CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1171-C58840	C58840	Subdural hematoma location anatomic site	The location of the subdural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13797	C13797	Modified Scheltens scale occipital caps score	Indicates Modified Scheltens scale - Occipital caps score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1165-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Stroke	Stroke
F1171-C13839	C13839	Hijdra scale value	Indicates Hijdra scale - value	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C58918	C58918	Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2830-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Imaging Acquisition	False	Stroke	Stroke
F1056-C12840	C12840	Cardiac MRI ventricle end systolic dimension measurement	Measurement of the diameter across the selected ventricle at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54254	C54254	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recall total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recall Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1178-C14633	C14633	Extracranial venous thromboembolism indicator	Whether the participant/ subject was diagnosed with an extracranial venous thromboembolism (VTE)	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1203-C13479	C13479	Stroke Adjudication Worksheet - ischemic stroke type	The type of ischemic stroke subtype most likely to have contributed to this stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F2380-C12875	C12875	Echocardiogram mitral valve prolapse indicator	Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1172-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1171-C13805	C13805	Age-related white matter changes (ARWMC) scale - basal ganglia score	The basal ganglia score related to age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F0936-C10725	C10725	Echocardiogram left ventricular posterior wall thickness end diastole measurement	Measurement of left ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1165-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	Stroke	Stroke
F1182-C14286	C14286	Therapy or rehabilitation received status	If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1171-C13850	C13850	Arteriovenous malformation present indicator	Indicates if arteriovenous malformation is present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C02446	C02446	Intraventricular hemorrhage status	Indicator of acute-appearing blood within the ventricles	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C59019	C59019	Birth weight measurement	Measurement in kilograms of the weight of a neonate at birth	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1056-C12848	C12848	Cardiac MRI left ventricle non-compaction result status	Status of the result of the evaluation of the left ventricle for non-compaction as observed by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54262	C54262	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall percentage value	Percentile rank score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1178-C18988	C18988	Antithrombotic therapy not prescribed other text	The free-text field related to 'Antithrombotic therapy not prescribed reason', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1203-C14055	C14055	Stroke Adjudication Worksheet - neuroimaging MRI stroke finding indicator	Whether the MRI was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F2380-C12894	C12894	Echocardiogram right ventricular internal dimension end diastole measurement	Measurement of right ventricular end - diastolic internal dimension (RVIDd) obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1172-C13864	C13864	Imaging magnetic resonance based identification perfusion defect value	Value of MR based identification of perfusion defect abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.