CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1160-C14188	C14188	Neonatal level of consciousness type	Type of abnormal level of consciousness of the neonate	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1158-C14623	C14623	Los Angeles Motor Scale (LAMS) - grip abnormal type	Type of abnormal grip observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C14622	C14622	Los Angeles Motor Scale (LAMS) - facial smile or grimace abnormal type	Type of abnormal facial smile or grimace observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C14624	C14624	Los Angeles Motor Scale (LAMS) - arm strength abnormal type	Type of abnormal arm strength observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1180-C58801	C58801	Stroke surgical operative preventive treatment type	Type of surgical/operative preventative treatment the participant/ subject received or was evaluated and scheduled for as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2827-C54756	C54756	Injection site laterality type	Type for the side of the body to which an injection was administered	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1182-C58880	C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F2828-C54256	C54256	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Recall Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2828-C54247	C54247	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story memory total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Memory Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2828-C54251	C54251	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Semantic fluency total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Semantic Fluency Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2828-C54250	C54250	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Picture naming total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Picture Naming Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2828-C54255	C54255	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recognition total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recognition Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2828-C54254	C54254	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recall total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recall Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2828-C54246	C54246	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List learning total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Learning Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2828-C54249	C54249	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Line orientation total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Line Orientation Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2828-C54257	C54257	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure recall total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Recall Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2828-C54248	C54248	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure copy total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Copy Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2828-C54252	C54252	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Digit span total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Digit Span Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2828-C54253	C54253	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Coding total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Coding Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2032-C07440	C07440	Patient Health Questionnaire - (PHQ) - Depression questionnaire total score	Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F1164-C13513	C13513	Mini-Mental State Examination (MMSE) - total score	Total score for the Mini-Mental State Examination (MMSE). The MMSE is a brief, quantitative measure of cognitive status in adults. It can be used to screen for cognitive impairment, to estimate the severity of cognitive impairment at a given point in time, to follow the course of cognitive changes in an individual over time, and to document an individual's response to treatment. The MMSE has demonstrated validity and reliability in psychiatric, neurologic, geriatric, and other medical populations	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F2832-C13212	C13212	Generalized Anxiety Disorder (GAD-7) - total score	Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2828-C54268	C54268	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Total scale index score	Total scale index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2008-C54070	C54070	Delis-Kaplan Executive Function System (DKEFS) - Error total raw score	Total raw score calculated as the sum of raw scores of Sequencing Errors, Set-Loss Errors and Time-Discontinue Errors in Condition 4 (Number-Letter Switching), as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1155-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.