-up date and time	The date and time for consensus on grading intracranial flow obstruction (COGIF) follow-up	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1173-C13933	C13933	Intima media thickness (IMT) mean far-wall measurement	Indicates mean intima media thickness (IMT) far-wall measurement (mm)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1179-C14397	C14397	IV tPA initiated date and time	If Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, indicates the date and time IV tPA was initiated at this hospital or ED (time of bolus administration)	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.