CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1156-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Supplemental	History Data Source and Reliability	False	Stroke	Stroke
F2838-C14032	C14032	Vasospasm severity grade	Indicates severity of vasospasm	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1182-C14285	C14285	Therapy or rehabilitation assessment indicator	Indicates if there is documentation that the participant/subject was assessed for rehabilitation services. Rehabilitation is a treatment or treatments designed to facilitate the process of recovery from injury, illness, or disease to as normal a condition as possible	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F2370-C53900	C53900	Stroop Color and Word Test (SCW) - Color raw score	Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F2838-C13944	C13944	Imaging color flow indicator	Indicates color flow	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C02484	C02484	Traumatic aneurysm status	Status of false aneurysmal outpouching of an artery due to mechanical disruption of the entire vessel wall with extravasation of blood into a confined soft-tissue space	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2824-C58731	C58731	Occupation primary after event status	The status indicating the participant's/subject's primary occupational status after the event	Supplemental	Return to Work	False	Stroke	Stroke
F1171-C13822	C13822	Spot sign count	The number of "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion. The computed tomogram angiography (CTA) 'spot sign' describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C58791	C58791	Bypass revascularization surgery type	Type of bypass/revascularization surgery received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54050	C54050	D-KEFS Color-Word Interference Test (CWIT) -Total Self-corrected Errors Count	Count of total self-corrected errors, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1165-C14538	C14538	Central venous pressure (CVP) unit of measure	Units used to measure the pressure of blood in the central venous system	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13928	C13928	Intima media thickness (IMT) electronic caliper indicator	Indicates intima media thickness (IMT) electronic caliper use	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1056-C12846	C12846	Cardiac MRI left ventricle posterior wall thickness measurement	Measurement of the thickness of the posterior wall of the left ventricle as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54260	C54260	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Index type	Index type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1172-C13878	C13878	Imaging perfusion computed tomography based identification penumbra volume measurement	Indicates PCT based identification of penumbra volume for all the methods selected	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C14053	C14053	Stroke Adjudication Worksheet - neuroimaging single CT stroke finding indicator	Whether the single brain CT scan was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F2380-C12892	C12892	Echocardiogram left ventricle wall motion abnormal indicator	Indicator of wall motion abnormalities in the left ventricle on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1177-C04505	C04505	ECG left ventricular hypertrophy status	Status of left ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10731	C10731	Echocardiogram right atrial enlargement status	Status of right atrial enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Stroke	Stroke
F1162-C58899	C58899	Causative Classification System (CCS) - cardiac embolism phenotype status	The status of the predefined cardiac embolism phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58828	C58828	Imaging acute ischemic lesion volume sequence type	Indicates the imaging acute ischemic lesion volume sequence type	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C21667	C21667	Therapy rehabilitation ICD 10 CM code	ICD-10-CM code that describes the therapy or rehabilitation received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C02493	C02493	Venous sinus injury morphology type	Morphology of the venous sinus injury	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14238	C14238	Intraventricular hemorrhage presumed cause type	Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.