CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 1543
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13862 Imaging magnetic resonance based identification perfusion defect volume type

Indicates MR based identification of perfusion defect volume type

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13473 Stroke Adjudication Worksheet - not meet WHO definition indicator

The indicator of whether the event is not a stroke according to the WHO definition

Supplemental Stroke Adjudication Form Stroke Stroke
C14269 Sophia signs symptoms presentation type

Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C14049 Imaging lesion absolute threshold amount text

Indicates acute lesion threshold absolute amount

Supplemental Parenchymal Imaging Stroke Stroke
C14219 Clinical stroke time-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C13870 Imaging perfusion computed tomography based identification core method type

Indicates perfusion CT (PCT) based identification of core method used for penumbra calculation

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13481 Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site

The anatomic location(s) of the hemorrhagic transformation during ischemic infarction

Supplemental Stroke Adjudication Form Stroke Stroke
C19077 Sophia imaging stroke composite diagnosis method other text

The free-text field related to 'Imaging stroke composite diagnosis method type' specifying other text. Imaging method at detection. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C14230 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - atherothrombotic grade

The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A)

Supplemental Stroke Types and Subtypes Stroke Stroke
C13516 Hand strength findings result

Assess hand strength/ motor power on the affected side using the Scandinavian Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C18903 Vasomotor response (VMR) vessel anatomic other text

The free-text field related to 'Vasomotor response (VMR) vessel anatomic site' specifying other text. Indicates vasomotor response (VMR) vessel type

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13957 High intensity transient signal hits intensity value

Indicates high intensity transient signal hits intensity value (dB)

Supplemental Vessel Imaging Transcranial Stroke Stroke
C14274 Smoking cessation treatment indicator

For patients who have smoked at least one cigarette within the past year (Joint Commission definition) or who vape, indicates whether the patient received counseling to stop smoking/vaping or smoking cessation advice during the hospitalization as documented in progress notes or physician orders at discharge or admissions

Supplemental Lifestyle Modification Therapies Stroke Stroke
C13947 Imaging peak velocity measurement

Indicates peak velocity measurement (cm/sec)

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C14625 Hospital arrival date and time

Date (and time, if applicable and known) the participant/subject arrived at the hospital

Supplemental-Highly Recommended Hospital Arrival/Admission Stroke Stroke
C14401 Intra-arterial (IA) procedure initiated indicator

Indicates whether an Intra-arterial (IA) procedure was initiated for participant/ subject at this hospital

Supplemental-Highly Recommended Thrombolytic/Reperfusion Therapies Stroke Stroke
C14202 Emergency Medical Services (EMS) dispatch priority type

For EMS systems where there is prioritizing of calls, this item would capture what level of prioritization was assigned to the transport at dispatch

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C14006 Imaging stenosis percentage value

Indicates stenosis percentage value

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13797 Modified Scheltens scale occipital caps score

Indicates Modified Scheltens scale - Occipital caps score

Supplemental Parenchymal Imaging Stroke Stroke
C14409 Intra-sinus intervention groin puncture date and time

Date (and time, if applicable and known) of groin puncture on the participant/ subject for intra-sinus intervention

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C13904 Imaging interpretation offsite media type

Indicates imaging offsite media type

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C14211 Los Angeles Motor Scale (LAMS) - arm strength result

Assess the arm strength using the Los Angeles Motor Scale (LAMS). Check all that apply

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C14151 Pregnancy medical terminations count

Number of medical terminations (abortions)

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C14014 Intracranial stenosis other criteria result

Other criteria for intracranial stenosis

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13880 Digital Subtraction Angiography (DSA) site of access anatomic site

The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment

Supplemental Vessel Imaging Angiography Stroke Stroke
Displaying 251 - 275 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.