CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1154-C58939	C58939	Tobacco cigarette use started age value	Age in years when participant/subject started using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F2380-C54235	C54235	Echocardiogram right ventricular posterior wall thickness end diastole measurement	Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1162-C14226	C14226	Stroke causative classification standard sub type	Ischemic Stroke Subtype based on The Causative Classification System's - standard causative subtypes	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1056-C10602	C10602	Cardiac MRI ejection fraction measurement	Measurement of the ejection fraction percentage obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F1164-C13514	C13514	Consciousness findings result	Assess consciousness using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1206-C58999	C58999	Medication cold preparation current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken cold preparations/ medications	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1206-C54998	C54998	Medication immunosuppressant current former type	Type of immunosuppressant medication formerly or currently taken by the subject/participant	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1152-C52619	C52619	Medical history atrial fibrillation other cause indicator	The indicator related to other cause of atrial fibrillation	Exploratory	Medical History	False	Stroke	Stroke
F1150-C00031	C00031	Race expanded category	Category of race(s) or region(s) the participant/subject most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
F1152-C58931	C58931	Menopause treatment type	Type of treatment the participant/subject is receiving or has received for menopause	Exploratory	Medical History	False	Stroke	Stroke
F2832-C13206	C13206	Generalized Anxiety Disorder (GAD-7) - not stop worry scale	Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2567-C07381	C07381	PTSD Checklist Civilian (PCL-C) - Activities indicator	Indicator of whether the subject experiences avoiding activities or situations because they reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1169-C55353	C55353	Microdialysate composition type text	The free-text field to specify the composition of microdialysate specimen	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54766	C54766	Imaging aneurysm shear rate mean measurement	Measurement of the mean shear rate of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2567-C07389	C07389	PTSD Checklist Civilian (PCL-C) - Difficulty concentrating indicator	Indicator of whether the subject experiences having difficulty concentrating, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1152-C52695	C52695	Cancer diagnosis type	The element related to the type of cancer diagnosis the participant/subject has or had	Exploratory	Medical History	False	Stroke	Stroke
F1174-C54774	C54774	Imaging aneurysm low wall shear stress percent value	Value of the percentage of the aneurysm that is under low wall shear stress (WSS)	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2822-C12610	C12610	Death location type	Type of location where the participant/subject died	Exploratory	Death	False	Stroke	Stroke
F1206-C18827	C18827	Gastrointestinal therapy nutrition supplement other text	The free-text field related to 'Gastrointestinal therapy nutrition supplement type' specifying other text. Type(s) of nutritional supplement(s) being taken by the participant/subject	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1152-C52706	C52706	Mitochondrial encephalomyopathy lactic acidosis stroke like episodes indicator	The indicator related to whether the participant/subject has or had mitochondrial encephalomyopathy, lactic acidosis and stroke-like episodes (MELAS)	Exploratory	Medical History	False	Stroke	Stroke
F1174-C58892	C58892	Imaging aneurysm vorticity mean unit of measure	Unit of measure of the mean vorticity of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1164-C13515	C13515	Orientation findings result	Assess orientation using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1206-C59000	C59000	Medication L-asparaginase current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken L-asparaginase	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1206-C54999	C54999	Medication immunosuppressant current former take other text	The free-text field related to 'Medication immunosuppressant current former type' specifying other text	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1159-C14199	C14199	Stroke complication of medical/ surgical procedure or therapy likelihood type	Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)	Exploratory	Hospital Arrival/Admission	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.