CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C05408 Hospital admission date and time

Date (and time, if applicable and known) the participant/subject was admitted to the hospital

Supplemental-Highly Recommended Hospital Arrival/Admission Stroke Stroke
C58751 Specimen expiration date

Date when the specimen will expire, if applicable

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54694 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale

Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C00714 Behavioral history assessment date and time

Date (and time, if applicable and known) the participant/subject behavioral history was taken

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
C13879 Imaging modality vessel imaging angiography type

Indicates imaging modality for vessel imaging angiography

Supplemental-Highly Recommended Vessel Imaging Angiography Stroke Stroke
C01016 Glasgow Coma Scale (GCS) - total score

Glasgow Coma Scale (GCS) - Total Score. The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response. The total score is the sum of the scores for the three response types. (3-15)

Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C13191 Walking speed value

Comfortable walking speed is assessed in meters per second (m/sec) and is measured using the time to complete the central 4 meters of a 6 meter line

Supplemental-Highly Recommended Walking Speed Stroke Stroke
C58937 Drug or substance illicit or recreational use category

Category of illegal or recreational drugs or substances, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, in large amounts, or for recreational purposes

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C11080 Delivery modality type

Type of modality of the participant/subject's intrauterine orientation at delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58954 Antihypertensive agent stroke discharge prescribe type

Type(s) of antihypertensive agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C04814 Residence type

Type of residence where the participant/subject is currently living

Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C10559 Spontaneous miscarriage count

Value representing the number of times the participant/subject has had miscarriages or spontaneous abortions, including all trimesters

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C55004 Specimen centrifugation temperature value

The value related to temperature in a centrifuge

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55340 Specimen selective inhibitor used indicator

Indicator of whether or not selective inhibitors were used on the sample

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C07436 Patient Health Questionnaire (PHQ) - Feeling failure score

Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C14257 Childhood stroke type

Indicates the type of clinical stroke suffered by the child

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C58427 Biomarker specimen collected aliquot volume value

The volume per aliquot for pecimens collected from the participant/subject for biomarkers

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54748 Specimen baseline collection indicator

The indicator related to baseline specimen being collected

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58724 Specimen hemolyzed indicator

Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58744 Specimen ambient light protection indicator

Indicate whether the specimen was protected from ambient light

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58752 Specimen expiration not applicable indicator

Indicate whether there is no expiration date for the specimen

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
Displaying 1 - 25 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.