CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C58407	Blood collection tube volume value	Volume of blood collection tube	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C58936	Drug or substance current illicit or recreational use indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
C54889	Intervention surgical status	Status of surgical intervention	Supplemental-Highly Recommended	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C13458	Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - language deficit-production scale	The scale for language deficit - production (including dysarthria) based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003)	Supplemental-Highly Recommended	Pediatric Stroke Outcome Measure Short Neuro Exam (PSOM-SNE) - Infant Version (Infants Term Birth to Two Years)	True	Stroke	Stroke
C20529	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category	Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
C58955	Antihypertensive agent stroke discharge prescribe other text	The free-text field related to 'Antihypertensive agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
C58944	Alcohol 30 day use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 30 days	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
C54695	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale	Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
C14397	IV tPA initiated date and time	If Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, indicates the date and time IV tPA was initiated at this hospital or ED (time of bolus administration)	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
C01002	Glasgow Coma Scale (GCS) - verbal response scale	Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)	Supplemental-Highly Recommended	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C58740	Specimen collection grossly bloody indicator	Indicate whether the specimen collection was grossly bloody	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C10558	Delivery or pregnancy termination last date and time	Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
C07438	Patient Health Questionnaire (PHQ) - Movement speech impairment score	Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
C01002	Glasgow Coma Scale (GCS) - verbal response scale	Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke
C11079	Neonate delivery route type	Route of delivery of the neonate	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
C13190	Walking time duration	Time in seconds to complete the central 4 meters of a 6 meter line at a comfortable walking pace	Supplemental-Highly Recommended	Walking Speed	False	Stroke	Stroke
C13237	National Institutes of Health Stroke Scale (NIHSS) - Facial palsy score	Facial palsy assessed using the NIH Stroke Scale (NIHSS)	Supplemental-Highly Recommended	NIH Stroke Scale (NIHSS)	True	Stroke	Stroke
C01535	Respiratory rate	Rate of the participant/subject's breathing (inhalation and exhalation)	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
C13908	Imaging echo pattern result	Indicates echo pattern	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
C12604	APGAR one minute score	Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
C13460	Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - language deficit-comprehension scale	The scale for language deficit - comprehension based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003)	Supplemental-Highly Recommended	Pediatric Stroke Outcome Measure Short Neuro Exam (PSOM-SNE) - Child Version (Children Aged 2 Year and Older)	True	Stroke	Stroke
C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental-Highly Recommended	NIH Stroke Scale (NIHSS)	True	Stroke	Stroke
C13916	Imaging color flow angle measurement	Indicates color flow angle (degrees)	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
C54748	Specimen baseline collection indicator	The indicator related to baseline specimen being collected	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C55004	Specimen centrifugation temperature value	The value related to temperature in a centrifuge	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.