CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1169-C01705	C01705	Lab test name	Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1178-C58951	C58951	Anticoagulant agent stroke discharge prescribe other text	The free-text field related to 'Anticoagulant agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1169-C58718	C58718	Tobacco last consumed date and time	Date (and time, if applicable and known) the participant/subject last used tobacco	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F2826-C54884	C54884	Vessel repair anatomic site	Anatomic site of the vessel that was repaired	Supplemental-Highly Recommended	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F2168-C20535	C20535	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale	Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
F1169-C58751	C58751	Specimen expiration date	Date when the specimen will expire, if applicable	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1155-C11083	C11083	Delivery extraction type	Type of extraction used to assist with the delivery of the participant/subject	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2032-C07432	C07432	Patient Health Questionnaire (PHQ) - Sleep impairment score	Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F1174-C13879	C13879	Imaging modality vessel imaging angiography type	Indicates imaging modality for vessel imaging angiography	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Stroke	Stroke
F1155-C58821	C58821	Pregnancy or delivery risk factor illness other text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying other illness text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2032-C07441	C07441	Patient Health Questionnaire (PHQ) - Difficulty performing scale	The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F1165-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1178-C58958	C58958	Lipid lower agent stroke discharge prescribe type	Type(s) of lipid lowering agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1203-C14053	C14053	Stroke Adjudication Worksheet - neuroimaging single CT stroke finding indicator	Whether the single brain CT scan was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F2380-C12892	C12892	Echocardiogram left ventricle wall motion abnormal indicator	Indicator of wall motion abnormalities in the left ventricle on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1177-C04505	C04505	ECG left ventricular hypertrophy status	Status of left ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10731	C10731	Echocardiogram right atrial enlargement status	Status of right atrial enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Stroke	Stroke
F1162-C58899	C58899	Causative Classification System (CCS) - cardiac embolism phenotype status	The status of the predefined cardiac embolism phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58828	C58828	Imaging acute ischemic lesion volume sequence type	Indicates the imaging acute ischemic lesion volume sequence type	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C21667	C21667	Therapy rehabilitation ICD 10 CM code	ICD-10-CM code that describes the therapy or rehabilitation received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C02493	C02493	Venous sinus injury morphology type	Morphology of the venous sinus injury	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14238	C14238	Intraventricular hemorrhage presumed cause type	Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13829	C13829	Microbleed anatomic site	Describes microbleed location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1153-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Family History	False	Stroke	Stroke
F2834-C14281	C14281	Comfort care measure type	Describes the types of comfort care the participant/ subject received	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.