CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14233 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - other grade

The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of other cause (O)

Supplemental Stroke Types and Subtypes Stroke Stroke
C13831 Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score

Indicates Graeb IVH Scale - Right lateral ventricle score

Supplemental Parenchymal Imaging Stroke Stroke
C14283 Do not resuscitate or intubate (DNR or DNI) earliest documentation timepoint type

Timepoint of earliest documentation of DNR/DNI (Do not resuscitate or Do not intubate) during hospitalization

Supplemental Palliative/Comfort Care and End of Life Issues Stroke Stroke
C14246 Fisher scale

Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging

Supplemental Stroke Types and Subtypes Stroke Stroke
C55346 Microdialysis cerebral probe molecular weight limit value

The field to specify the molecular weight limit for probes used for cerebral microdialysis specimens

Exploratory Biospecimen Collection and Processing Stroke Stroke
C13839 Hijdra scale value

Indicates Hijdra scale - value

Supplemental Parenchymal Imaging Stroke Stroke
C14633 Extracranial venous thromboembolism indicator

Whether the participant/ subject was diagnosed with an extracranial venous thromboembolism (VTE)

Supplemental Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C13751 Imaging acquisition reason

Describes why the imaging study was performed

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C14254 Subarachnoid hemorrhage quadrigeminal cistern score

SAH Volume Scale (Hijdra) - Quadrigeminal cistern score

Supplemental Stroke Types and Subtypes Stroke Stroke
C13191 Walking speed value

Comfortable walking speed is assessed in meters per second (m/sec) and is measured using the time to complete the central 4 meters of a 6 meter line

Supplemental-Highly Recommended Walking Speed Stroke Stroke
C13850 Arteriovenous malformation present indicator

Indicates if arteriovenous malformation is present

Supplemental Parenchymal Imaging Stroke Stroke
C14213 Diagnosis principal discharge code

The principal diagnosis is defined in the Uniform Hospital Discharge Data Set (UHDDS) as "that condition established after study to be chiefly responsible for occasioning the admission of the patient to the hospital for care."

Supplemental-Highly Recommended Hospital Discharge Stroke Stroke
C14024 Vasospasm criterion value

Indicates vasospasm criterion value

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13904 Imaging interpretation offsite media type

Indicates imaging offsite media type

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13897 Imaging vessel angiography collateral status anatomic site

Indicates vessel angiography collateral status location

Supplemental Vessel Imaging Angiography Stroke Stroke
C13815 Hematoma lobar region anatomic site

The site of hematoma, a localized collection of blood outside the blood vessels, in a lobar region

Supplemental Parenchymal Imaging Stroke Stroke
C14449 Hip circumference unit of measure

Units used to measure the hip circumference

Supplemental Vital Signs Stroke Stroke
C13923 Imaging power doppler result

Indicates power doppler result

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C13763 Imaging circulations involved anatomic site

Indicates circulations involved

Supplemental Parenchymal Imaging Stroke Stroke
C14035 VMR response result

Indicates vasomotor response (VMR) response result

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13879 Imaging modality vessel imaging angiography type

Indicates imaging modality for vessel imaging angiography

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C13947 Imaging peak velocity measurement

Indicates peak velocity measurement (cm/sec)

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13825 Spot sign total score

The total score for computed tomogram angiography (CTA) 'spot sign' which describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients

Supplemental Parenchymal Imaging Stroke Stroke
C13931 Intima media thickness (IMT) findings artery type

Indicates intima media thickness (IMT) artery used for mean and max measurements

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C13773 Imaging lesion relative threshold amount text

Indicates acute lesion threshold relative amount

Supplemental Parenchymal Imaging Stroke Stroke
Displaying 301 - 325 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.