CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1543
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14397 IV tPA initiated date and time

If Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, indicates the date and time IV tPA was initiated at this hospital or ED (time of bolus administration)

Supplemental-Highly Recommended Thrombolytic/Reperfusion Therapies Stroke Stroke
C13521 Gait walk unassisted result

Ability of the participant/subject to walk multiple steps unassisted

Supplemental Physical/Neurological Exam Stroke Stroke
C18890 Imaging magnetic resonance based identification core volume other text

The free-text field related to 'Imaging magnetic resonance based identification core volume type' specifying other text. Indicates magnetic resonance based identification of core volume type

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C14001 Extracranial stenosis type

Indicates extracranial stenosis type

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Supplemental-Highly Recommended Modified Rankin Scale (mRS) Stroke Stroke
C13245 National Institutes of Health Stroke Scale (NIHSS) - severity total score

The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C13793 Modified Scheltens scale frontal score

Indicates Modified Scheltens scale - Frontal score

Supplemental Parenchymal Imaging Stroke Stroke
C14405 Intervention mechanical or pharmacological end time

The end time for mechanical, pharmacologic intervention for the participant/subject

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C13900 Imaging probe frequency

Indicates imaging probe frequency (Hz)

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C14207 Pre-hospital stroke identification screen indicator

Whether a pre-hospital identification stroke screen was documented by EMS personnel. Pre-hospital stroke identification screens are defined as published validated screening algorithms or those required by state EMS agencies (e.g., LAPSS, CPSS, MASS, etc.)

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C14010 Intracranial stenosis collateral vessel anatomic site

Indicates intracranial stenosis collateral vessel(s)

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13801 Age-related white matter changes (ARWMC) scale - frontal score

The frontal score related to age-related white matter changes (ARWMC) scale

Supplemental Parenchymal Imaging Stroke Stroke
C58579 Investigational or experimental protocol for thrombolysis text

Free-text field to specify what type of investigational thrombolytic protocol was used during provision of care

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C13908 Imaging echo pattern result

Indicates echo pattern

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C18907 Emergency Medical Services (EMS) dispatch type other text

The free-text field related to 'Emergency Medical Services (EMS) dispatch type code' specifying other text. For EMS systems where there is use of a designated stroke dispatch code, this item would capture what code was assigned to the transport at dispatch

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C14021 Sickle cell disease blood flow velocity measurement

The velocity measurement blood flow relative to sickle cell disease

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13902 Imaging acute stroke study type

Indicates imaging acute stroke study type

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13884 Imaging vessel angiography arterial anatomic site

Indicates vessel imaging angiography arterial findings location

Supplemental Vessel Imaging Angiography Stroke Stroke
C13809 Van Swieetten scale posterior white matter result

Describes Van Swieetten Scale - Posterior white matter

Supplemental Parenchymal Imaging Stroke Stroke
C13916 Imaging color flow angle measurement

Indicates color flow angle (degrees)

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C14216 Diagnosis stroke risk factor new type

If there were any new diagnoses related to stroke risk factors during hospital stay, describes those risk factors

Supplemental Hospital Discharge Stroke Stroke
C14033 Vasospasm vessel anatomic site

Indicates vasospasm vessel(s)

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13750 Imaging study ID number

Unique identification number assigned to the study or assessment session

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C14286 Therapy or rehabilitation received status

If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services

Supplemental Rehabilitation Therapies Stroke Stroke
C13945 Imaging spectrum depth measurement

Indicates spectrum depth measurement (mm)

Supplemental Vessel Imaging Transcranial Stroke Stroke
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.