CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C18426	Glasgow Outcome Scale Extended (GOS-E) - Travel without assistance indicator	Indicator if the participant is able to travel locally without help as part of Glasgow Outcome Scale Extended (GOS-E)	Supplemental	Glasgow Outcome Scale Extended (GOSE)	True	Stroke	Stroke
C15910	Assessment date and time	The date of participant's injury	Supplemental	Stroop Test	True	Stroke	Stroke
C13902	Imaging acute stroke study type	Indicates imaging acute stroke study type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C14696	Berg Balance Scale (BBS) - stand sit scale	The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Stroke	Stroke
C54926	Workload after event rate	Rate in hours per week of the subject/participant's workload subsequent to the event	Supplemental	Return to Work	False	Stroke	Stroke
C07339	Neurobehavioral Symptom Inventory (NSI) - Slow thinking impairment score	Score of subject's slow thinking impairment, as part of the Neurobehavioral Symptom Inventory (NSI)	Supplemental	Neurobehavioral Symptom Inventory (NSI)	True	Stroke	Stroke
C21959	Pediatric Quality of Life Inventory (PedsQL) - Problem sleep trouble scale	Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL)	Supplemental	Pediatric Quality of Life Inventory (PEDSQL)	True	Stroke	Stroke
C58870	Imaging plaque thickness unit of measure	The unit of measure for "Imaging plaque thickness measurement"	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
C08533	36-item Short Form Health Survey (SF-36) - Sick easier score	Score of how true or false surveyee perceived the statement: I seem to get sick a little easier than other people, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C13797	Modified Scheltens scale occipital caps score	Indicates Modified Scheltens scale - Occipital caps score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14409	Intra-sinus intervention groin puncture date and time	Date (and time, if applicable and known) of groin puncture on the participant/ subject for intra-sinus intervention	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
C58991	Medication hormone replacement therapy route type	Type of administration route for the hormone replacement therapy medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Stroke	Stroke
C13904	Imaging interpretation offsite media type	Indicates imaging offsite media type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
C13182	Stroke Specific Quality of Life Scale (SS-QOL) - opening jar upper extremity scale	The scale for trouble opening a jar based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C14211	Los Angeles Motor Scale (LAMS) - arm strength result	Assess the arm strength using the Los Angeles Motor Scale (LAMS). Check all that apply	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C58918	Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant/subject's medical history was taken	Supplemental	Medical History	False	Stroke	Stroke
C14033	Vasospasm vessel anatomic site	Indicates vasospasm vessel(s)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
C53901	Stroop Color and Word Test (SCW) - Color age educate predict score	Score (Age/Ed. Predict) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
C13945	Imaging spectrum depth measurement	Indicates spectrum depth measurement (mm)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C14704	Berg Balance Scale (BBS) - alternate foot step up scale	The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Stroke	Stroke
C58732	Occupation primary after event other status text	The free-text field to capture other status indicating the participant's/subject's primary occupational status after the event	Supplemental	Return to Work	False	Stroke	Stroke
C18489	Neurobehavioral Symptom Inventory (NSI) - Form completion name	Name of the person who completed the form, as part of the Neurobehavioral Symptom Inventory (NSI)	Supplemental	Neurobehavioral Symptom Inventory (NSI)	True	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.