CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C08517	36-item Short Form Health Survey (SF-36) - Cut time on work activities emotional problems indicator	Indicator for surveyee-reported cut down time on work or other activities as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C13770	Imaging acute lesion count	Indicates acute lesion count	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13877	Imaging perfusion computed tomography based identification penumbra method type	Indicates PCT based identification of penumbra method used for penumbra calculation	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
C18820	Developmental and academic history other text	The free-text field related to 'Developmental and academic history type' specifying other text. Specific aspects of the participant's/subject's pre-morbid developmental status and academic function	Supplemental	Prior Functional Status	False	Stroke	Stroke
C58736	Needle gauge size type other text	The free-text field related to 'Needle gauge size type' specifying other text	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
C58898	Causative Classification System (CCS) - large artery atherosclerosis phenotype status	The status of the predefined large artery atherosclerosis phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Stroke	Stroke
C14010	Intracranial stenosis collateral vessel anatomic site	Indicates intracranial stenosis collateral vessel(s)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C54901	Craniectomy perform indicator	Indicator of whether craniectomy was performed	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C10723	Echocardiogram completed indicator	Whether an echocardiogram was performed on the participant/subject	Supplemental	Echocardiogram	False	Stroke	Stroke
C18418	Glasgow Outcome Scale Extended (GOS-E) - Frequent help need indicator	Indicator if the participant is in need of frequent help of someone to be around at home as part of Glasgow Outcome Scale Extended (GOS-E)	Supplemental	Glasgow Outcome Scale Extended (GOSE)	True	Stroke	Stroke
C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13470	Stroke Adjudication Worksheet - neuroimaging type	Type of neuro-imaging done for the stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
C13225	Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - money scale	Compared with 10 years ago how is this person at handling money for shopping	Supplemental	Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE)	True	Stroke	Stroke
C14274	Smoking cessation treatment indicator	For patients who have smoked at least one cigarette within the past year (Joint Commission definition) or who vape, indicates whether the patient received counseling to stop smoking/vaping or smoking cessation advice during the hospitalization as documented in progress notes or physician orders at discharge or admissions	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
C07331	Neurobehavioral Symptom Inventory (NSI) - Hearing impairment score	Score of subject's hearing impairment, as part of the Neurobehavioral Symptom Inventory (NSI)	Supplemental	Neurobehavioral Symptom Inventory (NSI)	True	Stroke	Stroke
C21949	Pediatric Quality of Life Inventory (PedsQL) - Problem doctor hospital appointment school absent difficulty scale	Scale of problems with missing school to go to the doctor or hospital, as part of the Pediatric Quality of Life Inventory (PedsQL)	Supplemental	Pediatric Quality of Life Inventory (PEDSQL)	True	Stroke	Stroke
C08525	36-item Short Form Health Survey (SF-36) - Times down score	Score of times feeling so down in the dumps that nothing could cheer up during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C17928	Cardiac MRI myocardial scar anatomic site	Where myocardial scar was/was not detected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
C13788	Imaging chronic infarct anatomic site	Indicates brain region location(s) of chronic infarcts	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C58983	Medication calcium-channel blocker past week other text	The free-text field related to 'Medication calcium-channel blocker past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
C14202	Emergency Medical Services (EMS) dispatch priority type	For EMS systems where there is prioritizing of calls, this item would capture what level of prioritization was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C58910	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - dissection grade	The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C14021	Sickle cell disease blood flow velocity measurement	The velocity measurement blood flow relative to sickle cell disease	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.