CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1173-C58871	C58871	Imaging signal indicator	Indicates signal on the carotid ultrasound	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1169-C58753	C58753	Specimen analysis date and time	Date (and time if applicable and known) when the specimen was analyzed	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1152-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Supplemental-Highly Recommended	Medical History	False	Stroke	Stroke
F1155-C18819	C18819	Pregnancy or delivery risk factor other text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying other text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2032-C07439	C07439	Patient Health Questionnaire (PHQ) - Better dead thought score	Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F1165-C01554	C01554	Oxygen saturation measurement	Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1163-C04804	C04804	Hospital discharge date and time	Date (and time, if applicable and known) the participant/subject was discharged from the hospital	Supplemental-Highly Recommended	Hospital Discharge	False	Stroke	Stroke
F1155-C58824	C58824	Pregnancy or delivery risk factor maternal infection text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying maternal infection(s). Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2168-C20531	C20531	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category	Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
F2826-C54890	C54890	Intervention endovascular status	Status of endovascular intervention	Supplemental-Highly Recommended	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1173-C14006	C14006	Imaging stenosis percentage value	Indicates stenosis percentage value	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1179-C14402	C14402	Intra-arterial (IA) procedure type	If intra-arterial (IA) procedure was initiated, describes the type of intra-arterial (IA) procedure performed on participant/ subject at this hospital	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1169-C58745	C58745	Specimen cooler than room temperature indicator	Indicate whether the specimen was kept cooler than room temperature	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1154-C00710	C00710	Tobacco current use indicator	Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1169-C57923	C57923	Blood collection tube additive type	Type of additives used in blood collection tube	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C14221	C14221	Clinical stroke time-based definition type	Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TIA	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1178-C58954	C58954	Antihypertensive agent stroke discharge prescribe type	Type(s) of antihypertensive agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1169-C54753	C54753	Specimen collection tube type	Type of tube used for specimen collection	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58739	C58739	CSF/plasma simultaneous collection indicator	Indicate whether the CSF and plasma samples were collected simultaneously	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55327	C55327	Specimen serial collected indicator	Indicator of whether or not serial samples were collected over time	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1155-C10556	C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2836-C54690	C54690	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health mental health rate scale	Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2032-C07431	C07431	Patient Health Questionnaire (PHQ) - Depressed score	Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F1165-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1155-C18829	C18829	Delivery mode induced other text	The free-text field related to 'Delivery mode type' for induced delivery mode. Type of delivery mode of the neonate	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.