CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C13910 Imaging plaque severity grade

Indicates plaque severity grade

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C13462 Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - cognitive or behavioral deficit scale

The scale for cognitive or behavioral deficit based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003).

Supplemental-Highly Recommended Pediatric Stroke Outcome Measure Short Neuro Exam (PSOM-SNE) - Child Version (Children Aged 2 Year and Older) Stroke Stroke
C13247 National Institutes of Health Stroke Scale (NIHSS) Supplemental - limb ataxia status

The indicator to determine if ataxia is present in the limbs

Supplemental-Highly Recommended NIH Stroke Scale (NIHSS) Stroke Stroke
C13919 Imaging percent stenosis criterion type

The criteria used to find indicate stenosis.

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C58949 Medication stroke discharge prescribe category

Class(es) of medications the participant/subject was prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C14627 Stroke initial residence or discharge destination type

Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay.

Supplemental-Highly Recommended Hospital Discharge Stroke Stroke
C58427 Biomarker specimen collected aliqiot volume value

The volume per aliquot for pecimens collected from the participant/subject for biomarkers.

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C06108 Tobacco smoke pack-year value

If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C54689 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C13460 Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - language deficit-comprehension scale

The scale for language deficit - comprehension based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003).

Supplemental-Highly Recommended Pediatric Stroke Outcome Measure Short Neuro Exam (PSOM-SNE) - Infant Version (Infants Term Birth to Two Years) Stroke Stroke
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L).

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C58957 Anti diabetic agent stroke discharge prescribe other text

The free-text field related to 'Anti diabetic agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58724 Specimen hemolyzed indicator

Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C07431 Patient Health Questionnaire (PHQ) - Depressed score

Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ).

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health.

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C14219 Clinical stroke time-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours).

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C58742 Shipping conditions type

Indicate the specimen shipping conditions

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C07440 Patient Health Questionnaire - (PHQ) - Depression questionnaire total score

Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ).

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental-Highly Recommended NIH Stroke Scale (NIHSS) Stroke Stroke
C13239 National Institutes of Health Stroke Scale (NIHSS) - Motor leg score

Motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)

Supplemental-Highly Recommended NIH Stroke Scale (NIHSS) Stroke Stroke
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions.

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C18819 Pregnancy or delivery risk factor other text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying other text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C58824 Pregnancy or delivery risk factor maternal infection text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying maternal infection(s). Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery.

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
Displaying 1 - 25 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.