CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1182-C14288	C14288	Adjunctive treatment indicator	Indicates if any adjunctive treatments were or are being performed on the participant/subject to preserve or increase independence	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1162-C14233	C14233	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - other grade	The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of other cause (O)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1203-C18884	C18884	Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms other text	The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms type' specifying other text. The type of symptoms/conditions that were present and relevant for cardioembolic source	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14246	C14246	Fisher scale	Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13832	C13832	Graeb intraventricular hemorrhage (IVH) scale - left lateral ventricle score	Indicates Graeb IVH Scale - Left lateral ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2834-C18912	C18912	Comfort care measure other text	The free-text field related to 'Comfort care measure type' specifying other text. Describes the types of comfort care the participant/ subject received	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1162-C14254	C14254	Subarachnoid hemorrhage quadrigeminal cistern score	SAH Volume Scale (Hijdra) - Quadrigeminal cistern score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13840	C13840	Subdural hematoma present indicator	Indicates presence of Subdural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C14634	C14634	Extracranial venous thromboembolism type	Type(s) of extracranial venous thromboembolism (VTE) diagnosed with	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13857	C13857	Imaging magnetic resonance based identification core volume type	Indicates magnetic resonance based identification of core volume type	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1199-C13231	C13231	King's Outcome Scale for Childhood Head Injury (KOSCHI) - prognosis category	The category that best describes the child's prognosis by the King's Outcome Scale for Childhood Head Injury (KOSCHI), which is a specific pediatric adaptation of the original adult Glasgow Outcome Scale (GOS)	Supplemental	King's Outcome Scale for Childhood Head Injury (KOSCHI)	False	Stroke	Stroke
F1162-C14263	C14263	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - primary chronic sub type	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: chronic - patients with an initial vascular diagnosis (at 0-1 month) for "Primary Classification: Acute" are given a follow-up diagnosis based on studies obtained at or after 3-6 months that will capture any progression, stability or regression of the arteriopathy	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13851	C13851	Arteriovenous malformation anatomic site	Specifies Location of arteriovenous malformation	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C13831	C13831	Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score	Indicates Graeb IVH Scale - Right lateral ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1152-C52700	C52700	Hypercoagulable disorder type text	The free-text field related to the type of hypercoagulable disorder	Supplemental	Medical History	False	Stroke	Stroke
F1150-C14123	C14123	Country of residence name	Country where the participant/subject currently lives	Exploratory	Demographics	False	Stroke	Stroke
F2838-C14025	C14025	Vasospasm Lindegaard ratio value	Indicates vasospasm lindegaard ratio result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13905	C13905	Imaging contrast agent method type	Indicates imaging contrast agent method of administration	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13898	C13898	Imaging vessel angiography ASITN collateral grade	Indicates vessel angiography ASITN collateral grade	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13816	C13816	Hematoma lobar region epicenter anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in the lobar epicenter region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1165-C14457	C14457	Waist circumference unit of measure	Units used to measure the waist circumference	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13924	C13924	Imaging vertebral origin result	Indicates vertebral origin	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13764	C13764	Imaging brain structures involved anatomic site	Indicates structures involved	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2838-C14036	C14036	Breath-holding index result	Indicates Breath-holding index (BHI) result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C13880	C13880	Digital Subtraction Angiography (DSA) site of access anatomic site	The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.