CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14245 Hunt and Hess scale

This is a 5 level scale for classifying the severity of Subarachnoid Hemorrhage (SAH), the higher the score the lower the likelihood of survival

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C13831 Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score

Indicates Graeb IVH Scale - Right lateral ventricle score

 Supplemental Parenchymal Imaging False Stroke Stroke
C14147 Family history coronary artery disease (CAD) youngest age value

If there is a family history of coronary artery disease (CAD), specify the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack

 Supplemental Family History False Stroke Stroke
C14283 Do not resuscitate or intubate (DNR or DNI) earliest documentation timepoint type

Timepoint of earliest documentation of DNR/DNI (Do not resuscitate or Do not intubate) during hospitalization

 Supplemental Palliative/Comfort Care and End of Life Issues False Stroke Stroke
C12858 Cardiac MRI other cardiac anatomy evaluate name

Name of other cardiac anatomy that was evaluated by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Stroke Stroke
C54270 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Statistical significance value

Statistical significance, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C52601 Medical history transient ischemic attack recency rate

The element related to the recency of transient ischemic attacks (TIAs) the participant/subject has had

 Supplemental Medical History False Stroke Stroke
C12902 Echocardiogram left ventricle end systolic volume index measurement

Measurement calculated from end systolic volume over body surface area for the left ventricle obtained by echocardiography

 Supplemental Echocardiogram II False Stroke Stroke
C04515 ECG ventricular arrhythmia type

Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

 Supplemental Electrocardiogram (ECG) False Stroke Stroke
C10741 Echocardiogram aortic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography

 Supplemental Echocardiogram False Stroke Stroke
C58840 Subdural hematoma location anatomic site

The location of the subdural hematoma

 Supplemental Parenchymal Imaging False Stroke Stroke
C58882 Assistive device other text

The free-text field related to 'Assistive device type' specifying other text. Type for all assistive devices currently used by the participant/subject

 Supplemental Rehabilitation Therapies False Stroke Stroke
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

 Supplemental Social Status False Stroke Stroke
C14253 Subarachnoid hemorrhage ambient cistern score

SAH Volume Scale (Hijdra) - Ambient cistern left score

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C13839 Hijdra scale value

Indicates Hijdra scale - value

 Supplemental Parenchymal Imaging False Stroke Stroke
C01710 Pregnancy test qualitative result value

Result of the pregnancy test

 Supplemental Laboratory Tests False Stroke Stroke
C00702 Alcohol use started age value

Age in years when participant/subject started ingesting alcoholic beverages, including social drinking

 Supplemental Behavioral History False Stroke Stroke
C14188 Neonatal level of consciousness type

Type of abnormal level of consciousness of the neonate

 Supplemental Assessment of Transient Neurologic Deficits Resolved Prior to Presentation False Stroke Stroke
C54278 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C12910 Echocardiogram right atrial pressure measurement

Right atrial pressure measured by echocardiography

 Supplemental Echocardiogram II False Stroke Stroke
C14633 Extracranial venous thromboembolism indicator

Whether the participant/ subject was diagnosed with an extracranial venous thromboembolism (VTE)

 Supplemental Antithrombotics and Risk Factor Controlling Medications False Stroke Stroke
C10749 Echocardiogram tissue doppler septum A' velocity measurement

Tissue doppler septum A' velocity measured with echocardiography

 Supplemental Echocardiogram False Stroke Stroke
C13751 Imaging acquisition reason

Describes why the imaging study was performed

 Supplemental Perfusion and Penumbral Imaging False Stroke Stroke
Displaying 201 - 225 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.