CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C14221	C14221	Clinical stroke time-based definition type	Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TIA	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F2838-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13884	C13884	Imaging vessel angiography arterial anatomic site	Indicates vessel imaging angiography arterial findings location	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1173-C13916	C13916	Imaging color flow angle measurement	Indicates color flow angle (degrees)	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14026	C14026	Intracranial pressure imaging result	Indicates intracranial pressure (ICP) imaging result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1162-C14232	C14232	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - cardioembolic grade	The grade of cardioembolism, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of cardiac source (C)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2838-C13941	C13941	Imaging insonation plane type	Indicates insonation plane	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C18888	C18888	Imaging acquisition reason other text	The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1173-C13925	C13925	Imaging vertebral interosseous result	Indicates vertebral interosseous	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1182-C14290	C14290	Location post-acute stroke discharge type	Indicates the participant's/subject's location of acute hospital discharge for the index stroke/transient ischemic attack (TIA)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1158-C14203	C14203	Emergency Medical Services (EMS) dispatch type code	For EMS systems where there is use of a designated stroke dispatch code, this item would capture what code was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C13791	C13791	Fazekas scale deep white matter score	Indicates the Fazekas scale deep white matter score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1203-C18886	C18886	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic other text	The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site' specifying other text. The anatomic location(s) of the hemorrhagic transformation during ischemic infarction	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1171-C13834	C13834	Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score	Indicates Graeb IVH Scale - Fourth ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1158-C14622	C14622	Los Angeles Motor Scale (LAMS) - facial smile or grimace abnormal type	Type of abnormal facial smile or grimace observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C13799	C13799	Modified Scheltens scale periventricular bands score	Indicates Modified Scheltens scale - Periventricular bands score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C58885	C58885	Supportive medical equipment type	If the participant/ subject was provided with any supportive medical equipment, describes the type(s) of equipment received	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
F1171-C13842	C13842	Hemorrhagic transformation present indicator	Indicates presence of Hemorrhagic Transformation	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13807	C13807	Imaging magnetic resonance imaging leukoariaiosis volumetric measurement	Indicates MRI volumetric measure (cc)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C14213	C14213	Diagnosis principal discharge code	The principal diagnosis is defined in the Uniform Hospital Discharge Data Set (UHDDS) as "that condition established after study to be chiefly responsible for occasioning the admission of the patient to the hospital for care."	Supplemental-Highly Recommended	Hospital Discharge	False	Stroke	Stroke
F1178-C14638	C14638	Antithrombotic therapy not prescribed reason	Reason(s) for not prescribing antithrombotic therapy (i.e., no anticoagulant or antiplatelet agents), documented by a physician, advance practice nurse or physician assistant	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13859	C13859	Imaging magnetic resonance based identification core value abnormality result	Result of magnetic resonance based identification of core value of abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13466	C13466	Stroke Adjudication Worksheet - type	Whether the participant/subject presented with neurologic symptoms	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1171-C13853	C13853	Tumor anatomic site	Specifies location of tumor	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13815	C13815	Hematoma lobar region anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in a lobar region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.