CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1180-C58802	C58802	Stroke surgical operative preventive cardiac treatment text	The free-text field related to 'Stroke surgical operative preventive treatment type' specifying cardiac surgical/operative preventative treatment text. Type of cardiac surgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54061	C54061	D-KEFS Color-Word Interference Test (CWIT) -Composite Scaled Score	Composite scaled score, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C18693	C18693	Imaging contrast agent method other text	The free-text field related to 'Imaging contrast agent method type' specifying other text. Indicates imaging contrast agent method of administration	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58971	C58971	Medication diabetic current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken diabetic medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1160-C14178	C14178	Stroke symptom type	The symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1171-C13791	C13791	Fazekas scale deep white matter score	Indicates the Fazekas scale deep white matter score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14408	C14408	Intra-sinus procedure type	If intra-sinus (i.e., for cerebral venous thrombosis) intervention was received, specifies the type of intra-sinus procedure performed on the participant/subject at this hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1152-C52604	C52604	Medical history carotid endarterectomy anatomic site	The element related to the location of a carotid endarterectomy the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1158-C14205	C14205	Emergency Medical Services (EMS) scene arrival date and time	This refers to the date/time when the Emergency Medical Services (EMS) vehicle arrives on the scene to transport the patient to the hospital	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1162-C58912	C58912	Embolic stroke of undetermined source (ESUS) - criteria category	The descriptive identification criteria categories used to identify Embolic Stroke of Undetermined Source (ESUS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54733	C54733	Parent artery distal aneurysm diameter measurement	Diameter of the parent artery distal to the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C10740	C10740	Echocardiogram left ventricle ejection fraction measurement	Measurement of the fraction of blood pumped out of the left ventricles with each heart beat obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14003	C14003	Imaging brain death present indicator	Indicates presence of brain death	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07092	C07092	Center for Epidemiologic Studies-Depression Scale (CES-D) - poor appetite indicator	Indicates how often the subject didn't feel like eating in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54895	C54895	Aneurysm rupture occur surgery procedure grade	Grade of rupture of aneurysm occurring during surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58848	C58848	Weight loss intervention type	If the participant/subject received counseling for weight loss, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2008-C54069	C54069	Delis-Kaplan Executive Function System (DKEFS) - Cumulative percentile rank value	Cumulative percentile rank for error analysis, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C58872	C58872	Intima media thickness (IMT) edge detection algorithm type	Indicates intima media thickness (IMT) edge detection algorithm type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58979	C58979	Medication beta-blocker past week other text	The free-text field related to 'Medication beta-blocker past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13799	C13799	Modified Scheltens scale periventricular bands score	Indicates Modified Scheltens scale - Periventricular bands score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C18927	C18927	IV tPA not started other text	The free-text field related to 'IV tPA not started reason' specifying other text. If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13906	C13906	Imaging B-mode artery name	Indicates B-mode artery name	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14623	C14623	Los Angeles Motor Scale (LAMS) - grip abnormal type	Type of abnormal grip observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1169-C58754	C58754	Multiplex platform statistical methodology type	Indicate the statistical methodology used to address multiple hypothesis testing	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.