CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Displaying 301 - 325 of 1543

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C58921	C58921	Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 2 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C18909	C18909	Intracerebral hemorrhage presumed cause other text	The free-text field related to 'Intracerebral hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14224	C14224	Acute ischemic cerebrovascular syndrome (AICS) - stroke sub type	Ischemic stroke subtype based on the acute ischemic cerebrovascular syndrome (AICS) classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58894	C58894	Clinical stroke time based Intracerebral hemorrhage laterality type	Indicate the laterality of the intracerebral hemorrhage	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14234	C14234	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - diagnostic evidence level type	Levels of diagnostic evidence for the ASCO Grades	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58907	C58907	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - small vessel grade	The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of small-vessel disease (S)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14247	C14247	Modified fisher scale	Modified Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14255	C14255	Subarachnoid hemorrhage volume total measurement	Subarachnoid hemorrhage (SAH) volume scale (Hijdra) - total amount of subarachnoid blood. Sum of the scores of the 10 basal cisterns and fissures	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14265	C14265	NIH Ischemic Perinatal Stroke (IPS) - sub type	Subtype based on the Ischemic Perinatal Stroke (IPS) Workshop sponsored by NIH in 2007	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C13832	C13832	Graeb intraventricular hemorrhage (IVH) scale - left lateral ventricle score	Indicates Graeb IVH Scale - Left lateral ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58914	C58914	Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy primary diagnosis subtype classification status	The status of arteriopathy primary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58922	C58922	Focal Cerebral Arteriopathy Severity Score (FCASS) - baseline score	Score related to the baseline sum of the five individual arterial segment scores (without weighting), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C18910	C18910	Intraventricular hemorrhage presumed cause other text	The free-text field related to 'Intraventricular hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14225	C14225	Trial of ORG 10172 in Acute Stroke Treatment (TOAST) - ischemic stroke sub type	Ischemic Stroke Subtype based on the Trial of ORG 10172 in Acute Stroke Treatment (TOAST) Classification System	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58895	C58895	Clinical stroke tissue based ischemic stroke laterality type	Indicate the laterality of the ischemic stroke	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14235	C14235	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - sub type	Stroke Subtype as defined by the A-S-C-O pattern (e.g., A1-S3-C1-O3)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58908	C58908	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - cardioembolic grade	The grade of cardiac pathology, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of cardiac pathology (C)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14248	C14248	Ogilvy subarachnoid hemorrhage grade	Ogilvy comprehensive grading system for classifying severity of SAH. In the system, 1 point is assigned for Hunt and Hess Grade 4 or 5, Fisher Scale score of 3 or 4, aneurysm size greater than 10 mm, patient age older than 50 years, and if the lesion is a giant (>= 25 mm) posterior circulation lesion. By adding the total points, the 5-point grading system is obtained	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14256	C14256	World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale	World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14266	C14266	Sophia vessel sub type	Sophia classification of stroke subtype by vessel affected	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C13833	C13833	Graeb intraventricular hemorrhage (IVH) scale - third ventricle score	Indicates Graeb IVH Scale - Third ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58915	C58915	Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy secondary diagnosis subtype classification status	The status of arteriopathy secondary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58923	C58923	Focal Cerebral Arteriopathy Severity Score (FCASS) - delta point score code	The score code which represents the change in severity of focal cerebral arteriopathy at the time of follow-up score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C13834	C13834	Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score	Indicates Graeb IVH Scale - Fourth ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C18911	C18911	Subarachnoid hemorrhage etiology other text	The free-text field related to 'Subarachnoid hemorrhage etiology type' specifying other text. Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.