CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 1543
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14220 Clinical stroke tissue-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "tissue-based" definition: Symptomatic stroke is a sudden focal neurological deficit, of any duration, due to focal brain, spinal cord, or retinal infarction or hemorrhage. Infarction or hemorrhage may be demonstrated either 1) directly by imaging/laboratory/pathologic examination in patients with symptom duration less than 24 hours, or 2) inferred by symptoms lasting >= 24 hours (or fatal within 24 hours) that cannot be attributed to another cause

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C14402 Intra-arterial (IA) procedure type

If intra-arterial (IA) procedure was initiated, describes the type of intra-arterial (IA) procedure performed on participant/ subject at this hospital

Supplemental-Highly Recommended Thrombolytic/Reperfusion Therapies Stroke Stroke
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C07430 Patient Health Questionnaire (PHQ) - Little interest score

Score of how much the subject has been bothered by having little interest or pleasure in doing things in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C07439 Patient Health Questionnaire (PHQ) - Better dead thought score

Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C14006 Imaging stenosis percentage value

Indicates stenosis percentage value

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C58938 Drug or substance illicit or recreational use other text

The free-text field related to 'Drug or substance illicit or recreational use category', specifying other text

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58954 Antihypertensive agent stroke discharge prescribe type

Type(s) of antihypertensive agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C18819 Pregnancy or delivery risk factor other text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying other text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58824 Pregnancy or delivery risk factor maternal infection text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying maternal infection(s). Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54690 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health mental health rate scale

Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C55746 Specimen surround dry ice shipment indicator

The indicator related to whether the specimen was surrounded by dry ice for shipping

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58718 Tobacco last consumed date and time

Date (and time, if applicable and known) the participant/subject last used tobacco

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C13750 Imaging study ID number

Unique identification number assigned to the study or assessment session

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C58746 Specimen centrifugation date and time

Date (and time if applicable and known) when the specimen was centrifuged

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C14221 Clinical stroke time-based definition type

Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TIA

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C07431 Patient Health Questionnaire (PHQ) - Depressed score

Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C07440 Patient Health Questionnaire - (PHQ) - Depression questionnaire total score

Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
Displaying 51 - 75 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.