CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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CRF Name

Displaying 26 - 50 of 1543

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1169-C58407	C58407	Blood collection tube volume value	Volume of blood collection tube	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C14270	C14270	Sophia stroke vessels affected type	Vessel(s) affected by the stroke event. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1152-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Stroke	Stroke
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Stroke	Stroke
F1165-C01554	C01554	Oxygen saturation measurement	Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1155-C10559	C10559	Spontaneous miscarriage count	Value representing the number of times the participant/subject has had miscarriages or spontaneous abortions, including all trimesters	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1152-C10539	C10539	Diabetes first diagnosis age value	Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus	Supplemental	Medical History	False	Stroke	Stroke
F1171-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2822-C54722	C54722	Death age value	Value of the subject/participant's age at death	Supplemental	Death	False	Stroke	Stroke
F2827-C54730	C54730	Aneurysm size ratio value	Value of the size ratio of the aneurysm being described, calculated as the largest height divided by the largest diameter of parent artery	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1174-C54773	C54773	Imaging aneurysm shear concentration index value	Value of the shear concentration index of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1056-C12850	C12850	Cardiac MRI left ventricle non-compaction ratio value	Value of the ratio of noncompacted left ventricle myocardial thickness to compacted left ventricle myocardial thickness at the end of diastole	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F1174-C54774	C54774	Imaging aneurysm low wall shear stress percent value	Value of the percentage of the aneurysm that is under low wall shear stress (WSS)	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1165-C11131	C11131	Body mass index value	Value of the participant's body mass index, calculated from height and weight	Supplemental	Vital Signs	False	Stroke	Stroke
F1174-C54775	C54775	Imaging aneurysm oscillatory shear stress mean value	Value of the mean oscillatory shear stress of the aneurysm, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C54777	C54777	Imaging aneurysm inflow concentration index value	Value of the inflow concentration index of the aneurysm, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2827-C54731	C54731	Aneurysm bottleneck factor value	Value of the bottleneck factor of the aneurysm being described, calculated as the largest width of the aneurysm divided by the largest width of the aneurysm neck	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1174-C54729	C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2827-C54729	C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1174-C54757	C54757	Imaging aneurysm dome size value	Value of the aneurysm dome size determined by imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C54762	C54762	Imaging aneurysm occlusion percent value	Value of percentage of aneurysm that is occluded, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1172-C13875	C13875	Imaging perfusion computed tomography based identification perfusion defect value	Value of PCT based identification of perfusion defect abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1172-C13864	C13864	Imaging magnetic resonance based identification perfusion defect value	Value of MR based identification of perfusion defect abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1152-C22679	C22679	Medical history first depressive episode diagnosis age value	Value of a participant's/subject's age when first depressive episode was diagnosed	Exploratory	Medical History	False	Stroke	Stroke
F1165-C14457	C14457	Waist circumference unit of measure	Units used to measure the waist circumference	Supplemental	Vital Signs	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.