CDE Catalog

***Please contact NINDS CDE team ( in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1542
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14282 Do not resuscitate or intubate (DNR or DNI) indicator

Indicates if participant/ subject was made DNR/DNI (Do not resuscitate or Do not intubate) during hospitalization

Supplemental Palliative/Comfort Care and End of Life Issues Stroke Stroke
C14190 Stroke symptoms discover location type

Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered

Supplemental Hospital Arrival/Admission Stroke Stroke
C13804 Age-related white matter changes (ARWMC) scale - infratentorial cerebellum score

The infratentorial/cerebellum score from the age-related white matter changes (ARWMC) scale

Supplemental Parenchymal Imaging Stroke Stroke
C14199 Stroke complication of medical/ surgical procedure or therapy likelihood type

Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)

Exploratory Hospital Arrival/Admission Stroke Stroke
C13812 Intracerebral hemorrhage volume measurement

Indicates intracerebral hemorrhage (ICH) volume (ABC/2)

Supplemental Parenchymal Imaging Stroke Stroke
C14201 Emergency Medical Services (EMS) dispatch date and time

This refers to the date when Emergency Medical Services (EMS) transport (either by ground or air) leaves the station to pick up the patient for transport

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C13751 Imaging acquisition reason

Describes why the imaging study was performed

Supplemental Parenchymal Imaging Stroke Stroke
C18908 Diagnosis stroke risk factor new other text

The free-text field related to 'Diagnosis new type' specifying other text. If there were any new diagnoses related to stroke risk factors during hospital stay, describes those risk factors

Supplemental Hospital Discharge Stroke Stroke
C14635 Extracranial venous thromboembolism prophylaxis type

Type(s) of extracranial venous thromboembolism (VTE) prophylaxis used

Supplemental Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C13469 Stroke Adjudication Worksheet - neuroimaging indicator

The indicator for whether neuro-imaging done for this stroke event

Supplemental Stroke Adjudication Form Stroke Stroke
C13822 Spot sign count

The number of "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion. The computed tomogram angiography (CTA) 'spot sign' describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients

Supplemental Parenchymal Imaging Stroke Stroke
C14210 Los Angeles Motor Scale (LAMS) - grip result

Assess the grip using the Los Angeles Motor Scale (LAMS)

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C14538 Central venous pressure (CVP) unit of measure

Units used to measure the pressure of blood in the central venous system

Supplemental Vital Signs Stroke Stroke
C13769 Imaging planimetric volume value

Indicates acute lesion volume

Supplemental Parenchymal Imaging Stroke Stroke
C13515 Orientation findings result

Assess orientation using the Scandinavian Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C13477 Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms type

The type of symptoms/conditions that were present and relevant for cardioembolic source

Supplemental Stroke Adjudication Form Stroke Stroke
C13786 Imaging chronic infarct present indicator

Indicates presence of chronic infarct(s)

Supplemental Parenchymal Imaging Stroke Stroke
C13525 Carotid bruit type

Type of carotid bruit found during the examination

Supplemental Physical/Neurological Exam Stroke Stroke
C55344 Microdialysis cerebral probe location anatomic site

Free-text field to describe the location of the probe for cerebral microdialysis specimens

Exploratory Biospecimen Collection and Processing Stroke Stroke
C14251 Subarachnoid hemorrhage basal part score

SAH Volume Scale (Hijdra) - Basal part left score

Supplemental Stroke Types and Subtypes Stroke Stroke
C13837 Modified Fisher scale grade

Indicates modified Fisher Scale grade

Supplemental Parenchymal Imaging Stroke Stroke
C18888 Imaging acquisition reason other text

The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C13954 Consensus on Grading Intracranial Flow Obstruction (COGIF) - follow-up date and time

The date and time for consensus on grading intracranial flow obstruction (COGIF) follow-up

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13933 Intima media thickness (IMT) mean far-wall measurement

Indicates mean intima media thickness (IMT) far-wall measurement (mm)

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C14397 IV tPA initiated date and time

If Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, indicates the date and time IV tPA was initiated at this hospital or ED (time of bolus administration)

Supplemental-Highly Recommended Thrombolytic/Reperfusion Therapies Stroke Stroke
Displaying 76 - 100 of 1542

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.