CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1173-C13933	C13933	Intima media thickness (IMT) mean far-wall measurement	Indicates mean intima media thickness (IMT) far-wall measurement (mm)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58965	C58965	Medication anticoagulant past week type	Type of anticoagulant medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1159-C14196	C14196	Hospital location patient first received care type	Area of the hospital the patient first evaluated	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13775	C13775	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) territory segment type	The type of middle cerebral artery (MCA) territory segment assessed for Alberta Stroke Program Early CT score (ASPECTS) score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C13521	C13521	Gait walk unassisted result	Ability of the participant/subject to walk multiple steps unassisted	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1172-C18890	C18890	Imaging magnetic resonance based identification core volume other text	The free-text field related to 'Imaging magnetic resonance based identification core volume type' specifying other text. Indicates magnetic resonance based identification of core volume type	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F2838-C18903	C18903	Vasomotor response (VMR) vessel anatomic other text	The free-text field related to 'Vasomotor response (VMR) vessel anatomic site' specifying other text. Indicates vasomotor response (VMR) vessel type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C54727	C54727	Aneurysm width measurement	Measurement of the width of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C10728	C10728	Echocardiogram left ventricular internal dimension end systole measurement	Measurement of left ventricular end - systolic internal dimension (LVIDs) obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C13957	C13957	High intensity transient signal hits intensity value	Indicates high intensity transient signal hits intensity value (dB)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1181-C14274	C14274	Smoking cessation treatment indicator	For patients who have smoked at least one cigarette within the past year (Joint Commission definition) or who vape, indicates whether the patient received counseling to stop smoking/vaping or smoking cessation advice during the hospitalization as documented in progress notes or physician orders at discharge or admissions	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2008-C54063	C54063	Delis-Kaplan Executive Function System (DKEFS) - Completion time contrast Type	Type of primary contrast measures for completion times, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58973	C58973	Medication diabetic past week other text	The free-text field related to 'Medication diabetic past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13793	C13793	Modified Scheltens scale frontal score	Indicates Modified Scheltens scale - Frontal score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14410	C14410	Intra-sinus intervention initiated date and time	Date (and time, if applicable and known) intra-sinus (IS) intervention (i.e., for cerebral venous thrombosis) was initiated at this hospital or ED	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1164-C58818	C58818	Dysphagia status	Did the participant/subject have dysphagia (difficulty swallowing) identified at bedside assessment? The dysphagia screening should utilize a validated tool that incorporates a swallow assessment and an assessment of level of consciousness and neurological function	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1173-C13900	C13900	Imaging probe frequency	Indicates imaging probe frequency (Hz)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14207	C14207	Pre-hospital stroke identification screen indicator	Whether a pre-hospital identification stroke screen was documented by EMS personnel. Pre-hospital stroke identification screens are defined as published validated screening algorithms or those required by state EMS agencies (e.g., LAPSS, CPSS, MASS, etc.)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1169-C58748	C58748	Freezing method type	The method of freezing of the specimen	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58914	C58914	Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy primary diagnosis subtype classification status	The status of arteriopathy primary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C52880	C52880	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B follow trail complete time	The element related to the time it takes the participant/subject to follow the trail in Part B as part of the Trail Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2380-C10742	C10742	Echocardiogram mitral valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14006	C14006	Imaging stenosis percentage value	Indicates stenosis percentage value	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07094	C07094	Center for Epidemiologic Studies-Depression Scale (CES-D) - good other people indicator	Indicates how often the subject felt like good as other people in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.