CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

1543 results.

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Operations

Selected 18 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1154-C58939	C58939	Tobacco cigarette use started age value	Age in years when participant/subject started using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C00702	C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Stroke	Stroke
F1206-C54993	C54993	Cocaine exposure age end value	Age in years at which the subject/participant's exposure to cocaine ended	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1206-C54997	C54997	Potency enhancing drug former use age end value	Age in years at which the subject/participant stopped taking the specified potency-enhancing drug	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1206-C54989	C54989	Stimulant former use age end value	Age in years at which the subject/participant stopped taking the selected former stimulant	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1206-C54996	C54996	Potency enhancing drug current former use age start value	Age in years at which the subject/participant began taking the specified former or current potency-enhancing drug	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1206-C54988	C54988	Stimulant current former use age start value	Age in years at which the subject/participant began taking the selected former or current stimulant	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1206-C54992	C54992	Cocaine exposure age start value	Age in years at which the subject/participant began exposure to cocaine	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1174-C02487	C02487	Vascular dissection findings type	Additional associated findings about the vascular dissection	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1164-C13521	C13521	Gait walk unassisted result	Ability of the participant/subject to walk multiple steps unassisted	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F2567-C07426	C07426	PTSD Checklist Civilian (PCL-C) - Total score	A total score (range 17-85) can be obtained by summing the scores from each of the 17 items, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1150-C14124	C14124	Social security number	A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government	Supplemental	Demographics	False	Stroke	Stroke
F1165-C14464	C14464	Waist-hip ratio value	A measurement of the ratio of the body circumference at the level of the hips and the level of the waist	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C14537	C14537	Central venous pressure (CVP) measurement	A measurement of the pressure of blood in the central venous system, abbreviated as CVP	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C14428	C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C14458	C14458	Hip circumference measurement	A measurement of the body circumference at the level of the hip. It should be the hip circumference at its widest part of the buttocks or hip	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C14541	C14541	Systemic vascular resistance measurement	A measurement of the arteriolar constriction throughout the body	Supplemental	Vital Signs	False	Stroke	Stroke

1543 results.

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.