CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2826-C54908	C54908	Blood vessel rupture surgery procedure evidence indicator	Indicator of whether there is evidence of blood vessel rupture during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1154-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Stroke	Stroke
F1181-C58863	C58863	Contraceptive hormone replacement treatment intervention type	If the participant/subject received counseling related to contraceptive/hormone replacement treatment, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2838-C13901	C13901	Imaging patient type	Indicates imaging patient type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13883	C13883	Computer tomography (CT) angiography type	The type of computer tomography angiography being performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C58992	C58992	Medication hormone replacement therapy route other text	The free-text field related to 'Medication hormone replacement therapy route type', specifying text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1167-C01701	C01701	Lab specimen collection date and time	Date (and time if applicable and known) when the specimen was collected	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1180-C21669	C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1152-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Stroke	Stroke
F1173-C13915	C13915	Imaging plaque thickness measurement	Indicates plaque thickness	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1150-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Stroke	Stroke
F1158-C14209	C14209	Los Angeles Motor Scale (LAMS) - facial smile or grimace result	Assess the facial smile/ grimace using the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14032	C14032	Vasospasm severity grade	Indicates severity of vasospasm	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0936-C10724	C10724	Echocardiogram perform date and time	Date (and time, if applicable and known) the echocardiography was performed	Supplemental	Echocardiogram	False	Stroke	Stroke
F2827-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1154-C58940	C58940	Tobacco cigarette use stopped age value	Age in years when participant/subject stopped using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1182-C14285	C14285	Therapy or rehabilitation assessment indicator	Indicates if there is documentation that the participant/subject was assessed for rehabilitation services. Rehabilitation is a treatment or treatments designed to facilitate the process of recovery from injury, illness, or disease to as normal a condition as possible	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F2370-C53900	C53900	Stroop Color and Word Test (SCW) - Color raw score	Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F2838-C13944	C13944	Imaging color flow indicator	Indicates color flow	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13898	C13898	Imaging vessel angiography ASITN collateral grade	Indicates vessel angiography ASITN collateral grade	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2824-C58731	C58731	Occupation primary after event status	The status indicating the participant's/subject's primary occupational status after the event	Supplemental	Return to Work	False	Stroke	Stroke
F1167-C01713	C01713	Lab test result unit of measure UCUM code	Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1180-C58791	C58791	Bypass revascularization surgery type	Type of bypass/revascularization surgery received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54050	C54050	D-KEFS Color-Word Interference Test (CWIT) -Total Self-corrected Errors Count	Count of total self-corrected errors, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C13924	C13924	Imaging vertebral origin result	Indicates vertebral origin	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.