CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58851 Physical activity increase intervention other text

The free-text field related to 'Physical activity increase intervention type' specifying other text. If the participant/subject received recommendations to increase physical activity, describes the type(s) of interventions received

 Supplemental Lifestyle Modification Therapies False Stroke Stroke
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

 Supplemental Laboratory Tests False Stroke Stroke
C19057 Diabetes mellitus complications other text

The free-text field related to 'Diabetes mellitus complications type' specifying other text. Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing

 Supplemental Medical History False Stroke Stroke
C14189 Neonatal encephalopathy level type

Level of neonatal encephalopathy according to the Sarnat Staging

 Supplemental Assessment of Transient Neurologic Deficits Resolved Prior to Presentation False Stroke Stroke
C21939 Pediatric Quality of Life Inventory (PedsQL) - Problem low energy difficulty scale

Scale of problems with low energy, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Stroke Stroke
C54276 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus attention difference score

Difference score calculated as a subtraction of Attention index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C12908 Echocardiogram intracardiac find type

Type of intracardiac findings observed by echocardiography

 Supplemental Echocardiogram II False Stroke Stroke
C54082 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B total error count

The total number of errors made by the participant during their completion of Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

 Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Stroke Stroke
C21922 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest trial score

Trial score, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

 Supplemental Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) True Stroke Stroke
C54738 Aneurysm thrombus indicator

Indicator for the presence of evidence of thrombus

 Supplemental Aneurysm Location and Dimensions False Stroke Stroke
C20440 Beck Depression Inventory II (BDI-II) - Tiredness fatigue scale

Scale identifying level of tiredness or fatigue, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Stroke Stroke
C10744 Echocardiogram left ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension assessed with echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension

 Supplemental Echocardiogram II False Stroke Stroke
C20462 Brief Visuospatial Memory Test - Revised (BVMT-R) - Learning T-score

T-score for Learning portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) True Stroke Stroke
C13146 Stroke Specific Quality of Life Scale (SS-QOL) - trouble speaking language scale

The scale for having trouble speaking based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Stroke Stroke
C10740 Echocardiogram left ventricle ejection fraction measurement

Fraction of blood pumped out of the left ventricles with each heart beat measured with echocardiography

 Supplemental Echocardiogram False Stroke Stroke
C54770 Imaging aneurysm wall shear stress mean measurement

Measurement of the mean wall shear stress of the aneurysm, as computed from imaging

 Supplemental Vessel Imaging Angiography False Stroke Stroke
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Family History False Stroke Stroke
C14055 Stroke Adjudication Worksheet - neuroimaging MRI stroke finding indicator

Whether the MRI was positive for this stroke event

 Supplemental Stroke Adjudication Form False Stroke Stroke
C14263 Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - primary chronic sub type

Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: chronic - patients with an initial vascular diagnosis (at 0-1 month) for "Primary Classification: Acute" are given a follow-up diagnosis based on studies obtained at or after 3-6 months that will capture any progression, stability or regression of the arteriopathy

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C13851 Arteriovenous malformation anatomic site

Specifies Location of arteriovenous malformation

 Supplemental Parenchymal Imaging False Stroke Stroke
C58861 Recreational prescription drug abuse discontinue intervention other text

The free-text field related to 'Recreational prescription drug abuse discontinue intervention type' specifying other text. If the participant/subject received counseling to discontinue recreational or prescription drug abuse, describes the type(s) of interventions received

 Supplemental Lifestyle Modification Therapies False Stroke Stroke
C58757 Lab test unit type

Indicator of whether United States Customary Units (Standard) or International Standard of Units (SI) were used in the laboratory test results

 Supplemental Laboratory Tests False Stroke Stroke
C13881 Digital Subtraction Angiography (DSA) injection site anatomic site

The site of injection for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment

 Supplemental Vessel Imaging Angiography False Stroke Stroke
C52600 Medical history transient ischemic attack range

The element related to the number of transient ischemic attacks (TIAs) the participant/subject has had

 Supplemental Medical History False Stroke Stroke
C13831 Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score

Indicates Graeb IVH Scale - Right lateral ventricle score

 Supplemental Stroke Types and Subtypes False Stroke Stroke
Displaying 176 - 200 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.