CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21109 Visit assessment complete type

Type of assessment completed during visit

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C13863 Imaging magnetic resonance based identification perfusion defect threshold type

Indicates MR based identification of perfusion defect threshold type used to delineate abnormality

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13470 Stroke Adjudication Worksheet - neuroimaging type

Type of neuro-imaging done for the stroke event

Supplemental Stroke Adjudication Form Stroke Stroke
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Supplemental Behavioral History Stroke Stroke
C14050 Hijdra scale total score

Indicates Hijdra scale - total Score

Supplemental Parenchymal Imaging Stroke Stroke
C14190 Stroke symptoms discover location type

Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered

Supplemental Hospital Arrival/Admission Stroke Stroke
C52697 Infection within two weeks other text

The free-text field related to the type of infection(s) within the last two weeks the participant/subject has had

Supplemental Medical History Stroke Stroke
C18768 Therapy or rehabilitation other text

The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject

Supplemental Prior Functional Status Stroke Stroke
C18701 Imaging modality type other text

The free-text field related to 'Imaging modality type', specifying other text. Type of radiologic study performed on the participant

Supplemental Imaging Acquisition Stroke Stroke
C12839 Cardiac MRI ventricle end diastolic dimension measurement

Measurement of the diameter across the selected ventricle at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Stroke Stroke
C54253 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Coding total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Coding Subtest

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C13871 Imaging perfusion computed tomography based identification core volume measurement

Indicates perfusion CT (PCT) based identification of core volume for all the methods used

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13478 Stroke Adjudication Worksheet - stroke TIA other symptoms type

The type of other identified cause(s) of ischemic stroke

Supplemental Stroke Adjudication Form Stroke Stroke
C12874 Echocardiogram pulmonic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography

Supplemental Echocardiogram II Stroke Stroke
C10539 Diabetes first diagnosis age value

Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus

Supplemental Medical History Stroke Stroke
C10724 Echocardiogram perform date and time

Date (and time, if applicable and known) the echocardiography was performed

Supplemental Echocardiogram Stroke Stroke
C55953 Tobacco use stopped age not applicable status

Status indicating that age stopped tobacco use does not apply to the subject/participant as they are still using tobacco

Supplemental Behavioral History Stroke Stroke
C02455 Midline shift supratentorial indicator

Displacement of the supratentorial midline structures, particularly the septum pellucidum, 2 mm or more due to mass effect of a focal traumatic lesion or brain swelling

Supplemental Parenchymal Imaging Stroke Stroke
C54752 Cerebrospinal fluid collection anatomic site other text

The free-text field related to other anatomic site related to collection of cerebrospinal fluid (CSF)

Supplemental Biospecimen Collection and Processing Stroke Stroke
C14201 Emergency Medical Services (EMS) dispatch date and time

This refers to the date when Emergency Medical Services (EMS) transport (either by ground or air) leaves the station to pick up the patient for transport

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C12847 Cardiac MRI left ventricle mass index measurement

Measurement of the left ventricle mass as obtained by cardiac magnetic resonance imaging (MRI) divided by the participant's body surface area in square meters

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Stroke Stroke
C54261 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall index score

Index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C14054 Stroke Adjudication Worksheet - neuroimaging multiple CT stroke finding indicator

Whether the multiple brain CTs separated in time was positive for this stroke event

Supplemental Stroke Adjudication Form Stroke Stroke
C12893 Echocardiogram right ventricle wall motion abnormal indicator

Indicator of wall motion abnormalities in the right ventricle on the echocardiogram

Supplemental Echocardiogram II Stroke Stroke
C04506 ECG right ventricular hypertrophy status

Status of right ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) Stroke Stroke
Displaying 201 - 225 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.