CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C21935 Pediatric Quality of Life Inventory (PedsQL) - Problem school class attention difficulty scale

Scale of problems paying attention in class, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Stroke Stroke
C54273 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus language difference score

Difference score calculated as a subtraction of Language index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C12851 Cardiac MRI left ventricle noncompaction position anatomic site

Anatomic site or position on the left ventrical of any non-compaction observed by cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Stroke Stroke
C12905 Echocardiogram left ventricular mass index measurement

The left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume, corrected for body surface area

 Supplemental Echocardiogram II False Stroke Stroke
C52879 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A follow trail complete time

The element related to the time it takes the participant/subject to follow the trail in Part A as part of the Trail Making Test (TMT).

 Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Stroke Stroke
C58973 Medication diabetic past week other text

The free-text field related to 'Medication diabetic past week type', specifying other text

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C21917 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward longest string score

Score is longest string that was repeated exactly in reverse order, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

 Supplemental Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) True Stroke Stroke
C54734 Aneurysm sidewall branch count

Count of sidewall branches of the aneurysm being described

 Supplemental Aneurysm Location and Dimensions False Stroke Stroke
C14269 Sophia signs symptoms presentation type

Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification.

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C13164 Stroke Specific Quality of Life Scale (SS-QOL) - change personality scale

The scale for personality change on Stroke Specific Quality of Life Scale (SS-QOL).

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Stroke Stroke
C10772 Echocardiogram left atrial antero - posterior dimension z-score

Calculated z-score for the left atrial antero - posterior dimension measured with echocardiography

 Supplemental Echocardiogram False Stroke Stroke
C10741 Echocardiogram degree of aortic regurgitation status

Assessment with echocardiography of whether there is leaking of the aortic valve of the heart that causes blood to flow in the reverse direction during ventricular diastole, from the aorta into the left ventricle

 Supplemental Echocardiogram II False Stroke Stroke
C55953 Tobacco use stopped age not applicable status

Status indicating that age stopped tobacco use does not apply to the subject/participant as they are still using tobacco.

 Supplemental Behavioral History False Stroke Stroke
C04502 ECG global result type

Result in qualitative terms of the electrocardiogram (EKG) being reported

 Supplemental Electrocardiogram (ECG) False Stroke Stroke
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication.

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C58822 Imaging acute infarcts count category

The number of acute infarct(s)

 Supplemental Parenchymal Imaging False Stroke Stroke
C18429 Glasgow Outcome Scale Extended (GOS-E) - Date time

Date and time when Glasgow Outcome Scale Extended (GOS-E) (1-8) was administered.

 Supplemental Glasgow Outcome Scale Extended (GOSE) True Stroke Stroke
C02488 Vascular dissection extent type

Extent of the vascular dissection.

 Supplemental Vessel Imaging Angiography False Stroke Stroke
C13826 Hematoma chronic indicator

Indicates presence of Chronic hematoma

 Supplemental Parenchymal Imaging False Stroke Stroke
C14542 Systemic vascular resistance unit of measure

Units used to measure the systemic vascular resistance.

 Supplemental Vital Signs False Stroke Stroke
C54281 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C58831 Stroke initial residence or discharge destination other text

The free-text field related to 'Stroke initial residence or discharge destination type' specifying other text. Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay.

 Supplemental Hospital Discharge False Stroke Stroke
C12913 Echocardiogram quality study type

Quality of the echocardiogram study

 Supplemental Echocardiogram II False Stroke Stroke
C54087 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Completion time raw score

Complete time as a raw score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

 Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Stroke Stroke
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.

 Supplemental Prior Functional Status False Stroke Stroke
Displaying 226 - 250 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.