CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1165-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13914	C13914	Imaging plaque residual lumen result	Indicates plaque residual lumen	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C58279	C58279	Residence current occupy duration text	Text field for indicating the duration for which the subject/participant has occupied his/her current residence	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1152-C10541	C10541	Diabetes treatment type	Type of treatment the participant/subject is receiving or has received for diabetes mellitus	Supplemental	Medical History	False	Stroke	Stroke
F1150-C10677	C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Supplemental	Demographics	False	Stroke	Stroke
F2838-C14024	C14024	Vasospasm criterion value	Indicates vasospasm criterion value	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07108	C07108	Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator	Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54911	C54911	Endovascular fluoroscopy dose	Dose in milligrays of endovascular fluoroscopy	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58866	C58866	Mental resilience stress management tool adopt intervention other text	The free-text field related to 'Mental resilience stress management tool adopt intervention type' specifying other text. If the participant/subject received counseling to adopt tools for mental resilience and stress management, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2370-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Stroop Test	True	Stroke	Stroke
F2838-C13904	C13904	Imaging interpretation offsite media type	Indicates imaging offsite media type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13897	C13897	Imaging vessel angiography collateral status anatomic site	Indicates vessel angiography collateral status location	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C58995	C58995	Medication other current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken other medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2824-C58726	C58726	Occupation primary prior event status	The status indicating the participant's/subject's primary occupational status prior to the event	Supplemental	Return to Work	False	Stroke	Stroke
F1171-C13815	C13815	Hematoma lobar region anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in a lobar region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C58786	C58786	Stroke surgical therapeutic procedure other text	The free-text field related to 'Stroke surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1305-C14704	C14704	Berg Balance Scale (BBS) - alternate foot step up scale	The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Stroke	Stroke
F1165-C14449	C14449	Hip circumference unit of measure	Units used to measure the hip circumference	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13923	C13923	Imaging power doppler result	Indicates power doppler result	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C58811	C58811	Pre-hospital severity scale total score	The total score of the severity scale, if completed	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C13763	C13763	Imaging circulations involved anatomic site	Indicates circulations involved	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C58831	C58831	Stroke initial residence or discharge destination other text	The free-text field related to 'Stroke initial residence or discharge destination type' specifying other text. Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1157-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Prior Functional Status	False	Stroke	Stroke
F1150-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth	Supplemental	Demographics	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.