CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1178-C14633	C14633	Extracranial venous thromboembolism indicator	Whether the participant/ subject was diagnosed with an extracranial venous thromboembolism (VTE)	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13467	C13467	Stroke Adjudication Worksheet - anatomic site	Type of neurologic symptom(s) presented in participant/subject	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14261	C14261	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - standard primary acute sub type	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: acute - all patients with defined childhood arterial ischemic stroke will be classified into a single acute primary category, at the time of initial diagnosis (within 1 month of presentation)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13850	C13850	Arteriovenous malformation present indicator	Indicates if arteriovenous malformation is present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1152-C52699	C52699	Sickle cell anemia blood transfusion treatment indicator	The indicator related to whether blood transfusions are used for treatment for sickle cell anemia	Supplemental	Medical History	False	Stroke	Stroke
F1178-C18988	C18988	Antithrombotic therapy not prescribed other text	The free-text field related to 'Antithrombotic therapy not prescribed reason', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13864	C13864	Imaging magnetic resonance based identification perfusion defect value	Value of MR based identification of perfusion defect abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13475	C13475	Stroke Adjudication Worksheet - stroke TIA sub type	The type of stroke or transient ischemic attack (TIA) subtype	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14271	C14271	Sophia imaging stroke composite diagnosis method type	Imaging method at detection. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14221	C14221	Clinical stroke time-based definition type	Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TIA	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13872	C13872	Imaging perfusion computed tomography based identification perfusion defect correction method type	Indicates PCT based identification of perfusion defect method used for perfusion processing	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13483	C13483	Stroke Adjudication Worksheet - hospitalized indicator	Is this case a hospitalization for chest pain, heart failure, acute MI or coronary revascularization?	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14232	C14232	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - cardioembolic grade	The grade of cardioembolism, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of cardiac source (C)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2834-C14279	C14279	Comfort care indicator	Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1203-C18887	C18887	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology other text	The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology type' specifying other text. The type of etiology of the hemorrhage	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14245	C14245	Hunt and Hess scale	This is a 5 level scale for classifying the severity of Subarachnoid Hemorrhage (SAH), the higher the score the lower the likelihood of survival	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13831	C13831	Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score	Indicates Graeb IVH Scale - Right lateral ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1153-C14147	C14147	Family history coronary artery disease (CAD) youngest age value	If there is a family history of coronary artery disease (CAD), specify the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack	Supplemental	Family History	False	Stroke	Stroke
F1171-C13791	C13791	Fazekas scale deep white matter score	Indicates the Fazekas scale deep white matter score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14403	C14403	Intra-arterial (IA) procedure groin puncture date and time	Date (and time, if applicable and known) of groin puncture on the participant/ subject for the intra-arterial (IA) procedure	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14205	C14205	Emergency Medical Services (EMS) scene arrival date and time	This refers to the date/time when the Emergency Medical Services (EMS) vehicle arrives on the scene to transport the patient to the hospital	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14008	C14008	Imaging window quality category	Indicates window quality category	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13799	C13799	Modified Scheltens scale periventricular bands score	Indicates Modified Scheltens scale - Periventricular bands score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.