CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1949-C54091	C54091	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Difference scaled score	Scaled score difference, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1179-C14397	C14397	IV tPA initiated date and time	If Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, indicates the date and time IV tPA was initiated at this hospital or ED (time of bolus administration)	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14405	C14405	Intervention mechanical or pharmacological end time	The end time for mechanical, pharmacologic intervention for the participant/subject	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C58579	C58579	Investigational or experimental protocol for thrombolysis text	Free-text field to specify what type of investigational thrombolytic protocol was used during provision of care	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C58852	C58852	IV tPA not started MRI selection treatment beyond 4.5 hour reason	If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Exploratory	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14398	C14398	IV tissue plasminogen activator (tPA) total dose	Indicates the dose of IV tissue plasminogen activator (tPA) given to the participant/subject in mg	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14406	C14406	Intra-arterial (IA) catheter-based reperfusion other hospital indicator	Indicates whether intra-arterial (IA) catheter-based reperfusion was initiated for the participant/subject at an outside hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C58857	C58857	Angiographic image last date and time	Date (and time, if applicable and known) of last angiographic image for the participant/subject	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14399	C14399	IV tPA not started reason	If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14407	C14407	Intra-sinus intervention indicator	Indicates whether the participant/subject received any intra-sinus (i.e., for cerebral venous thrombosis) intervention	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14400	C14400	IV tPA at another hospital indicator	Indicates whether IV tPA was initiated for the participant/subject at an outside hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14408	C14408	Intra-sinus procedure type	If intra-sinus (i.e., for cerebral venous thrombosis) intervention was received, specifies the type of intra-sinus procedure performed on the participant/subject at this hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14401	C14401	Intra-arterial (IA) procedure initiated indicator	Indicates whether an Intra-arterial (IA) procedure was initiated for participant/ subject at this hospital	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14409	C14409	Intra-sinus intervention groin puncture date and time	Date (and time, if applicable and known) of groin puncture on the participant/ subject for intra-sinus intervention	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14402	C14402	Intra-arterial (IA) procedure type	If intra-arterial (IA) procedure was initiated, describes the type of intra-arterial (IA) procedure performed on participant/ subject at this hospital	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14410	C14410	Intra-sinus intervention initiated date and time	Date (and time, if applicable and known) intra-sinus (IS) intervention (i.e., for cerebral venous thrombosis) was initiated at this hospital or ED	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14403	C14403	Intra-arterial (IA) procedure groin puncture date and time	Date (and time, if applicable and known) of groin puncture on the participant/ subject for the intra-arterial (IA) procedure	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14411	C14411	Investigational or experimental protocol for thrombolysis indicator	Whether medical records suggest some kind of investigational thrombolytic protocol was used during provision of care	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14396	C14396	IV tPA initiated status	Indicates whether Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject at your hospital	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C14404	C14404	Intra-arterial (IA) catheter-based reperfusion initiated date and time	Date (and time, if applicable and known) of last intra-arterial (IA) catheter-based reperfusion initiated for the participant/ subject at this hospital or ED	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C18927	C18927	IV tPA not started other text	The free-text field related to 'IV tPA not started reason' specifying other text. If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F2370-C53900	C53900	Stroop Color and Word Test (SCW) - Color raw score	Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F2370-C53952	C53952	Stroop Color and Word Test (SCW) - Interference T score	Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F2370-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Stroop Test	True	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.