CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 1543
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13834 Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score

Indicates Graeb IVH Scale - Fourth ventricle score

Supplemental Stroke Types and Subtypes Stroke Stroke
C18888 Imaging acquisition reason other text

The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C14624 Los Angeles Motor Scale (LAMS) - arm strength abnormal type

Type of abnormal arm strength observed during administration of the Los Angeles Motor Scale (LAMS)

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C13804 Age-related white matter changes (ARWMC) scale - infratentorial cerebellum score

The infratentorial/cerebellum score from the age-related white matter changes (ARWMC) scale

Supplemental Parenchymal Imaging Stroke Stroke
C14000 Extracranial stenosis present indicator

Indicates presence of extracranial stenosis

Supplemental Vessel Imaging Transcranial Stroke Stroke
C14449 Hip circumference unit of measure

Units used to measure the hip circumference

Supplemental Vital Signs Stroke Stroke
C18892 Imaging percent stenosis criterion other text

The free-text field related to 'Imaging percent stenosis criterion type' specifying other text. The criteria used to find indicate stenosis

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C14404 Intra-arterial (IA) catheter-based reperfusion initiated date and time

Date (and time, if applicable and known) of last intra-arterial (IA) catheter-based reperfusion initiated for the participant/ subject at this hospital or ED

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C13899 Imaging probe type text

The text describing the type of imaging probe

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C13812 Intracerebral hemorrhage volume measurement

Indicates intracerebral hemorrhage (ICH) volume (ABC/2)

Supplemental Parenchymal Imaging Stroke Stroke
C14009 Imaging window quality result

Indicates window quality result for all categories

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13751 Imaging acquisition reason

Describes why the imaging study was performed

Supplemental Parenchymal Imaging Stroke Stroke
C13518 Upper limb tone findings result

Assess tone of upper limbs on the affected side using the Orgogozo Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C18927 IV tPA not started other text

The free-text field related to 'IV tPA not started reason' specifying other text. If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C13907 Imaging B-mode finding result

Indicates B-mode finding

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C13822 Spot sign count

The number of "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion. The computed tomogram angiography (CTA) 'spot sign' describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients

Supplemental Parenchymal Imaging Stroke Stroke
C14020 Sickle cell disease vessel anatomic site

Indicates sickle cell vessel

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13769 Imaging planimetric volume value

Indicates acute lesion volume

Supplemental Parenchymal Imaging Stroke Stroke
C13901 Imaging patient type

Indicates imaging patient type

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13915 Imaging plaque thickness measurement

Indicates plaque thickness

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C14195 Hospital point of origin for admission or visit type

Documents whether the patient originated from the community or was transferred from one hospital to the study hospital

Supplemental Hospital Arrival/Admission Stroke Stroke
C14032 Vasospasm severity grade

Indicates severity of vasospasm

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13245 National Institutes of Health Stroke Scale (NIHSS) - severity total score

The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C14285 Therapy or rehabilitation assessment indicator

Indicates if there is documentation that the participant/subject was assessed for rehabilitation services. Rehabilitation is a treatment or treatments designed to facilitate the process of recovery from injury, illness, or disease to as normal a condition as possible

Supplemental Rehabilitation Therapies Stroke Stroke
C13786 Imaging chronic infarct present indicator

Indicates presence of chronic infarct(s)

Supplemental Parenchymal Imaging Stroke Stroke
Displaying 251 - 275 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.