CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C14191	Last known to be well date and time	The date and time at which the patient was last known to be without the signs and symptoms of the current stroke or at his or her prior baseline. This element captures the date and time for last known well that is determined to be the most accurate after all the data have been evaluated and additional witnesses interviewed (if applicable)	Supplemental-Highly Recommended	Hospital Arrival/Admission	False	Stroke	Stroke
C58959	Lipid lower agent stroke discharge prescribe other text	The free-text field related to 'Lipid lower agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
C20529	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category	Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
C54890	Intervention endovascular status	Status of endovascular intervention	Supplemental-Highly Recommended	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C13947	Imaging peak velocity measurement	Indicates peak velocity measurement (cm/sec)	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
C14625	Hospital arrival date and time	Date (and time, if applicable and known) the participant/subject arrived at the hospital	Supplemental-Highly Recommended	Hospital Arrival/Admission	False	Stroke	Stroke
C14401	Intra-arterial (IA) procedure initiated indicator	Indicates whether an Intra-arterial (IA) procedure was initiated for participant/ subject at this hospital	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
C58744	Specimen ambient light protection indicator	Indicate whether the specimen was protected from ambient light	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C00723	APGAR ten minute score	Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
C07430	Patient Health Questionnaire (PHQ) - Little interest score	Score of how much the subject has been bothered by having little interest or pleasure in doing things in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
C58752	Specimen expiration not applicable indicator	Indicate whether there is no expiration date for the specimen	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C14151	Pregnancy medical terminations count	Number of medical terminations (abortions)	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
C07439	Patient Health Questionnaire (PHQ) - Better dead thought score	Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
C58823	Pregnancy or delivery risk factor fetal abnormal recognize in utero text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying the fetal abnormality(ies) recognized in utero. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
C58953	Antiplatelet agent stroke discharge prescribe other text	The free-text field related to 'Antiplatelet agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
C58720	Collection time mortality status indicator	Indicate whether the participant/subject is living or deceased at the time of specimen collection	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C58738	CSF/serum simultaneous collection indicator	Indicate whether the CSF and serum samples were collected simultaneously	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C55325	Specimen convalescent collected indicator	Indicator of whether or not convalescent samples were collected	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C54690	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health mental health rate scale	Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
C14632	Antiplatelet agent in hospital type	Type(s) of antiplatelet agents received during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental-Highly Recommended	Perfusion and Penumbral Imaging	False	Stroke	Stroke
C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
C56123	Specimen centrifugation performed indicator	The indicator relating to whether centrifugation was performed on the specimen	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.