CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1155-C11079	C11079	Neonate delivery route type	Route of delivery of the neonate	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1174-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Stroke	Stroke
F1165-C01535	C01535	Respiratory rate	Rate of the participant's breathing (inhalation and exhalation)	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1173-C13908	C13908	Imaging echo pattern result	Indicates echo pattern	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1155-C12604	C12604	APGAR one minute score	Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2032-C07438	C07438	Patient Health Questionnaire (PHQ) - Movement speech impairment score	Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F1173-C13916	C13916	Imaging color flow angle measurement	Indicates color flow angle (degrees)	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1152-C15624	C15624	Pregnancy indicator	Indicates if the participant/subject is currently pregnant	Supplemental-Highly Recommended	Medical History	False	Stroke	Stroke
F1179-C14402	C14402	Intra-arterial (IA) procedure type	If intra-arterial (IA) procedure was initiated, describes the type of intra-arterial (IA) procedure performed on participant/ subject at this hospital	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1158-C01002	C01002	Glasgow Coma Scale (GCS) - verbal response scale	Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)	Supplemental-Highly Recommended	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2168-C20529	C20529	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category	Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
F2826-C54889	C54889	Intervention surgical status	Status of surgical intervention	Supplemental-Highly Recommended	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1154-C00705	C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F2836-C58681	C58681	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale	Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F1161-C01016	C01016	Glasgow Coma Scale (GCS) - total score	Glasgow Coma Scale (GCS) - Total Score. The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response. The total score is the sum of the scores for the three response types. (3-15)	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke
F1178-C58949	C58949	Medication stroke discharge prescribe category	Class(es) of medications the participant/subject was prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1169-C58427	C58427	Biomarker specimen collected aliquot volume value	The volume per aliquot for pecimens collected from the participant/subject for biomarkers	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C54748	C54748	Specimen baseline collection indicator	The indicator related to baseline specimen being collected	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1154-C58938	C58938	Drug or substance illicit or recreational use other text	The free-text field related to 'Drug or substance illicit or recreational use category', specifying other text	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1178-C58957	C58957	Anti diabetic agent stroke discharge prescribe other text	The free-text field related to 'Anti diabetic agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1169-C58724	C58724	Specimen hemolyzed indicator	Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55004	C55004	Specimen centrifugation temperature value	The value related to temperature in a centrifuge	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55340	C55340	Specimen selective inhibitor used indicator	Indicator of whether or not selective inhibitors were used on the sample	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1155-C11062	C11062	Maternal delivery age value	Mother's age at the time she gave birth to the participant/subject	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2836-C54689	C54689	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale	Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.