CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14402 Intra-arterial (IA) procedure type

If intra-arterial (IA) procedure was initiated, describes the type of intra-arterial (IA) procedure performed on participant/ subject at this hospital

Supplemental-Highly Recommended Thrombolytic/Reperfusion Therapies Stroke Stroke
C20529 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category

Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C54889 Intervention surgical status

Status of surgical intervention

Supplemental-Highly Recommended SAH Surgical/Procedural Interventions Stroke Stroke
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

Supplemental-Highly Recommended Vessel Imaging Angiography Stroke Stroke
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C13908 Imaging echo pattern result

Indicates echo pattern

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C07438 Patient Health Questionnaire (PHQ) - Movement speech impairment score

Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C14257 Childhood stroke type

Indicates the type of clinical stroke suffered by the child

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C13916 Imaging color flow angle measurement

Indicates color flow angle (degrees)

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C55340 Specimen selective inhibitor used indicator

Indicator of whether or not selective inhibitors were used on the sample

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54689 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C01016 Glasgow Coma Scale (GCS) - total score

Glasgow Coma Scale (GCS) - Total Score. The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response. The total score is the sum of the scores for the three response types. (3-15)

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
C11081 Delivery caesarean timing status

Status of the caesarean delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58949 Medication stroke discharge prescribe category

Class(es) of medications the participant/subject was prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58427 Biomarker specimen collected aliquot volume value

The volume per aliquot for pecimens collected from the participant/subject for biomarkers

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58820 Pregnancy or delivery risk factor status

The status of the participant/subject when the specific risk factor was experienced either during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54748 Specimen baseline collection indicator

The indicator related to baseline specimen being collected

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58957 Anti diabetic agent stroke discharge prescribe other text

The free-text field related to 'Anti diabetic agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58724 Specimen hemolyzed indicator

Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55004 Specimen centrifugation temperature value

The value related to temperature in a centrifuge

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
Displaying 151 - 175 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.