CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C14249	C14249	Subarachnoid hemorrhage interhemispheric fissure score	Subarachnoid hemorrhage column scale (Hijdra) for the interhemispheric fissure score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13835	C13835	Graeb intraventricular hemorrhage (IVH) scale - total score	Indicates Graeb IVH Scale - total Score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C14629	C14629	Anticoagulant agent in hospital indicator	Whether the participant/subject received anticoagulant agents during the acute hospital stay, not including venous prophylaxis dose Unfractionated heparin, LMW heparin, etc	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1203-C13473	C13473	Stroke Adjudication Worksheet - not meet WHO definition indicator	The indicator of whether the event is not a stroke according to the WHO definition	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14257	C14257	Childhood stroke type	Indicates the type of clinical stroke suffered by the child	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13843	C13843	Hemorrhagic transformation imaging type	Describes imaging type	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C18984	C18984	Anticoagulant agent in hospital other text	The free-text field related to 'Anticoagulant agent in hospital type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13860	C13860	Imaging magnetic resonance based identification core defect volume measurement	Indicates MR based identification of core defect volume measurement	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13481	C13481	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site	The anatomic location(s) of the hemorrhagic transformation during ischemic infarction	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14267	C14267	Sophia timing sub type	Sophia classification of stroke subtype by timing of stroke	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13854	C13854	Abscess present indicator	The indicator for presence of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C14289	C14289	Adjunctive treatment type	Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1162-C13834	C13834	Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score	Indicates Graeb IVH Scale - Fourth ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13811	C13811	Acute hematoma present indicator	Indicates presence of acute hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13919	C13919	Imaging percent stenosis criterion type	The criteria used to find indicate stenosis	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C14627	C14627	Stroke initial residence or discharge destination type	Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay	Supplemental-Highly Recommended	Hospital Discharge	False	Stroke	Stroke
F2838-C18903	C18903	Vasomotor response (VMR) vessel anatomic other text	The free-text field related to 'Vasomotor response (VMR) vessel anatomic site' specifying other text. Indicates vasomotor response (VMR) vessel type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1182-C14284	C14284	Resource Utilization Group Version IV (RUG IV) - alpha-numeric code	Indicates the Resource Utilization Group Version IV (RUG IV). Medicare pays skilled nursing facilities (SNFs) under a Prospective Payment System (PPS). PPS payments are per diem rates based on the patient's condition as determined by classification into a specific Resource Utilization Group (RUG). This classification is done by the use of a clinical assessment tool, the Minimum Data Set (MDS) and is required to be performed periodically according to an established schedule for purposes of Medicare payment. Each MDS represents the patient's clinical status based on an assessment reference date and established look back periods for the covered days associated with that MDS	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F2838-C13957	C13957	High intensity transient signal hits intensity value	Indicates high intensity transient signal hits intensity value (dB)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13821	C13821	Spot sign positive indicator	The positive indicator for computed tomogram angiography (CTA) 'spot sign' which describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1165-C14537	C14537	Central venous pressure (CVP) measurement	A measurement of the pressure of blood in the central venous system, abbreviated as CVP	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13927	C13927	Intima media thickness (IMT) B Mode guided M mode indicator	Indicates intima media thickness (IMT) B mode guided M mode	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13768	C13768	Imaging additional vascular result	Indicates additional vascular imaging findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C13514	C13514	Consciousness findings result	Assess consciousness using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.