CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 26 - 50 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C55344	Microdialysis cerebral probe location anatomic site	Free-text field to describe the location of the probe for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C13476	Stroke Adjudication Worksheet - stroke TIA symptoms type	The type of symptoms/conditions that were present and relevant for ischemic stroke subtype	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
C14251	Subarachnoid hemorrhage basal part score	SAH Volume Scale (Hijdra) - Basal part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C13837	Modified Fisher scale grade	Indicates modified Fisher Scale grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13143	Stroke Specific Quality of Life Scale (SS-QOL) - not join family roles scale	The scale for not joining activities for fun with family based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C13484	Stroke Adjudication Worksheet - death indicator	The indicator if person died during hospitalization after stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
C14259	Pediatric Stroke Classification (PSC) - sub type	Pediatric Stroke Classification (PSC) system (Wraige, 2005) subtype	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C13848	Hydrocephalus present indicator	Indicates if hydrocephalus is present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C13803	Age-related white matter changes (ARWMC) scale - temporal score	The temporal score for age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13151	Stroke Specific Quality of Life Scale (SS-QOL) - walking mobility scale	The scale for having trouble walking based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C13192	Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke status	Were you ever told by a physician that you had a stroke?	Supplemental	Questionnaire for Verifying Stroke-Free Status (QVSFS)	True	Stroke	Stroke
C14049	Imaging lesion absolute threshold amount text	Indicates acute lesion threshold absolute amount	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13890	Qureshi angiographic occlusions category	The score based on scheme that categorizes patients with ischemic stroke based on findings observed on initial angiography (the Qureshi angiographic occlusions scale score)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C14219	Clinical stroke time-based definition indicator	Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
C13811	Acute hematoma present indicator	Indicates presence of acute hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14281	Comfort care measure type	Describes the types of comfort care the participant/ subject received	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
C13159	Stroke Specific Quality of Life Scale (SS-QOL) - withdrawn mood scale	The scale for felt withdrawn from other people based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C13200	Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke result	Whether patient is stroke free (all QVSFS items negative) or not stroke free (at least 1 QVSFS item positive)	Supplemental	Questionnaire for Verifying Stroke-Free Status (QVSFS)	True	Stroke	Stroke
C14289	Adjunctive treatment type	Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C13462	Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - cognitive or behavioral deficit scale	The scale for cognitive or behavioral deficit based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003)	Supplemental	Pediatric Stroke Outcome Measure Short Neuro Exam (PSOM-SNE) - Infant Version (Infants Term Birth to Two Years)	True	Stroke	Stroke
C13217	Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - date recall scale	Compared with 10 years ago how is this person at remembering what day and month it is	Supplemental	Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE)	True	Stroke	Stroke
C13230	Modified Rankin Scale (mRS) Score	The overall modified Rankin Scale (mRS) score assigned to the participant/ subject	Supplemental-Highly Recommended	Modified Rankin Scale (mRS)	True	Stroke	Stroke
C13929	Intima media thickness (IMT) edge detection algorithm indicator	Indicates intima media thickness (IMT) edge detection algorithm use	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
C13770	Imaging acute lesion count	Indicates acute lesion count	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

Displaying 26 - 50 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.