CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2834-C14280	C14280	Comfort care earliest documentation timepoint type	Timepoint of the earliest documentation of comfort measures only	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1162-C14250	C14250	Subarachnoid hemorrhage Sylvian fissure lateral part score	SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13836	C13836	Fisher grade	Indicates Fisher grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C14630	C14630	Anticoagulant agent in hospital type	Type(s) of anticoagulant agents received during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1162-C14258	C14258	Perinatal stroke type	Indicates the type of clinical stroke suffered by the neonate	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13847	C13847	Imaging shift measurement	Indicates Shift measurement (mm)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C18985	C18985	Antiplatelet agent in hospital other text	The free-text field related to 'Antiplatelet agent in hospital type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13861	C13861	Imaging magnetic resonance based identification perfusion defect method type	Indicates MR based identification of perfusion defect - method used for perfusion processing	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13468	C13468	Stroke Adjudication Worksheet - symptom duration	How long the symptom(s) experienced around the time of the stroke event lasted	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14268	C14268	Sophia time detection type	Time of detection of the stroke event in the participant/subject	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13855	C13855	Abscess anatomic site	The free-text field to specify the location of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C13835	C13835	Graeb intraventricular hemorrhage (IVH) scale - total score	Indicates Graeb IVH Scale - total Score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13812	C13812	Intracerebral hemorrhage volume measurement	Indicates intracerebral hemorrhage (ICH) volume (ABC/2)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13920	C13920	Imaging volume flow rate measurement	Indicates volume flow rate	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C18908	C18908	Diagnosis stroke risk factor new other text	The free-text field related to 'Diagnosis new type' specifying other text. If there were any new diagnoses related to stroke risk factors during hospital stay, describes those risk factors	Supplemental	Hospital Discharge	False	Stroke	Stroke
F2838-C14032	C14032	Vasospasm severity grade	Indicates severity of vasospasm	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1182-C14285	C14285	Therapy or rehabilitation assessment indicator	Indicates if there is documentation that the participant/subject was assessed for rehabilitation services. Rehabilitation is a treatment or treatments designed to facilitate the process of recovery from injury, illness, or disease to as normal a condition as possible	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F2838-C13944	C13944	Imaging color flow indicator	Indicates color flow	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13822	C13822	Spot sign count	The number of "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion. The computed tomogram angiography (CTA) 'spot sign' describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1165-C14538	C14538	Central venous pressure (CVP) unit of measure	Units used to measure the pressure of blood in the central venous system	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13928	C13928	Intima media thickness (IMT) electronic caliper indicator	Indicates intima media thickness (IMT) electronic caliper use	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1159-C14190	C14190	Stroke symptoms discover location type	Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13769	C13769	Imaging planimetric volume value	Indicates acute lesion volume	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.