CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

 Supplemental Death False Stroke Stroke
C04807 Vital status

Status of participant/subject as alive or dead

 Core Death False Stroke Stroke
C08151 Diagnosis final clinical death date

Date of participant's/subject's final clinical diagnosis

 Supplemental Death False Stroke Stroke
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core Demographics False Stroke Stroke
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

 Exploratory Demographics False Stroke Stroke
C00032 Race USA paternal category

Race(s) the participant/subject's father most closely identifies with

 Supplemental Demographics False Stroke Stroke
C52535 Ethnicity pertinent intracranial aneurysm type

Ethnicity type pertinent to unruptured intracranial aneurysms the participant/subject most closely identifies with

 Exploratory Demographics False Stroke Stroke
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core Demographics False Stroke Stroke
C00033 Race USA maternal category

Race(s) the participant/subject's mother most closely identifies with

 Supplemental Demographics False Stroke Stroke
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core Demographics False Stroke Stroke
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core Demographics False Stroke Stroke
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

 Exploratory Demographics False Stroke Stroke
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core Demographics False Stroke Stroke
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

 Supplemental Demographics False Stroke Stroke
C10677 ZIP partial code

First three digits of the zip code where the participant/subject currently lives

 Supplemental Demographics False Stroke Stroke
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

 Supplemental Demographics False Stroke Stroke
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

 Supplemental Demographics False Stroke Stroke
C14123 Country of residence name

Country where the participant/subject currently lives

 Exploratory Demographics False Stroke Stroke
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

 Supplemental Demographics False Stroke Stroke
C00026 Language spoken Fluent text

Text for each language that the participant/subject speaks fluently

 Supplemental Demographics False Stroke Stroke
C14124 Social security number

A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government

 Supplemental Demographics False Stroke Stroke
C58782 Race expanded maternal category

Category of race(s) or region(s) the participant/subject's mother most closely identifies with

 Exploratory Demographics False Stroke Stroke
C00028 Language spoken fluent ISO code

Code (ISO 639-2)for each language that the participant/subject speaks fluently

 Supplemental Demographics False Stroke Stroke
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

 Exploratory Demographics False Stroke Stroke
C58783 Race expanded paternal category

Category of race(s) or region(s) the participant/subject's father most closely identifies with

 Exploratory Demographics False Stroke Stroke
Displaying 276 - 300 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.