CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0936-C10772	C10772	Echocardiogram left atrial antero - posterior dimension z-score	Z-score calculated for the left atrial antero - posterior dimension measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F2380-C10772	C10772	Echocardiogram left atrial antero - posterior dimension z-score	Z-score calculated for the left atrial antero - posterior dimension measured with echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1162-C14256	C14256	World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale	World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1155-C11067	C11067	Pregnancy or delivery risk factor indicator	Whether the specific risk factor to the participant's/subject's health was experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1203-C14053	C14053	Stroke Adjudication Worksheet - neuroimaging single CT stroke finding indicator	Whether the single brain CT scan was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1182-C58879	C58879	Assistive device use indicator	Whether the participant/subject uses an assistive device (e.g., wheelchair)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1178-C14631	C14631	Antiplatelet agent in hospital indicator	Whether the participant/subject received antiplatelet agents during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C14629	C14629	Anticoagulant agent in hospital indicator	Whether the participant/subject received anticoagulant agents during the acute hospital stay, not including venous prophylaxis dose Unfractionated heparin, LMW heparin, etc	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1203-C13466	C13466	Stroke Adjudication Worksheet - type	Whether the participant/subject presented with neurologic symptoms	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1152-C15629	C15629	Postpartum indicator	Whether the participant/subject is currently in her postpartum phase, after pregnancy phase, of pregnancy	Supplemental-Highly Recommended	Medical History	False	Stroke	Stroke
F1164-C13522	C13522	Monocular visual loss status	Whether the participant/subject has monocular visual loss at bedside assessment	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1157-C11085	C11085	Developmental and academic history indicator	Whether the participant/subject has a history of the specific aspect of the pre-morbid developmental status or academic function	Supplemental	Prior Functional Status	False	Stroke	Stroke
F1178-C14633	C14633	Extracranial venous thromboembolism indicator	Whether the participant/ subject was diagnosed with an extracranial venous thromboembolism (VTE)	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1203-C14054	C14054	Stroke Adjudication Worksheet - neuroimaging multiple CT stroke finding indicator	Whether the multiple brain CTs separated in time was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1203-C14055	C14055	Stroke Adjudication Worksheet - neuroimaging MRI stroke finding indicator	Whether the MRI was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1203-C13471	C13471	Stroke Adjudication Worksheet - neuroimaging DWI stroke finding indicator	Whether the DWI was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1179-C14411	C14411	Investigational or experimental protocol for thrombolysis indicator	Whether medical records suggest some kind of investigational thrombolytic protocol was used during provision of care	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F0936-C10723	C10723	Echocardiogram completed indicator	Whether an echocardiogram was performed on the participant/subject	Supplemental	Echocardiogram	False	Stroke	Stroke
F1158-C14208	C14208	Pre-hospital neurological impairment scale indicator	Whether a pre-hospital neurologic impairment scale screen was documented by EMS personnel. Pre-hospital neurologic impairment scales are defined as published validated scales or those required by state EMS agencies (e.g., GCS for suspected hemorrhagic stroke or any stroke with impaired consciousness, Los Angeles Motor Scale, etc.)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C14207	C14207	Pre-hospital stroke identification screen indicator	Whether a pre-hospital identification stroke screen was documented by EMS personnel. Pre-hospital stroke identification screens are defined as published validated screening algorithms or those required by state EMS agencies (e.g., LAPSS, CPSS, MASS, etc.)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1159-C14194	C14194	Hospital not admitted but transferred to another acute care hospital indicator	Whether a patient presented to the Emergency Department of the study hospital and was transferred to an outside hospital. Was patient evaluated in the ED for acute Stroke or TIA and subsequently transferred to another acute care hospital rather than being admitted to your hospital?	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C14190	C14190	Stroke symptoms discover location type	Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C14197	C14197	Hospital care upon admission type	Where the patient was cared for and by whom (Where was the patient cared for and by what service?)	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1163-C14215	C14215	Diagnosis stroke risk factor new indicator	Were there any new diagnoses (i.e., diagnosed for the first time) related to stroke risk factors during the hospital stay?	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1159-C14199	C14199	Stroke complication of medical/ surgical procedure or therapy likelihood type	Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)	Exploratory	Hospital Arrival/Admission	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.