CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C18686	Hospital transport other text	The free-text field related to 'Hospital transport type' specifying other text. Type of transportation from injury scene to hospital	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
C13790	Fazekas scale periventricular score	Indicates the Fazekas scale periventricular score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
C21720	Vertigo assessment indicator	Indicator as related to assessment of vertigo	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
C10731	Echocardiogram right atrial enlargement status	Status of absence or presence of right atrial enlargement on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
C13961	High intensity transient signal hits present indicator	Indicates presence of high intensity transient signals hits	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C14203	Emergency Medical Services (EMS) dispatch type code	For EMS systems where there is use of a designated stroke dispatch code, this item would capture what code was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C54891	Medication antithrombotic used procedure type	Type of antithrombotic medication used during surgical or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C58911	Atherosclerosis small vessel disease cardiac pathology other cause dissection (ASCOD) system - sub type	Stroke Subtype as defined by the A-S-C-O-D pattern (e.g., A1-S3-C1-O3-D0)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C52598	Medical history ischemic stroke recency rate	The element related to the recency of ischemic strokes the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
C14275	Smoking cessation treatment type	If the participant/subject received anti-smoking/ smoking cessation treatment, describes the type(s) of treatment received. The interventions can be directed at the caregiver if the participant/subject is unable to comprehend	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
C54065	D-KEFS Color-Word Interference Test (CWIT) -Contrast Scaled Score	Scaled score converted from scaled score difference, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
C58974	Medication antihypertensive current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken antihypertensive medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C00214	Living with persons count	Count of other people with whom the participant/subject currently lives, cohabits, or stays	Supplemental	Social Status	False	Stroke	Stroke
C10570	Imaging contrast agent used indicator	Indicator as to whether or not an imaging contrast agent was used for the scan	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
C54082	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B total error count	The total number of errors made by the participant during their completion of Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
C13798	Modified Scheltens scale frontal caps score	Indicates Modified Scheltens scale - Frontal caps score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C54738	Aneurysm thrombus indicator	Indicator for the presence of evidence of thrombus	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
C10744	Echocardiogram left ventricle fractional shortening measurement	Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension assessed with echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension	Supplemental	Echocardiogram II	False	Stroke	Stroke
C14008	Imaging window quality category	Indicates window quality category	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C14622	Los Angeles Motor Scale (LAMS) - facial smile or grimace abnormal type	Type of abnormal facial smile or grimace observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C07095	Center for Epidemiologic Studies-Depression Scale (CES-D) - trouble keeping mind indicator	Indicates how often the subject had trouble keeping mind on what the he/she was doing in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
C54899	Blood transfusion surgery procedure indicator	Indicator of whether blood transfusion was performed during surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C58919	Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the A1 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C52617	Head trauma result type	The element related to the result of head trauma	Supplemental	Medical History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.