CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 18 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1165-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Core	Vital Signs	False	Stroke	Stroke
F1165-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1165-C14538	C14538	Central venous pressure (CVP) unit of measure	Units used to measure the pressure of blood in the central venous system	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C11131	C11131	Body mass index value	Value of the participant's body mass index, calculated from height and weight	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C14539	C14539	Cardiac output measurement	The measurement of volume of blood pumped by the heart per minute. The recommended unit for recording cardiac output is liters per minute (LPM)	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Core	Vital Signs	False	Stroke	Stroke
F1165-C01554	C01554	Oxygen saturation measurement	Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1165-C14428	C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C14540	C14540	Pulmonary artery wedge pressure measurement	Pulmonary artery wedge pressure (PAWP) or pulmonary capillary wedge pressure (PCWP) is the intravascular pressure as measured by a catheter wedged into the distal pulmonary artery. It is used to measure indirectly the mean left atrial pressure	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1165-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C14449	C14449	Hip circumference unit of measure	Units used to measure the hip circumference	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C14541	C14541	Systemic vascular resistance measurement	A measurement of the arteriolar constriction throughout the body	Supplemental	Vital Signs	False	Stroke	Stroke
F1197-C13190	C13190	Walking time duration	Time in seconds to complete the central 4 meters of a 6 meter line at a comfortable walking pace	Supplemental-Highly Recommended	Walking Speed	False	Stroke	Stroke
F1197-C13191	C13191	Walking speed value	Comfortable walking speed is assessed in meters per second (m/sec) and is measured using the time to complete the central 4 meters of a 6 meter line	Supplemental-Highly Recommended	Walking Speed	False	Stroke	Stroke

1543 results.

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.