CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1180-C58789	C58789	Intracranial revascularization procedure type	Type of intracranial revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1305-C17394	C17394	Berg Balance Scale (BBS) - stand one leg scale	The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Stroke	Stroke
F1165-C14428	C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13922	C13922	Imaging common carotid artery (CCA) externalization indicator	Indicates common carotid artery (CCA) externalization	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C58810	C58810	Pre-hospital large vessel occlusion indicator	Indicates if the patient has detected positive for suspected Large Vessel Occlusion (LVO)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C13762	C13762	Imaging infarcts one vascular territory indicator	Indicates acute infarct(s) are all in one vascular territory	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C58829	C58829	Diagnosis principal discharge stroke TIA related ICD-10-CM code status	Status indicating if the principal or secondary ICD-10-CM diagnosis code is not Stroke/ TIA (transient ischemic attack) related	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1157-C05130	C05130	Therapy or rehabilitation type	Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Prior Functional Status	False	Stroke	Stroke
F2380-C12890	C12890	Echocardiogram left ventricle function status	Status of left ventricle function on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1169-C58721	C58721	Lab specimen type other text	The free-text field related to 'Lab specimen type' specifying other text	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C58903	C58903	Traumatic aneurysm anatomic site other text	The free-text field related to 'Traumatic aneurysm anatomic site' specifying other text. Describes why the imaging study was performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F0936-C10729	C10729	Echocardiogram left atrial antero - posterior dimension measurement	Measurement of the left atrial antero-posterior dimension obtained by echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1162-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C02474	C02474	Subdural hematoma acute volume measurement	Measured volume in cubic centimeters of the acute subdural hematoma (calculated from length, width, maximal thickness)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1154-C58943	C58943	E-cigarette electronic vapor product use status	Status of participant/subject's use of e-cigarettes or other electronic vaping products	Supplemental	Behavioral History	False	Stroke	Stroke
F1162-C14232	C14232	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - cardioembolic grade	The grade of cardioembolism, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of cardiac source (C)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2834-C14279	C14279	Comfort care indicator	Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1056-C12852	C12852	Cardiac MRI atrium area measurement	Measurement of the area of the selected atrium as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54266	C54266	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Scaled score	Scaled score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1203-C18887	C18887	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology other text	The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology type' specifying other text. The type of etiology of the hemorrhage	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F2380-C12898	C12898	Echocardiogram left ventricle end diastolic volume index measurement	Measurement calculated from end diastolic volume over body surface area for the left ventricle obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1177-C04507	C04507	ECG complete bundle branch block status	Status of complete bundle branch block on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10737	C10737	Echocardiogram left ventricular outflow tract obstruction indicator	Indicator of whether the echocardiogram shows that the participant/subject has a left ventricular outflow tract (LVOT)	Supplemental	Echocardiogram	False	Stroke	Stroke
F1162-C58902	C58902	Causative Classification System (CCS) - other uncommon cause phenotype status	The status of the predefined other uncommon causes phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.