CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2838-C13947	C13947	Imaging peak velocity measurement	Indicates peak velocity measurement (cm/sec)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C18891	C18891	Imaging vessel angiography collateral status anatomic other text	The free-text field related to 'Imaging vessel angiography collateral status anatomic site' specifying other text. Indicates vessel angiography collateral status location	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13819	C13819	Perihematomal edema volume measurement	Indicates perihematomal edema volume (cc)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1165-C14464	C14464	Waist-hip ratio value	A measurement of the ratio of the body circumference at the level of the hips and the level of the waist	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13926	C13926	Intima media thickness (IMT) B mode indicator	Indicates intima media thickness (IMT) B mode	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13767	C13767	Imaging vascular Territory location of acute infarct name	Indicates the vascular territory location of the acute infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C13513	C13513	Mini-Mental State Examination (MMSE) - total score	Total score for the Mini-Mental State Examination (MMSE). The MMSE is a brief, quantitative measure of cognitive status in adults. It can be used to screen for cognitive impairment, to estimate the severity of cognitive impairment at a given point in time, to follow the course of cognitive changes in an individual over time, and to document an individual's response to treatment. The MMSE has demonstrated validity and reliability in psychiatric, neurologic, geriatric, and other medical populations	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F2838-C18900	C18900	Intracranial stenosis collateral vessel anatomic other text	The free-text field related to 'Intracranial stenosis collateral vessel anatomic site' specifying other text. Indicates intracranial stenosis collateral vessel(s)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13955	C13955	Imaging transcranial color-coded sonography symptomatic indicator	Indicates symptomatic presentation by Transcranial Color-Coded Sonography (TCCS)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13828	C13828	Microbleed present indicator	Indicates presence of microbleeds	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13934	C13934	Intima media thickness (IMT) max near-wall measurement	Indicates max intima media thickness (IMT) near-wall measurement (mm)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1159-C14197	C14197	Hospital care upon admission type	Where the patient was cared for and by whom (Where was the patient cared for and by what service?)	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13776	C13776	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) territory segment score	The Alberta Stroke Program Early CT score (ASPECTS) score for the middle cerebral artery (MCA) territory segment assessed	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14398	C14398	IV tissue plasminogen activator (tPA) total dose	Indicates the dose of IV tissue plasminogen activator (tPA) given to the participant/subject in mg	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1164-C13522	C13522	Monocular visual loss status	Whether the participant/subject has monocular visual loss at bedside assessment	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F2838-C14003	C14003	Imaging brain death present indicator	Indicates presence of brain death	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13794	C13794	Modified Scheltens scale parietal score	Indicates Modified Scheltens scale - Parietal score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14406	C14406	Intra-arterial (IA) catheter-based reperfusion other hospital indicator	Indicates whether intra-arterial (IA) catheter-based reperfusion was initiated for the participant/subject at an outside hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13901	C13901	Imaging patient type	Indicates imaging patient type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14208	C14208	Pre-hospital neurological impairment scale indicator	Whether a pre-hospital neurologic impairment scale screen was documented by EMS personnel. Pre-hospital neurologic impairment scales are defined as published validated scales or those required by state EMS agencies (e.g., GCS for suspected hemorrhagic stroke or any stroke with impaired consciousness, Los Angeles Motor Scale, etc.)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14012	C14012	Intracranial stenosis peak systolic velocity (PSV) criterion result	Indicates intracranial stenosis peak systolic velocity (PSV) criterion	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13802	C13802	Age-related white matter changes (ARWMC) scale - parieto-occipital score	The parieto-occipital score age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13909	C13909	Imaging plaque surface type	Indicates plaque surface type	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14024	C14024	Vasospasm criterion value	Indicates vasospasm criterion value	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.