CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1206-C54987	C54987	Stimulant current former use duration	Duration in months for which the subject/participant took or has taken the selected former or current stimulant	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2380-C17964	C17964	Cardiovascular pulmonic valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1949-C54095	C54095	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Completion time scaled score	Complete time as a scaled score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1178-C18988	C18988	Antithrombotic therapy not prescribed other text	The free-text field related to 'Antithrombotic therapy not prescribed reason', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F0936-C10771	C10771	Echocardiogram left ventricular end - systolic internal dimension z score	Calculated z-score for the left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F2828-C54246	C54246	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List learning total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Learning Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1172-C13864	C13864	Imaging magnetic resonance based identification perfusion defect value	Value of MR based identification of perfusion defect abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13471	C13471	Stroke Adjudication Worksheet - neuroimaging DWI stroke finding indicator	Whether the DWI was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14271	C14271	Sophia imaging stroke composite diagnosis method type	Imaging method at detection. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C18701	C18701	Imaging modality type other text	The free-text field related to 'Imaging modality type', specifying other text. Type of radiologic study performed on the participant	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1169-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1154-C55966	C55966	Alcohol use stopped age not applicable status	Status indicating that age quit drinking does not apply to the subject/participant, as they are still ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Stroke	Stroke
F2830-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Imaging Acquisition	False	Stroke	Stroke
F1056-C12840	C12840	Cardiac MRI ventricle end systolic dimension measurement	Measurement of the diameter across the selected ventricle at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54254	C54254	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recall total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recall Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1172-C13872	C13872	Imaging perfusion computed tomography based identification perfusion defect correction method type	Indicates PCT based identification of perfusion defect method used for perfusion processing	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13479	C13479	Stroke Adjudication Worksheet - ischemic stroke type	The type of ischemic stroke subtype most likely to have contributed to this stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F2380-C12875	C12875	Echocardiogram mitral valve prolapse indicator	Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1169-C58721	C58721	Lab specimen type other text	The free-text field related to 'Lab specimen type' specifying other text	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C58903	C58903	Traumatic aneurysm anatomic site other text	The free-text field related to 'Traumatic aneurysm anatomic site' specifying other text. Describes why the imaging study was performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F0936-C10725	C10725	Echocardiogram left ventricular posterior wall thickness end diastole measurement	Measurement of left ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1162-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C02474	C02474	Subdural hematoma acute volume measurement	Measured volume in cubic centimeters of the acute subdural hematoma (calculated from length, width, maximal thickness)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C14286	C14286	Therapy or rehabilitation received status	If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1154-C58943	C58943	E-cigarette electronic vapor product use status	Status of participant/subject's use of e-cigarettes or other electronic vaping products	Supplemental	Behavioral History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.