CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 1543
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C55338 Specimen freeze thaw cycle prior biomarker assay number

The number of freeze thaw cycles the sample underwent prior to the biomarker assay

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54692 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out social role scale

Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C00723 APGAR ten minute score

Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C13916 Imaging color flow angle measurement

Indicates color flow angle (degrees)

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C11083 Delivery extraction type

Type of extraction used to assist with the delivery of the participant/subject

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58821 Pregnancy or delivery risk factor illness other text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying other illness text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54885 Subarachnoid hemorrhage ictus elapsed day count

Count of 24-hour intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention

Supplemental-Highly Recommended SAH Surgical/Procedural Interventions Stroke Stroke
C14397 IV tPA initiated date and time

If Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, indicates the date and time IV tPA was initiated at this hospital or ED (time of bolus administration)

Supplemental-Highly Recommended Thrombolytic/Reperfusion Therapies Stroke Stroke
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Supplemental-Highly Recommended Modified Rankin Scale (mRS) Stroke Stroke
C07433 Patient Health Questionnaire (PHQ) - Tired little energy score

Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

Supplemental-Highly Recommended Vessel Imaging Angiography Stroke Stroke
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C13908 Imaging echo pattern result

Indicates echo pattern

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C58949 Medication stroke discharge prescribe category

Class(es) of medications the participant/subject was prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58427 Biomarker specimen collected aliquot volume value

The volume per aliquot for pecimens collected from the participant/subject for biomarkers

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54748 Specimen baseline collection indicator

The indicator related to baseline specimen being collected

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58957 Anti diabetic agent stroke discharge prescribe other text

The free-text field related to 'Anti diabetic agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58724 Specimen hemolyzed indicator

Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55004 Specimen centrifugation temperature value

The value related to temperature in a centrifuge

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C06108 Tobacco smoke pack-year value

If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C14219 Clinical stroke time-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C55340 Specimen selective inhibitor used indicator

Indicator of whether or not selective inhibitors were used on the sample

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54693 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale

Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
Displaying 151 - 175 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.